Social support and invalidation by others contribute uniquely to the understanding of physical and mental health of patients with rheumatic diseases

Kool, Marianne B.; Middendorp, Henriët van; Lumley, Mark A.; Bijlsma, J. W. J.; Geenen, Rinie

doi:10.1177/1359105312436438

Cited by 79 publications

(92 citation statements)

References 37 publications

(70 reference statements)

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“…Besides numerous qualitative studies, a few questionnaire studies suggest perceived stigmatization in patient groups, such as patients with chronic facial pain [41], patients with fibromyalgia and rheumatoid arthritis [38,44], and patients with somatoform pain disorder [24].…”

Section: A C C E P T E Dmentioning

confidence: 99%

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Understanding stigma and chronic pain: a-state-of-the-art review

Ruddere

Craig

2016

Pain

238

242

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Chronic nonmalignant pain makes individuals prone to stigmatizing reactions of others.Stigmatizing responses are devaluing and discrediting responses of observers toward individuals who possess a particular characteristic that deviates from societal norms [16]. In the context of chronic nonmalignant pain, an absence of clear tissue damage deviates from the widely held biomedical model, which presumes that clear physiological pathology underlies the pain experience [22]. As well, most people understand pain through acute pain experience, which resolves relatively rapidly over time, leading to uncertainty about pain that does not diminish [48,63]. These and other processes must be understood to explain the substantial evidence that individuals with chronic pain commonly suffer from stigmatization by others [32].The stigma associated with chronic pain are not well understood, with research lacking accounts of determinants, including underlying mechanisms in stigmatizing persons and details concerning vulnerabilities and the impact on stigmatized persons. Furthermore, prevention strategies for teaching how to deal with others' stigmatizing reactions and programs aimed at minimizing stigmatizing behaviors of observers are scarce. This topical review briefly describes the current understanding of stigma attached to chronic pain and has the intent to provide some thought provoking ideas and highlight future directions that will inspire both researchers and clinicians. 2.Stigma and chronic pain Stigma perceived by the patientAbundant evidence highlights the ubiquity of stigma in the lives of individuals with chronic pain [1,21,25,26,32,34,52,54,55,62,73,74,76] Impact of stigma on the wellbeing of pain patientsAlthough thorough research into the consequences of both perceived stigma and public stigma on the wellbeing of pain patients is lacking, preliminary evidence shows that the discounting A C C E P T E D A C C E P T E Dexploited by others [35]. In particular, the absence of a clear medical explanation for the pain might function as a threat for the observer regarding availability of reciprocity (i.e., the social exchange) to be expected from individuals in pain [35].There is a substantial literature demonstrating that individuals stigmatize individuals from the "out group" [58]. "In group" people include those similar to the observer, e.g., kin, friends, age peers, whereas "out group" people likely include those with different skin colors, ideological persuasions, etc. In the context of pain, observers feel less empathy and less altruistic motivation towards members of social out-groups than members of in-groups [29,47] and the pain complaints of "out group" members tend to be discounted [65]. This is consistent with findings that observers attribute lower pain to patients who are considered responsible for their pain condition [17,68].A final useful explanatory approach arises from the considerable research which indicates that healthcare practitioners often feel uncertain or unprepared to manage patients with c...

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Section: A C C E P T E Dmentioning

confidence: 99%

“…Although thorough research into the consequences of both perceived stigma and public stigma on the wellbeing of pain patients is lacking, preliminary evidence shows that the discounting responses of others are related to poorer physical and psychological wellbeing [38]. …”

Section: Impact Of Stigma On the Wellbeing Of Pain Patientsmentioning

confidence: 99%

Understanding stigma and chronic pain: a-state-of-the-art review

Ruddere

Craig

2016

Pain

238

242

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“…Although the etiology of depression in these patient populations is complex, functional losses, pain, and psychosocial challenges are common factors associated with the development of depressive symptoms (Benka et al, 2012;Fuller-Thomson & Sulman, 2006;Hirsch, Sirois, & Lyness, 2011;Katz & Yelin, 1995;Kool, van Middendorp, Lumley, Bijlsma, & Geenen, 2013).…”

Section: Introductionmentioning

confidence: 99%

Gratitude uniquely predicts lower depression in chronic illness populations: A longitudinal study of inflammatory bowel disease and arthritis.

