School Experiences of Siblings of Children with Chronic Illness: A Systematic Literature Review

Gan, Lucy L.; Lum, Alistair; Wakefield, Claire E.; Nandakumar, Beeshman; Fardell, Joanna E.

doi:10.1016/j.pedn.2016.11.007

Cited by 63 publications

(77 citation statements)

References 46 publications

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“…As families attempt to cope with the effects of AD, the siblings of affected patients are often still growing and thus may experience long‐lasting developmental effects from these adjustments. Previous studies have demonstrated that well siblings of patients with chronic physical disorders are at increased risk of internalizing their problems, experiencing emotional distress, and having impaired academic performance . Increased parental focus on children with chronic disease may decrease attention given to the affected children's well siblings, resulting in jealousy, envy, and feelings of loneliness in the latter .…”

Section: Methodsmentioning

confidence: 99%

“…Previous studies have demonstrated that well siblings of patients with chronic physical disorders are at increased risk of internalizing their problems, experiencing emotional distress, and having impaired academic performance. 50,51 Increased parental focus on children with chronic disease may decrease attention given to the affected children's well siblings, resulting in jealousy, envy, and feelings of loneliness in the latter. 52 These effects have been described anecdotally in AD, 19,53 but not thoroughly explored.…”

Section: Well-sibling Experiencementioning

confidence: 99%

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The impact of pediatric atopic dermatitis on families: A review

Yang

Beck

Sekhon

et al. 2018

Pediatric Dermatology

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Background Atopic dermatitis (AD) is an extremely common childhood disease, with considerable impact on the quality of life of affected children and their families. While pruritus is the hallmark symptom of this disease, AD has been well‐documented to impact patients beyond physical symptoms, resulting in behavior problems, mood disorders, and sleep disturbance. Objective This literature review outlines how atopic dermatitis impacts the quality of life of families of children affected by AD. Methods A total of 3436 articles were identified via an online search of the MEDLINE health literature database and were screened for relevance to quality of life impacts on families with children affected by AD. Results Caring for children affected by AD can be an extremely time‐consuming task that can impair personal relationships, decrease psychosocial functioning, and cause sleep loss among family members of affected patients. Additionally, AD may result in work absence or decreased work productivity for caregivers. Special diets, irritant and allergen avoidance strategies, and alternative therapies are commonly used by patients to manage their disease and require large amounts of family involvement. Conclusions Atopic dermatitis can greatly decrease quality of life of families of affected children in various domains, including sleep, finances, and relationships. Early intervention and psychotherapy may be needed in some patients to address these quality of life impairments.

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Section: Methodsmentioning

confidence: 99%

Section: Well-sibling Experiencementioning

confidence: 99%

The impact of pediatric atopic dermatitis on families: A review

Yang

Beck

Sekhon

et al. 2018

Pediatric Dermatology

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“…It is well documented that these environments have the potential to impact on the well-siblings' psychological functioning, 4,5 social functioning 3 and school functioning. 6 When faced with situations that they find difficult to comprehend, well-siblings commonly turn to their parents for information and emotional support. Not only do well-siblings strive to make sense of their brother's or sister's medical issues, but they also strive to maintain their own functioning across a range of other areas of their life.…”

mentioning

confidence: 99%

Communication between parents and well‐siblings in the context of living with a child with a life‐threatening or life‐limiting condition

Jaaniste

Tan

Aouad

et al. 2020

J Paediatrics Child Health

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Effective parent-child communication may serve to buffer the potential negative impacts of stressful situations on a child. Children who have a brother or sister with a life-threatening or life-limiting medical condition may turn to their parents for help with comprehending the situation, to help maintain their own ability to function across various life areas or to receive emotional support. There is a need for more investigation into the nature and importance of parent-child communication in the context of living with a seriously ill brother or sister. The current paper presents a framework of parent-sibling communication in the context of living with a seriously unwell child, distinguishing the focus of communication (illness-related vs. non-illness-related) and the purpose of communication (information-provision vs. emotional support). Such a framework offers a holistic approach to exploring some of the challenges of communication between parents and well-siblings. The state of current knowledge regarding the focus and purpose of communication between parents and well-siblings is reviewed, and implications for research and possible clinical applications discussed.

