Social positioning by people with Alzheimer's disease in a support group

Hedman, Ragnhild; Hellström, Ingrid; Ternestedt, Britt‐Marie; Hansebo, Görel

doi:10.1016/j.jaging.2013.11.003

Cited by 14 publications

(24 citation statements)

References 167 publications

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“…(1) immediately after the professional has spoken, suggesting comprehension difficulties, (2) in the midst of patients speaking, possibly due to word finding, and (3) after speaking, possibly due to an awareness of an inappropriate response. Hedman et al (2014b) also noted language difficulties, such as decreased fluency, content and comprehension, as evident in support group interactions. Patients deploy various coping techniques in response to these problems.…”

Section: P a T I E N T F A C E W O R K : C O M P E N S A T O R Y S T mentioning

confidence: 88%

Communication in healthcare interactions in dementia: a systematic review of observational studies

Dooley

Bailey

McCabe

2015

Int. Psychogeriatr.

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Patient-companion-professional communication in dementia care raises various ethical questions: how to strike a balance between different communicative needs of patients and companions; clarity versus sensitivity in delivery of the diagnosis; and whether to minimize or expose interactional difficulties and misunderstanding to enrich patient understanding and involvement. Healthcare professionals need guidance in delivering a diagnosis and strategies to optimize patient and companion participation.

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Section: P a T I E N T F A C E W O R K : C O M P E N S A T O R Y S T mentioning

confidence: 88%

Communication in healthcare interactions in dementia: a systematic review of observational studies

Dooley

Bailey

McCabe

2015

Int. Psychogeriatr.

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“…Research shows that living with dementia induces feelings of powerlessness over one's life, uncertainty in an unfamiliar world (Emery Trindade et al, ) and a desire to be included, supported, appreciated and respected (Tranvåg, Petersen, & Nåden, ). Hedman, Hellström, Ternestedt, Hansebo, and Norberg () stated that to preserve the person's sense of self is to preserve a part of his/her identity. McCormack and McCance () describe personhood as the most important component when practicing person‐centred care.…”

Section: Introductionmentioning

confidence: 99%

The value of “us”—Expressions of togetherness in couples where one spouse has dementia

Swall

Williams

Hammar

2019

Int J Older People Nursing

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Background: Living with dementia involves both illness and health, and self-care and care from others. As most persons with dementia live in their own homes, dementia affects not only the person with the disease, but also family, commonly the partner.Research shows that spousal carers feel as though they are losing their partners since they can no longer share thoughts, feelings and experiences as a couple.Aim: The aim of the study was to describe the sense of togetherness of the spouses when one spouse has dementia. Method:The sample consists of 18 recorded conversations between 15 persons with dementia and their spouses. The filmed conversations were transcribed verbatim and then analysed using qualitative content analysis. Findings:One overarching theme arose: Dementia preserved and challenged the value of "us." It can be challenging for a couple in which one partner has dementia to preserve a sense of togetherness and to have the relationship they wish for. Conclusion:Based on our results, we suggest that practitioners should help couples to strengthen their bond as a couple so as to maintain a sense of well-being. Future studies should examine couplehood under differing conditions, such as long-versus short-term relationships. Prior relationship quality may also be a factor that influences the sense of couplehood following a serious health challenge, such as dementia. Implication for practice: When spouses were able to live together, their relationship was enriched at many levels. Their love for each other strengthened them as a unit -as an "us" -where togetherness seemed to be strong. Future studies need to examine whether the sense of couplehood varies depending on the length of the relationship (i.e., a relationship of many years or a relatively new relationship).

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“…People with moderate AD have been shown to strengthen their sense of self, their “I”, in relation to the world and to others when interacting with each other in controlled group conversations (Hedman et al, 2014). In this study, the people appeared to become empowered, more secure, and more confident, and to lead the way and make decisions about what was best for the dog, while still understanding that their own limitations might affect the dog.…”

Section: Discussionmentioning

confidence: 99%

“…Person-centred methods have been shown to strengthen the sense of “self” and identity among those who have dementia (Crichton & Koch, 2007; Hedman et al, 2012; Hedman, Hellström, Ternestedt, Hansebo, & Norberg, 2014). Loss of identity, or self, as a result of AD is a temporary loss of one’s self (Sabat, 2001), something Edvardsson et al (2008) describe as being a dormant state of the person’s “personhood”, not a lost one.…”

Section: Introductionmentioning

confidence: 99%

Stepping out of the shadows of Alzheimer’s disease: a phenomenological hermeneutic study of older people with Alzheimer’s disease caring for a therapy dog

Swall

Ebbeskog

Hagelin

et al. 2017

International Journal of Qualitative Studies on Health and Well

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Purpose: Living with Alzheimer’s disease (AD) can involve a person being unable to recall and convey information in daily life. There are several ways to provide person-centred care to older people with AD, e.g. by empowering them in a situation. The use of animal-assisted therapy (AAT) with a therapy dog in the care of people with dementia is increasing, with the presence of a therapy dog being described as improving, among other things, the well-being and socialization of the person. The aim of this study was to illuminate meanings of care for people with AD in their encounters with a therapy dog.Method: The study used video-recorded observations of the person with AD and the dog. Data were transcribed and analysed using a phenomenological hermeneutic method.Results: The main theme was “Using one’s own resources and abilities as a human being”, which meant being the person one can be and distancing oneself from the symptoms of AD during the time with the dog.Conclusions: The feelings evoked in the people with AD included empathy and altruism, which allowed for a sense of joy and tenderness, which may induce a sense of self-worth, of being needed, and of being meaningful.

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Social positioning by people with Alzheimer's disease in a support group

Cited by 14 publications

References 167 publications

Communication in healthcare interactions in dementia: a systematic review of observational studies

Communication in healthcare interactions in dementia: a systematic review of observational studies

The value of “us”—Expressions of togetherness in couples where one spouse has dementia

Stepping out of the shadows of Alzheimer’s disease: a phenomenological hermeneutic study of older people with Alzheimer’s disease caring for a therapy dog

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