Sa1801 – Emerging IBD Demographics in South Asia and Middle East : A Pilot Study from the IBD Emerging Nations' Consortium (IBDENC)

Banerjee, Rupa; Pal, Partha; Hilmi, Ida; Desai, Devendra; Dutta, Usha; Mohiuddin, Syed Adnan; Niriella, Madunil Anuk; Silva, Hithanadura J. de; Silva, Arjuna P. De; Rahman, Mukhlesur; Pisespongsa, Pises; Limsrivilai, Julajak; Philip, Mathew; Aye, Than Than; Ni, Nwe; Kieu, Tuan V; Ngoc, Pham Thi V; Navarathne, Metthananda; Fernandopulle, Nilesh; Alawadhi, Sameer; Joshi, Neeraj; Zeid, Ahmed; Ahmed, Ezzat Ali; Sollano, José D.; Abdullah, Murdani; Saberi, Bismillah; Ramesh, G. N.; Ahuja, Vineet; Ghoshal, Uday C.; Mohannadi, Muneera A.; Chakraborty, Karambir; Bhatt, Chetan; Bhatia, Shobna; Kumar, Ajay; Omar, Mahmoud; Kaabi, Saad Al; Goswami, Bhabadev; Shastri, Yogesh M.; Sinha, Saroj Kant; Ahmed, Faruque; Travis, Simon; Duvvur, Nageshwar R.

doi:10.1016/s0016-5085(19)37868-0

Cited by 5 publications

(5 citation statements)

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“…Formerly considered a disease of developed countries 1, latest evidence indicates a worldwide increase in incidence of inflammatory bowel disease (IBD) and particularly within South Asian populations, both those living in South Asia 3 and, even more so, among those living in the UK. 2,4,5 Indeed, a recent study reports a higher incidence among some South Asian populations compared to the white British population.…”

Section: Introductionmentioning

confidence: 99%

The Need for Culturally Competent Care Within Gastroenterology Services: Evidence from Research with Adults of South Asian Origin Living with Inflammatory Bowel Disease

Mukherjee

Beresford

Atkin

et al. 2020

Journal of Crohn's and Colitis

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Background and Aims It is widely acknowledged that the incidence of inflammatory bowel disease (IBD) is rising within South Asian populations, yet research into the experiences of this group of patients is rare. In this study the lived experiences of UK South Asian adults with IBD, including support from gastroenterology services, was investigated. Methods A sample of 33 patients representing the diversity of the UK South Asian population were recruited through 5 gastroenterology clinics in England. In-depth semi-structured interviews were conducted, audio-recorded, transcribed and analysed using the Framework approach. Results Although many experiences align with those of the general IBD population, participants believed that South Asian cultures and/or religions can led to additional challenges. These are linked to: family and friend’s understanding of IBD; self and family attributions about IBD; stigma surrounding ill health; the taboo of bowel symptoms; managing ‘spicy food’; beliefs about food and ill health; roles within the family; living with extended family; the use of complementary and alternative therapies; and visits to family overseas. Religious faith helped many to cope with having IBD, but symptoms could hamper ability to practice faith. Gastroenterology services were viewed positively, but unmet needs were identified, some of which were culturally specific. Conclusion Gastroenterology services have an important role to play in helping patients to overcome the challenges they encounter in their everyday life, both by providing individual patients with culturally appropriate care and advice, and via interventions to increase awareness and understanding of IBD within wider South Asian communities.