Sirois

Wood

2017

Health Psychology

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Objective: Although gratitude has been identified as a key clinically relevant trait for improving well-being, it is understudied within medical populations. The current study addressed this gap and extended previous and limited cross-sectional research by examining the longitudinal associations of gratitude to depression in two chronic illness samples, arthritis and IBD. Results: At T2, 57.2 percent of the arthritis sample and 53.4 percent of the IBD sample met the cut off scores for significant depression. T1 gratitude was negatively associated with depressive symptoms at T1 and T2 in both samples (r's from -.43 to -.50). Regression analyses revealed that T1 gratitude remained a significant and unique predictor of lower T2 depression after controlling for T1 depression, relevant demographic variables, illness cognitions, changes in illness-relevant variables, and another positive psychological construct, thriving, in both samples. Conclusion:As the first investigation of the longitudinal associations of gratitude to psychological well-being in the context of chronic illness, the current study provides important evidence for the relevance of gratitude for health-related clinical populations. Further intervention-based research is warranted to more fully understand the potential benefits of gratitude for adjustment to chronic illness.

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“…At the same time, one person may influence or contribute to a greater extent than the other. In this case, when the elderly participant in the social relationship receives support through such an interaction, it can be said that social support is provided 34 . This can alleviate everyday problems and promote physical and mental health 35 .…”

Section: Social Dimensionmentioning

confidence: 99%

“…This can alleviate everyday problems and promote physical and mental health 35 . As a support for health actions, social support can also contribute to increasing the sense of joy, self-esteem and self-confidence of an individual 34,35 .…”

Section: Social Dimensionmentioning

confidence: 99%

Healthy aging from the perspective of the elderly: an integrative review

Tavares

Jesus

Machado

et al. 2017

Rev. bras. geriatr. gerontol.

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Objective: to identify the perspective of elderly persons on healthy aging as described by scientific literature. Method: a descriptive integrative review type study was performed, guided by the question: what knowledge has been produced about healthy aging from the perspective of the elderly? It was carried out using the Scopus Info Site (SCOPUS), Cumulative Index to Nursing & Allied Health Literature (CINAHL), Medical Literature Analysis and Retrieval System Online (MEDLINE), Literature of Latin America and the Caribbean (LILACS), EMBASE and WEB OF SCIENCE databases and in the directory of the Scientific Electronic Library Online Journals (SciELO), for literature published in the period between 2005 and 2016. Result: Eleven papers were regarded as eligible for this review. These studies revealed that healthy aging is related to different health dimensions: biological (adoption of healthy habits and behaviors with self-responsibility), psychological (feelings of optimism and happiness), spiritual (faith and religiosity) and social (reciprocity in social support factors and the capacity to live autonomously and independently). Conclusion: the synthesis of knowledge on healthy aging from the perspective of the elderly can support the actions of professionals who work with this population group to encourage and value the social determinants involved, so overcoming the exclusive focusing on the adoption of habits and behaviors inherent to lifestyle to achieve aging in a healthy way.

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Social support and invalidation by others contribute uniquely to the understanding of physical and mental health of patients with rheumatic diseases

Cited by 79 publications

References 37 publications

Understanding stigma and chronic pain: a-state-of-the-art review

Understanding stigma and chronic pain: a-state-of-the-art review

Gratitude uniquely predicts lower depression in chronic illness populations: A longitudinal study of inflammatory bowel disease and arthritis.

Healthy aging from the perspective of the elderly: an integrative review

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