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“…Lastly, the outcomes and influence/relationships investigated in the included studies suggest a strong focus thus far, particularly among quantitative studies, on genetic factors related to pediatric pain conditions. Pediatric health issues more broadly can influence the functioning and experiences of healthy siblings across a number of domains (e.g., psychological and social functioning, daily life, academics), [16][17][18]63,68 pointing to the relevance of further exploring these variables in siblings of chronic pain patients. An examination of the results of the quantitative 19,20 and mixed-methods 61 studies included in the current review that examined the impact of chronic pain on healthy siblings' psychosocial functioning revealed some convergent findings and point to a generally negative influence.…”

Section: Identified Gaps and Directions For Future Researchmentioning

confidence: 99%

“…Further, research on pediatric chronic health issues suggests that a sibling's experience of illness can adversely influence children's functioning in several areas, such as psychological symptoms, 16 quality of life, 17 and academic participation and performance. 18 Although limited research exists exploring siblings in pediatric pain, there have been a growing number of both quantitative and qualitative studies focused on the topic. For example, quantitative studies have revealed differences in psychosocial functioning between siblings of healthy children and those with chronic pain conditions, with siblings of pediatric pain patients experiencing poorer functioning, such as anxiety, depression, and social difficulties.…”

mentioning

confidence: 99%

A scoping review on the study of siblings in pediatric pain

Schinkel

Chambers

Hayden

et al. 2017

Canadian Journal of Pain

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Background: Sibling relationships are longstanding across an individual's life and are influential in children's development. The study of siblings in pediatric pain is, although in early stages, a growing field. Aims: This scoping review sought to summarize and map the type of research available examining siblings and pediatric pain to identify gaps and directions for future research. Methods: Studies were identified based on a search of PubMed, CINAHL, PsycInfo, Embase, and Web of Science (up to November 2016). We extracted data about study methods, the sample, outcome assessment, and the influence/relationships investigated. Results: Thirty-five studies were included. Most studies used quantitative methods (n = 28), and participants typically included children (i.e., aged 6-12; n = 24) and adolescents (i.e., aged 13-18; n = 18). The majority of studies examined siblings in the context of chronic and diseaserelated pain (n = 30). Though quantitative studies primarily focused on the genetic influence of pain conditions (n = 18), qualitative and mixed-methods studies typically focused on exploring the impact of siblings with and without pain on one another (n = 2) and the impact of pain on the broader dyadic relationship/functioning (n = 4). Conclusions: Sibling research in pediatric pain has been primarily focused on the biological/physical components of pain, using quantitative approaches. Conducting more studies using qualitative or mixed-methods designs, incorporating multiple assessment measures (e.g., observational, selfreport) and multiple perspectives (e.g., siblings, health professionals), may provide an opportunity to gain richer and more comprehensive information regarding the experience of siblings. RÉSUMÉ Contexte: Les relations entre membres d'une même fratrie durent toute la vie et influencent le développement des enfants. Bien qu'elle soit encore à ses débuts, l'étude des fratries dans le domaine de la douleur pédiatrique est un domaine en pleine croissance. But: Cette revue exploratoire avait pour but de cartographier et de résumer le type d'études sur les fratries et la douleur pédiatrique actuellement disponibles, afin de répertorier les lacunes existantes et définir les orientations possibles pour les études à venir. Méthodes: Les études ont été répertoriées par le truchement d'une recherche sur PubMed, CINAHL, PsycInfo, Embase et Web of Science (jusqu'en novembre 2016). Nous en avons tiré des données sur les méthodes, l'échantillon, l'évaluation des résultats et l'influence ou les relations à l'étude. Résultats: Trente-cinq études ont été retenues. La majorité de ces études utilisaient des méthodes quantitatives (n = 28) et les participants étaient généralement des enfants (i.e. âgés de 6 à 12 ans; n = 24) et des adolescents (i.e. âgés de 14 à 18 ans; n = 18). La plupart de ces études portaient sur les frères et soeurs dans le contexte de la douleur chronique liée à une maladie (n = 30). Tandis que les études quantitatives portaient généralement sur la dimension génétique de la douleur, (n = ...

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School Experiences of Siblings of Children with Chronic Illness: A Systematic Literature Review

Cited by 63 publications

References 46 publications

The impact of pediatric atopic dermatitis on families: A review

The impact of pediatric atopic dermatitis on families: A review

Communication between parents and well‐siblings in the context of living with a child with a life‐threatening or life‐limiting condition

A scoping review on the study of siblings in pediatric pain

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