Social Support in Normal Pressure Hydrocephalus: Unmet Tangible Social Support

McGirr, Alexander; Cusimano, Michael D.

doi:10.1017/s0317167100013032

Cited by 3 publications

(2 citation statements)

References 5 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Given further awareness of the potential of viral exposure to simply anyone outside the home, this likely presents further evidence of the importance of socialization in this population. While these exacerbated participant experiences align with initial evidence that patients with hydrocephalus require more social support than they currently have access to even outside of pandemic circumstances (22), the impact of socialization on hydrocephalus has not been well-studied, and the physical ramifications of restricted access to support structures remain. Most participants reported negative changes to their mental health, primarily due to feelings of general isolation (whether they lived alone or were social distancing alongside their care partners) and to exacerbation of symptoms such as difficulty sleeping.…”

Section: Discussionmentioning

confidence: 69%

Impacts of the COVID-19 Pandemic on the Healthcare Provision and Lived Experiences of Patients with Hydrocephalus

Pricop

Subotic

Anghelescu

et al. 2022

Journal of Patient Experience

View full text Add to dashboard Cite

The emergence of COVID-19 (SARS-CoV-2) led to distancing measures which acutely affected healthcare infrastructure, leading to limited in-person clinical visits and an increased number of virtual appointments. This study aimed to examine the effects this had on adults with hydrocephalus by describing the lived experiences of a cohort of patients at an outpatient hydrocephalus clinic. Between early May and early July of 2020, remote structured interviews were conducted with participants. Interviews were in-depth and open-ended, allowing participants to reflect and expand on the effects of the social distancing mandate on their well-being and quality of care. Three themes emerged: (1) impacts of changes in treatment provision, (2) impacts of changes in mitigating activities, and (3) impacts of changes on personal well-being. The comprehensive understanding of lived experiences may inform the future provision of healthcare services and social policy. Improved approaches to remote care telemedicine have the potential to facilitate high-quality care.

show abstract

Section: Discussionmentioning

confidence: 69%

Impacts of the COVID-19 Pandemic on the Healthcare Provision and Lived Experiences of Patients with Hydrocephalus

Pricop

Subotic

Anghelescu

et al. 2022

Journal of Patient Experience

View full text Add to dashboard Cite

show abstract

“…Comparison subjects were a priori recruited using the acquaintanceship method; however, neurosurgical controls were recruited in the event that an NPH patient could not identify a suitable comparison subject among family and friends (N = 10). This method achieved an excellent degree of matching with respect to sociodemographic variables [19,68] Questions pertaining to diet and nutrition were drawn from the National Population Health Survey (NPHS), a resource developed by Statistics Canada. We chose 11 questions from this validated instrument.…”

Section: Diet and Nutrition In Inphmentioning

confidence: 99%