Sexual life of women with the Küstner-Rokitansky syndrome

Raboch, Jiří; Horejsí, J

doi:10.1007/bf01544989

Cited by 17 publications

(7 citation statements)

References 3 publications

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“…Three studies indicated sexual dysfunction in some of the patients and their partners when assessed shortly after diagnosis or medical treatment, including anorgasmia, dyspareunia, and erectile problems in partners (Freundt et al, 1993;Mobus et al, 1996;Poland & Evans, 1985). However, studies have also determined that long-term sexual functioning in post-treatment patients is generally similar to that of young women without the disorder (Communal, Chevret-Measson, Golfier, & Raudrant, 2003;Freundt et al, 1993;Hecker & McGuire, 1977;Klingele et al, 2003;Langer et al, 1990;Poland & Evans, 1985;Raboch & Hořejší, 1982). Qualitative and case study research has generally revealed a mixture of both positive and negative attitudes towards sexuality and partnership issues among patients with vaginal agenesis (Coney, 1992;David, Toullalan, Besse, Potiron, & Delga, 1975;Holt & Slade, 2003;Kaplan, 1968;Langer et al, 1990;Poland & Evans, 1985).…”

Section: Introductionmentioning

confidence: 94%

Assessment of Sexual Functioning, Mental Health, and Life Goals in Women with Vaginal Agenesis

Morgan

Quint

2006

Arch Sex Behav

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Vaginal agenesis is a congenital disorder defined by the incomplete formation of the vagina and other reproductive organs, often including the cervix, uterus, and fallopian tubes. For the patient, this frequently means infertility and an underdeveloped vagina with the subsequent difficulty to have vaginal intercourse. The patient with vaginal agenesis and her family then encounter a variety of psychological concerns that must be addressed during diagnosis, including weighing treatment options, managing interventions, and coping with long-term issues following diagnosis and treatment, such as partnership concerns and infertility. In this study, seven patients between the ages of 18 and 34 completed questionnaires assessing demographic information, sexual functioning, mental health, self-esteem, and life goals. Sexual functioning results were highly variable. Participants reported significant emotional reactions at diagnosis as well as anxiety about the disorder, specifically its role in relationships. However, overall, the group showed average levels of mental health and self-esteem. Participants also showed positive coping techniques through conceptualization of life goals.

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Section: Introductionmentioning

confidence: 94%

Assessment of Sexual Functioning, Mental Health, and Life Goals in Women with Vaginal Agenesis

Morgan

Quint

2006

Arch Sex Behav

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“…Dem entspricht auch das Ergebnis von Giannesi und Kollegen (2005), die bei einem Vergleich der FSFI-Werte von Frauen mit MRKH und einer Kontrollgruppe keinen Unterschied fanden. Ebenso wurden zwischen Frauen mit MRKH und einer Kontrollgruppe keine Unterschiede bezüglich sexueller Entwicklung, Aktivität und Erregbarkeit (Raboch et al 1982), bezüglich des Sexualverhalten (Möbus et al 1996) sowie hinsichtlich sexueller Vorstellungen (Lewis et al 1983) berichtet. Auch Brun et al (2002) fanden in ihrer Fragebogenerhebung zur Sexualität keinen Unterschied zwischen Frauen mit MRKH und einer Kontrollgruppe.…”