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Section: Introductionmentioning

confidence: 99%

The Need for Culturally Competent Care Within Gastroenterology Services: Evidence from Research with Adults of South Asian Origin Living with Inflammatory Bowel Disease

Mukherjee

Beresford

Atkin

et al. 2020

Journal of Crohn's and Colitis

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“…The concept of GDUC was first proposed by Hori et al, but the diagnosis standard is not rigorous enough due to the scanty reports. More extensive colitis and a lower dose of prednisolone administration might be the main risk factors for GDUC [ 4 ]. Although the etiology of GDUC is unclear, several studies have revealed that it may be associated with the imbalance of immune response of genetically susceptible hosts to bacterial antigens, resulting in an excessive autoimmune response to the gastroduodenal epithelium [ 10 ].…”

Section: Discussionmentioning

confidence: 99%

“…In IBD demographics in a Southern Asia study, a total of 10400 patients were found in 15 countries of South Asia, South East Asia, and the Middle East. A total of 248 IBD patients from Myanmar were included in this study [ 4 ]. Although UC is known to have various extracolonic manifestations, the upper GI tract is not generally considered a target organ.…”

Section: Introductionmentioning

confidence: 99%

Gastroduodenal Ulcerative Colitis in Association with Ulcerative Pancolitis

Aye

Htun

Win

et al. 2021

Case Reports in Gastrointestinal Medicine

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Ulcerative colitis (UC) is a chronic inflammatory bowel disease, traditionally regarded as being limited to the colorectum. Although several gastroduodenal lesions have been reported in cases of UC, in general, duodenal lesions in UC are believed to be uncommon and gastric lesions in UC are a rare presentation. In this report, we presented a 66-year-old lady with upper GI presentation with gastroduodenal ulcerative colitis accompanying pancolonic UC.

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“…Organisations like the IBD-ENC can play a crucial role in this by fostering a network for research collaboration and improving outcomes of patients with IBD in this challenging scenario. 53…”

Section: Barriers To Vaccinationmentioning

confidence: 99%

Implications of the COVID-19 Pandemic on the Management of Inflammatory Bowel Disease in the Low Resource Countries of Asia

Pal

Mak

et al. 2022

EMJ Gastroenterol

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The COVID-19 pandemic has overwhelmed the already limited healthcare systems of low resource Asian countries. It has had a profound impact on inflammatory bowel disease (IBD) patient care in this region, where the disease is emerging. Fear of increased risk of COVID-19 due to disease or drugs, lack of access to medications, laboratory testing, endoscopy, surgery, infusion centres, and even remote medical consultation have made the lives of patients with IBD in this region more difficult than before. Similarly, physicians faced challenges due to limited testing facilities and therapeutic armamentarium for IBD management in the face of the COVID-19 pandemic. There was also the fear of potential spread of COVID-19 during colonoscopy or physical consultation, with the shortage of protective equipment, and unfamiliarity with teleconsultation and the remote monitoring of IBD. Most of the healthcare systems in these countries faced similar challenges in disease containment and management due to overwhelmed healthcare facilities in the face of crisis, inadequate vaccination drive in highly populous regions, and the unequal distribution of healthcare facilities centred in urban areas. COVID-19-specific safety norms, proper psychological support, and IBD-focused COVID-19 information can help alleviate patient concerns. Widespread adaptation of telemedicine, being up to date with current evidence, and performing endoscopy in high-priority cases, with precautions, can help physicians treat patients with IBD optimally. Additionally, the restructuring of the public health system, widespread vaccine rollout, and, ultimately, containment of the pandemic, can improve healthcare outcomes of patients with IBD in low resource countries.

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Sa1801 – Emerging IBD Demographics in South Asia and Middle East : A Pilot Study from the IBD Emerging Nations' Consortium (IBDENC)

Cited by 5 publications

References 0 publications

The Need for Culturally Competent Care Within Gastroenterology Services: Evidence from Research with Adults of South Asian Origin Living with Inflammatory Bowel Disease

The Need for Culturally Competent Care Within Gastroenterology Services: Evidence from Research with Adults of South Asian Origin Living with Inflammatory Bowel Disease

Gastroduodenal Ulcerative Colitis in Association with Ulcerative Pancolitis

Implications of the COVID-19 Pandemic on the Management of Inflammatory Bowel Disease in the Low Resource Countries of Asia

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