Social health and dementia: the power of human capabilities

Vernooij‐Dassen, Myrra; Jeon, Yun‐Hee

doi:10.1017/s1041610216000260

Cited by 97 publications

(98 citation statements)

References 23 publications

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“…However, there is an underinvestment in studying the role of social influences, even within psychosocial interventions. There is a need for an overarching lens through which studies of social influences on dementia can be brought into focus (Vernooij-Dassen & Jeon, 2016). The concept of social health provides an umbrella to study how social resources influence the dynamic balance between capacities and limitations.…”

Section: Social Healthmentioning

confidence: 99%

Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM manifesto

Vernooij‐Dassen¹,

Moniz-Cook

Verhey³

et al. 2019

Aging & Mental Health

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Objective: To provide a new perspective on integrated biomedical and psychosocial dementia research. Background: Dementia is being recognized as a multifactorial syndrome, but there is little interaction between biomedical and psychosocial approaches. A way to improve scientific knowledge is to seek better understanding of the mechanisms underlying the interaction between biomedical and psychosocial paradigms. One rationale for integrating biomedical and psychosocial research is the discordance between neuropathology and cognitive functioning. The concept of social health might bridge the two paradigms. It relates to how social resources influence the dynamic balance between capacities and limitations. Hypotheses: Social health can act as the driver for accessing cognitive reserve, in people with dementia through active facilitation and utilization of social and environmental resources. Thereby we link lifestyle social and opportunities to the brain reserve hypothesis. Manifesto: We provide a Manifesto on how to significantly move forward the dementia research agenda.

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Section: Social Healthmentioning

confidence: 99%

Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM manifesto

Vernooij‐Dassen¹,

Moniz-Cook

Verhey³

et al. 2019

Aging & Mental Health

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“…Therefore, it is important that there is a shift in focus from symptoms and disability towards the capacity and potential of the person with dementia. This has become a major topic of interest within dementia research (Vernooij-Dassen & Jeon, 2016). Not everyone is able to adapt to the consequences of the dementia, likely adversely affecting QOL.…”

Section: Difficulties In These Areasmentioning

confidence: 99%

Determinants of quality of life in young onset dementia – results from a European multicenter assessment

Millenaar

Hvidsten

Vugt

et al. 2016

Aging & Mental Health

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Background: Promoting adaptation, improving well-being and maintaining an optimal quality of life (QOL) is an important aspect in dementia care. The purpose of this study was to identify determinants of QOL in young onset dementia, and to assess differences in QoL domains between people with Alzheimer's disease (AD) and frontotemporal dementia (FTD). Methods: In total 135 persons with AD and 58 persons with FTD were included from two prospective cohort studies. QOL was assessed with the proxy reported quality of life in Alzheimer's disease questionnaire (QoL-AD). Possible determinants were explored using multiple linear regression and included sociodemographic variables, diagnosis, dementia severity, disease awareness, neuropsychiatric symptoms, met and unmet needs and hours of personal and instrumental care. Differences between QOL domains in people with AD and FTD were calculated using Mann-Whitney U tests. Results: Lower QOL was associated with more depressive symptoms, lower disease awareness, and a higher amount of needs, both met and unmet. People with AD scored lower on the memory and higher on the friends' subscale. No differences were found for the other items. Conclusion: This study demonstrates a unique set of determinants of QOL in AD and FTD. Interventions directed towards these specific factors may improve QOL.

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“…Providing education to carers about the nature of the disease are effective ways to decrease burden, subjective well‐being, and mental health of care partners (Whitlatch & Orsulic‐Jeras, ). Furthermore, multifaceted interventions that focus on the remaining capabilities rather than deficits have the power to reduce dependence and maximise participation in activities of daily living and general engagement of PWD (Vernooij‐Dassen & Jeon, ).…”

Section: Discussionmentioning

confidence: 99%

Development of a new tool for the early identification of communication‐support needs in people living with dementia: An Australian face‐validation study

Krein

Jeon

Amberber

2019

Health Soc Care Community

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Language and communication difficulties are common in dementia but limited tools are available for a timely assessment of those individuals who experience these difficulties. The Communication‐Support Needs Assessment Tool in Dementia (CoSNAT‐D) was developed to assist in (a) the early identification of communication difficulties among people with dementia in the community context; and (b) determining the level of their communication support needs to guide appropriate service access. The CoSNAT‐D was developed based on a literature review. The face validity was tested with end‐users (people with dementia and support persons of people with dementia) regarding relevance, wording, syntax, appropriateness and comprehensiveness of the items of the tool. Data were collected using semi‐structured phone interviews. Seven people with dementia and 15 carers participated in the study. Feedback regarding items' appropriateness was largely positive and minor changes were made to improve comprehensiveness. A new item was added to the original item pool. The interviews highlighted the importance of including people with dementia in the assessment processes and person‐centered approaches in this context. The CoSNAT‐D presents a first step for the early identification of individual support needs of people living with dementia and communication difficulties who live in the community. Items of the CoSNAT‐D have been determined face‐valid by end‐users. The face‐validated version of the tool is currently undergoing further testing to determine additional relevant psychometric properties.

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Social health and dementia: the power of human capabilities

Cited by 97 publications

References 23 publications

Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM manifesto

Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM manifesto

Determinants of quality of life in young onset dementia – results from a European multicenter assessment

Development of a new tool for the early identification of communication‐support needs in people living with dementia: An Australian face‐validation study

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