Section: Sexualitätunclassified

Das Mayer-Rokitansky-Küster-Hauser-Syndrom

Huber¹,

Hoffmann²,

Richter‐Appelt³

2009

Z Sex-Forsch

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Übersicht: Die Diagnose des Mayer-Rokitansky-Küster-Hauser-Syndroms (MRKH) wird bei folgender Symptomatik gestellt: Nichtausbildung (Aplasie) von Vagina und Gebärmutter bei Frauen mit weiblichem XX-Chromosomensatz, funktionsfähigen Eierstöcken und ansonsten äußerlich unauffälli-gen weiblichen Geschlechtsmerkmalen. Das Syndrom hat für betroffene Frauen Unfruchtbarkeit zur Folge, außerdem ist vaginaler Geschlechtsverkehr nicht vollständig möglich. Mithilfe meist operativer Behandlungsmethoden ist die Herstellung einer Vagina möglich, welche dann als "Neovagina" bezeichnet wird. Ein Großteil der Forschungsarbeiten beschäftigt sich mit solchen Operationsmethoden. Der vorliegende Text bietet eine Übersicht über die vergleichsweise seltenen Untersuchungen zu psychologischen Aspekten bei MRKH. Die vorliegenden Studien zeigen heterogene Ergebnisse zu Themen wie Sexualität und psychische Belastung -einige Arbeiten berichten über Beeinträchtigungen bei Frauen mit MRKH, andere finden keine Auffälligkeiten. Zu sozialen Aspekten, Selbsterleben und Umgang mit Unfruchtbarkeit liegen nur wenige, teils anekdotische Angaben vor. Zukünftige Forschung sollte das Thema breiter betrachten und Zusammenhänge unterschiedlicher Faktoren mit der Lebensqualität betroffener Frauen erfassen.Schlüsselwörter: DSD; Lebensqualität; Mayer-Rokitansky-Küster-HauserSyndrom; Neovagina; Unfruchtbarkeit; Vaginalaplasie Beim Mayer-Rokitansky-Küster-Hauser-Syndrom (MRKH) führen Verände-rungen in der embryonalen Entwicklung dazu, dass bei betroffenen Frauen Uterus und Vagina nicht ausgebildet werden. Die Häufigkeit des Syndroms wird mit 1 von 5000 weiblichen Geburten angegeben (Aittomaki et al. 2001; vgl. dazu auch Blackless et al. 2000). Es handelt sich somit um eine nicht besonders häufige, jedoch auch nicht außergewöhnlich seltene Entwicklung.

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“…We received 27 of 37 (73%) mailed questionnaires; the mean patient age at the time of analysis (March 2000) was 22 (18)(19)(20)(21)(22)(23)(24)(25)(26)(27)(28)(29)(30)(31)(32)(33)(34) years and the mean time from CVP was 8.5 (0.1-18) years. The results are shown in Table 1.…”

Section: Resultsmentioning

confidence: 99%

Twenty years of experience with Krzeski’s cystovaginoplasty for vaginal agenesis in Mayer‐Rokitansky‐Küster–Hauser syndrome: anatomical, histological, cytological and functional results

2008

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RESULTSThe anatomical result was good in 37 patients during a mean (range) follow-up of 9 (0.25-19) years; the result was good in 30 patients, but seven developed vaginal stenosis that was successfully repaired. There were two cases of post-coital vesicovaginal fistula (VVF) at 18 months after CVP. Vaginal biopsies showed epithelialization of the posterior vaginal wall and gradual metaplastic changes from urothelium to stratified nonsquamous epithelium. Cytological smears showed a normal biphasic pattern and neovaginal susceptibility to hormonal milieu. In all, 27 patients (73%) responded to the questionnaire. All had sexual partners and started sexual intercourse at a mean of 14 months after CVP; 89% experience orgasms and in 48% the vagina was the source; 40% sometimes used lubricants and seven (26%) used vaginal dilators. Lower urinary tract symptoms (LUTS) after CVP were reported by 19 (66%) of the women and in six the LUTS were persistent. One patient was not satisfied with the functional and anatomical result of CVP, 89% declared that it improved sexual life, 93% would undergo CVP again and in 92% the quality of their sexual life was improved. All patients, when asked, stated that they would recommend CVP to another patient with MRKHS. CONCLUSIONSVaginal reconstruction by CVP is characterized by good anatomical and functional results, sustained by long-term observation. The resultant epithelium is very similar to that of the native vagina in histology and function. All vaginas are functional and the level of patient satisfaction was high. The level of complications was acceptable, but in some patients LUTS can persist. KEYWORDS PATIENTS AND METHODSBetween 1981 and 2000, 38 patients (mean age 22.5 years, range 18-40) with MRKHS underwent CVP. A physical examination was used to evaluate the anatomical results, 27 patients had vaginography, and biopsies of the neovaginal wall and cytohormonal smears were taken in two. Functional sexual and urinary results, and opinions on CVP, were evaluated by an inventory mailed to 37 patients in 2000.

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Sexual life of women with the Küstner-Rokitansky syndrome

Cited by 17 publications

References 3 publications

Assessment of Sexual Functioning, Mental Health, and Life Goals in Women with Vaginal Agenesis

Assessment of Sexual Functioning, Mental Health, and Life Goals in Women with Vaginal Agenesis

Das Mayer-Rokitansky-Küster-Hauser-Syndrom

Twenty years of experience with Krzeski’s cystovaginoplasty for vaginal agenesis in Mayer‐Rokitansky‐Küster–Hauser syndrome: anatomical, histological, cytological and functional results

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