Social media recruitment for mental health research: A systematic review

Sanchez, Catherine; Grzenda, Adrienne; Varias, Andrea; Widge, Alik S.; Carpenter, Linda L.; McDonald, William M.; Nemeroff, Charles B.; Kalin, Ned H.; Martin, Glenn; Tohen, Mauricio; Filippou-Frye, Maria; Ramsey, Drew; Linos, Eleni; Mangurian, Christina; Rodriguez, Carolyn I.

doi:10.1016/j.comppsych.2020.152197

Cited by 61 publications

(65 citation statements)

References 183 publications

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“…Second, social media can help researchers recruit participants for health-related research. Studies found that social media performs as well as or even better than traditional recruiting methods in terms of cost and number of participants enrolled [73]. Social media is also useful in recruiting hard-to-reach populations such as immigrants [74].…”

Section: Facilitate Health-related Researchmentioning

confidence: 99%

“…Indeed, research effort has been made such as developing models to filter patients and caregivers and match them with trusted peer patients and caregivers in a privacy-preserving way [85] and developing social media privacy guide for health professionals [145]. However, gaps still exist in research and practice such as lacking an official guideline about privacy issues related to using social media in health research recruitment [73,146], lacking an approach to guarantee online informed consent [140], and researchers and potential participants lacking the awareness of the privacy risks of social media research recruitment [146]. Future studies should explore research methods and form practice guidelines that can address privacy issues associated with using social media for health research, intervention, and patient-doctor interaction.…”

Section: Research Gaps In Social Media Uses For Health Purposesmentioning

confidence: 99%

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Social Media Use for Health Purposes: Systematic Review

Chen¹,

Wang²

2021

J Med Internet Res

399

220

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Background Social media has been widely used for health-related purposes, especially during the COVID-19 pandemic. Previous reviews have summarized social media uses for a specific health purpose such as health interventions, health campaigns, medical education, and disease outbreak surveillance. The most recent comprehensive review of social media uses for health purposes, however, was conducted in 2013. A systematic review that covers various health purposes is needed to reveal the new usages and research gaps that emerge in recent years. Objective This study aimed to provide a systematic review of social media uses for health purposes that have been identified in previous studies. Methods The researchers searched for peer-reviewed journal articles published between 2006 and 2020 in 12 databases covering medicine, public health, and social science. After coding the articles in terms of publication year, journal area, country, method, social media platform, and social media use for health purposes, the researchers provided a review of social media use for health purposes identified in these articles. Results This study summarized 10 social media uses for various health purposes by health institutions, health researchers and practitioners, and the public. Conclusions Social media can be used for various health purposes. Several new usages have emerged since 2013 including advancing health research and practice, social mobilization, and facilitating offline health-related services and events. Research gaps exist regarding advancing strategic use of social media based on audience segmentation, evaluating the impact of social media in health interventions, understanding the impact of health identity development, and addressing privacy concerns.

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Section: Facilitate Health-related Researchmentioning

confidence: 99%

Section: Research Gaps In Social Media Uses For Health Purposesmentioning

confidence: 99%

Social Media Use for Health Purposes: Systematic Review

Chen¹,

Wang²

2021

J Med Internet Res

399

220

View full text Add to dashboard Cite

show abstract

“… 21 22 Public health, as the science of improving, protecting the health and the well-being of people and communities from a population-level perspective, can directly and easily benefit from accessing large datasets of health-related information on large samples. 18 Researchers can recruit study participants on SM 23 24 to collect data 25 and to disseminate research. 26 Moreover, tracking health-related, treatment-related and feelings-related posts or discussions on SM can develop new methods to improve healthcare.…”

Section: Introductionmentioning

confidence: 99%

Scoping review protocol on the use of social media for health research purposes

et al. 2021

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IntroductionMore than one-third of the world population uses at least one form of social media. Since their advent in 2005, health-oriented research based on social media data has largely increased as discussions about health issues are broadly shared online and generate a large amount of health-related data. The objective of this scoping review is to provide an evidence map of the various uses of social media for health research purposes, their fields of applications and their analysis methods.Methods and analysisThis scoping review will follow the Arksey and O’Malley methodological framework (2005) as well as the Joanna Briggs Institute Reviewer’s manual. Relevant publications will be first searched on the PudMed/MEDLINE database and then on Web of Science. We will focus on literature published between January 2005 and April 2020. All articles related to the use of social media or networks for health-oriented research purposes will be included. A first search will be conducted with some keywords in order to identify relevant articles. After identifying the research strategy, a two-part study selection process will be systematically applied by two reviewers. The first part consists of screening titles and abstracts found, thanks to the search strategy, to define the eligibility of each article. In the second part, the full texts will be screened and only relevant articles will be kept. Data will finally be extracted, collated and charted to summarise all the relevant methods, outcomes and key findings in the articles.Ethics and disseminationThis scoping review will provide an extensive overview of the use of social media for health research purposes. Opportunities as well as future ethical, methodological and technical challenges will also be discussed based on our findings to define a new research agenda. Results will be disseminated through a peer-reviewed publication.

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“…This study provided preliminary evidence for and information to refine our social media recruitment approach, adding to the limited literature on social media recruitment, especially for this study's target population [64][65][66]. For the Discovery Group we effectively recruited from both Facebook and Instagram.…”

Section: Discussionmentioning

confidence: 95%

Exploring Social Media Recruitment Strategies and Preliminary Acceptability of an mHealth Tool for Teens with Eating Disorders

Kasson

Vázquez

Doroshenko

et al. 2021

IJERPH

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(1) Background: The current study leveraged social media to connect with teens with EDs to identify population specific characteristics and to gather feedback on an mHealth intervention. (2) Methods: We recruited teens with EDs from social media in two phases: (1) Discovery Group, (2) Testing Group. The Discovery Group (n = 14) participants were recruited from Facebook/Instagram and were asked to review the app for up to one week and provide qualitative feedback. After incorporating feedback from the Discovery Group, we refined our social media outreach methods to connect with 30 teens with EDs to pilot this mobile app. Recruitment from a variety of platforms on social media was successful, with the majority of enrolled participants in the Testing Group coming from Snapchat (60%) and a large percentage of participants belonging to gender and sexual minority groups (63%). (3) Results: Participants from both groups experienced extremely high rates of depression (100% Discovery, 90% Testing) and/or anxiety symptoms (100% Discovery, 93% Testing) in addition to ED symptoms, and noted this as a possible barrier to app engagement. (4) Conclusion: Use of social media for recruitment of teens with EDs is feasible and may connect with groups who may be more difficult to reach using traditional recruitment methods. Among the Discovery Group there was high acceptability of and interest in an app to support ED recovery, and characteristics of both groups demonstrated need for support in other mental health domains. Future studies should evaluate the preliminary efficacy of such tools among teens to determine the effects of such interventions on ED symptoms and other mental health outcomes.

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Social media recruitment for mental health research: A systematic review

Cited by 61 publications

References 183 publications

Social Media Use for Health Purposes: Systematic Review

Social Media Use for Health Purposes: Systematic Review

Scoping review protocol on the use of social media for health research purposes

Exploring Social Media Recruitment Strategies and Preliminary Acceptability of an mHealth Tool for Teens with Eating Disorders

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