Social media utilization, preferences, and patterns of behavior in patients with gynecologic pelvic pain

Piszczek, C.; Foley, C. Fritz; Farag, Sara; Northup, Megan; Overcarsh, Patricia; Wiedrick, Jack; Yunker, Amanda; Ecker, Amanda M.

doi:10.1016/j.ajog.2021.10.039

Cited by 6 publications

(2 citation statements)

References 24 publications

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“…However, there has not been an analysis of posts on social media platforms that allow for anonymous and spontaneous expressions, thus getting at many women's unfiltered thoughts. Social media has become a primary way people in the US receive information on all topics, including healthcare [15][16][17]. Social media platforms are a means by which people can share their personal and emotional experiences of giving birth to influence the choices of others.…”

Section: Introductionmentioning

confidence: 99%

How Do Women Vote: What Women Post About Home Birth Versus Hospital Birth on Popular Social Media Platforms

Morris,

Lane,

Nelson

et al. 2024

Cureus

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Introduction: The rates of home birth have been increasing; reliance on social media as a source of medical advice and support for patients has also been increasing. This is the first study that directly evaluates birthing people’s perceptions, attitudes, and advice about planned home births expressed in public posts and comments on two popular social media platforms - Reddit and TikTok. Methods: Posts on each platform were searched from January 2017 through July 2022 using the terms “home birth” and “home vs. hospital birth”. Included posts were from the United States written in English, with at least 10 comments and 10 upvotes or likes. Up to five themes were collected per post or comment and were categorized as supportive, opposing, or neutral. The Institutional Review Board (IRB) determined that the project did not include human subjects. Results: Collectively, 777 posts and 47,452 comments were evaluated for inclusion; 257 posts and 2,408 comments met the inclusion criteria for analysis. In posts, 69% supported, 20% opposed, and 11% were neutral toward home birth (n = 257). Similarly, in comments, 53% supported, 28% opposed, and 19% were neutral (n = 2,408). Supportive themes included concerns about the safety of hospital delivery and reassurance about home birth safety, enhanced patient control with home deliveries, positive personal stories reinforcing home birth, concerns about excessive interventions in hospital birth, and advice about preparing for home birth. Opposing themes included concerns about risks of home birth, negligence of those attempting it, reassurance that hospital birth does offer women control, greater financial costs of home birth and that medical interventions can be lifesaving. Conclusion: These results can help physicians recognize some of the women’s concerns about hospital births and what information they may find on social media guiding them as they formulate their birth plans. Overall, this information helps with the goal of balancing patient safety with the need to respect patient autonomy.

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Section: Introductionmentioning

confidence: 99%

How Do Women Vote: What Women Post About Home Birth Versus Hospital Birth on Popular Social Media Platforms

Morris,

Lane,

Nelson

et al. 2024

Cureus

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“…The use of social media to navigate health-related experiences has been reported among adults with menstrual pain–associated conditions. For instance, among adult gynecological patients, those who report chronic pelvic pain are more likely than patients without pelvic pain to use social media platforms to understand and manage their condition ( Piszczek et al, 2022 ). Females with endometriosis report having a positive attitude toward sharing information about their health on social media platforms and turn to social media to help understand their experiences ( Sbaffi & King, 2020 ).…”

Section: Introductionmentioning

confidence: 99%

“You’re Not Alone”: How Adolescents Share Dysmenorrhea Experiences Through Vlogs

Mohammed,

Gagnon,

Cummings

2023

Qual Health Res

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Many adolescents experience severe pain during menstruation, yet their attempts to receive medical attention to alleviate or manage this pain are often met with dismissal or disbelief. In light of these barriers to care, many adolescents turn to social media to share their experiences with menstruation and pain, as well as hear from other members of their community. In this study, we investigated how adolescents present their experiences with menstruation in vlogs (or “video blogs”). Using critical qualitative methods and a four-column analysis structure, we transcribed and thematically analyzed the audio and video content of 17 YouTube vlogs wherein adolescents described their experiences with menstrual pain. We found that stylistically, the vloggers modulated between a polished documentary style and an intimate storytime style of video production. We additionally found that vloggers spoke about their menstrual pain experiences from three perspectives: as a Patient managing and diagnosing physical symptoms, as a Self considering how the pain affects their life and ambitions, and as a Teacher educating their audience. Considering both the visual and audio data, we discuss how healthcare providers can use these findings to inform their approach to discussing menstrual pain with adolescents. We further discuss possible future directions for research into health story sharing on social media.

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Social media communities for patients and families affected by congenital pediatric surgical conditions

et al. 2022

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Background Social media has become a means to allow individuals affected by rare diseases to connect with others. This study aimed to characterize the use of three popular social media platforms by individuals affected by common pediatric surgery index conditions. Methods A systematic search of Instagram, Facebook, and Twitter was performed using standardized terms for the following pediatric surgical conditions: anorectal malformation, biliary atresia, bronchopulmonary sequestration, congenital diaphragmatic hernia (CDH), congenital pulmonary airway malformation, duodenal atresia, esophageal atresia/tracheoesophageal fistula (EA/TEF), gastroschisis, Hirschsprung disease (HD), and omphalocele. Accounts active within the last year were analyzed and assessed. Results A total of 666 accounts were identified. Instagram was the most common platform, but accounts dedicated to support and story sharing were most common on Facebook. Biliary atresia and CDH had the largest communities identified. Support groups were most common among those dedicated to EA/TEF (43.3%, p < 0.001). Most accounts were created by parents, but accounts dedicated to HD had the greatest proportion founded by patients (22.4%, p = 0.04). Conclusions Social media use is common among patients and families affected by congenital surgical conditions. Certain diseases have larger communities and support networks. Knowledge about their existence may allow surgeons to direct patients towards supportive communities and resources. Level of evidence IV.

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Social media utilization, preferences, and patterns of behavior in patients with gynecologic pelvic pain

Cited by 6 publications

References 24 publications

How Do Women Vote: What Women Post About Home Birth Versus Hospital Birth on Popular Social Media Platforms

How Do Women Vote: What Women Post About Home Birth Versus Hospital Birth on Popular Social Media Platforms

“You’re Not Alone”: How Adolescents Share Dysmenorrhea Experiences Through Vlogs

Social media communities for patients and families affected by congenital pediatric surgical conditions

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