“Sewing Is Part of Our Tradition”: A Case Study of Sewing as a Strategy for Arts-Based Inquiry in Health Research With Inuit Women

Brubacher, Laura Jane; Dewey, Cate; Tatty, Naomi; Akearok, Gwen K. Healey; Cunsolo, Ashlee; Humphries, Sally; Harper, Sherilee L.

doi:10.1177/10497323211042869

Cited by 8 publications

(8 citation statements)

References 51 publications

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“…Some studies reported that consultations ensured that the research was aligned with community priorities and conducted in a culturally appropriate way 36 70 72 100–103. Two studies reported that the consultations with Inuit organisations and partners ensured that the research is rooted in an Indigenous perspective 104 105…”

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

“…In three studies, authors incorporated Inuit cultural practices during the data collection 45 48 105. Two recent studies used traditional craft activities like sewing and seal fur earing in focus groups 45 105. In a study on violence prevention among youth, the focus group began with the ceremonial lighting of the qulliq (seal-oil lamp), and an Inuk elder co-facilitated the session 48.…”

Section: Resultsmentioning

confidence: 99%

“…The recent studies incorporated cultural practices (sewing) within the data collection process. 45 105 A qualitative study described the development of a consensus methodology (to contrast with the Delphi method) rooted in Inuit worldviews. 177 This review showed how much work is needed to decolonise quantitative research, especially in developing instruments.…”

Section: Discussionmentioning

confidence: 99%

“…The positive note is that things are changing. The recent studies incorporated cultural practices (sewing) within the data collection process 45 105. A qualitative study described the development of a consensus methodology (to contrast with the Delphi method) rooted in Inuit worldviews 177…”

Section: Discussionmentioning

confidence: 99%

See 4 more Smart Citations

Shifting paradigm from biomedical to decolonised methods in Inuit public health research in Canada: a scoping review

et al. 2022

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BackgroundThe National Inuit Strategy on Research focuses on advancing Inuit governance in research, increasing ownership over data and building capacity. Responding to this call for Inuit self-determination in research, academic researchers should consider cultural safety in research and ways to promote Inuit-led methods.MethodsThis scoping review collated academic literature on public health research in Inuit communities in Canada between 2010 and 2022. A critical assessment of methods used in public health research in Inuit communities examined cultural safety and the use of Inuit-attuned methods. Descriptive and analytical data were summarised in tables and figures. Knowledge user engagement in the research process was analysed with thematic analysis.Results356 articles met the inclusion criteria. Much of the published research was in nutrition and mental health, and few initiatives reported translation into promotion programmes. Almost all published research was disease or deficit focused and based on a biomedical paradigm, especially in toxicology, maternal health and chronic diseases. Recent years saw an increased number of participatory studies using a decolonial lens and focusing on resilience. While some qualitative research referred to Inuit methodologies and engaged communities in the research process, most quantitative research was not culturally safe. Overall, community engagement remained in early stages of co-designing research protocols and interventions. Discussion on governance and data ownership was limited. Recent years saw emerging discussions on these issues. Knowledge user capacity-building was limited to brief training on conventional data collection methods.ConclusionsThe last decade of published public health research has not responded to the National Inuit Strategy on Research. Participatory research is gaining ground, but has not reached its full potential. A shift from biomedical to decolonised methods is slowly taking place, and public health researchers who have not yet embraced this paradigm shift should do so.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 3 more Smart Citations

Shifting paradigm from biomedical to decolonised methods in Inuit public health research in Canada: a scoping review

et al. 2022

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What makes a good life: using theatrical performance to enhance communication about polygenic risk scores research in patient and public involvement

Mason

Obi²,

Ayodele³

et al. 2023

J Community Genet

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The aim of this patient and public involvement and engagement (PPIE) work was to explore improvised theatre as a tool for facilitating bi-directional dialogue between researchers and patients/members of the public on the topic of polygenic risk scores (PRS) use within primary or secondary care. PRS are a tool to quantify genetic risk for a heritable disease or trait and may be used to predict future health outcomes. In the United Kingdom (UK), they are often cited as a next-in-line public health tool to be implemented, and their use in consumer genetic testing as well as patient-facing settings is increasing. Despite their potential clinical utility, broader themes about how they might influence an individual’s perception of disease risk and decision-making are an active area of research; however, this has mostly been in the setting of return of results to patients. We worked with a youth theatre group and patients involved in a PPIE group to develop two short plays about public perceptions of genetic risk information that could be captured by PRS. These plays were shared in a workshop with patients/members of the public to facilitate discussions about PRS and their perceived benefits, concerns and emotional reactions. Discussions with both performers and patients/public raised three key questions: (1) can the data be trusted?; (2) does knowing genetic risk actually help the patient?; and (3) what makes a life worthwhile? Creating and watching fictional narratives helped all participants explore the potential use of PRS in a clinical setting, informing future research considerations and improving communication between the researchers and lay members of the PPIE group.

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Inuit birthing in the Qikiqtaaluk Region of Nunavut: A place-based inquiry of maternity care systems

Brubacher,

Tatty,

Harper

et al. 2024

Health & Place

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“Sewing Is Part of Our Tradition”: A Case Study of Sewing as a Strategy for Arts-Based Inquiry in Health Research With Inuit Women

Cited by 8 publications

References 51 publications

Shifting paradigm from biomedical to decolonised methods in Inuit public health research in Canada: a scoping review

Shifting paradigm from biomedical to decolonised methods in Inuit public health research in Canada: a scoping review

What makes a good life: using theatrical performance to enhance communication about polygenic risk scores research in patient and public involvement

Inuit birthing in the Qikiqtaaluk Region of Nunavut: A place-based inquiry of maternity care systems

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