Rising Incidence of Paediatric Inflammatory Bowel Disease in Canterbury, New Zealand, 1996–2015

Lopez, Robert; Appleton, Laura; Gearry, Richard B.; Day, Andrew S.

doi:10.1097/mpg.0000000000001688

Cited by 28 publications

(57 citation statements)

References 26 publications

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“…Large‐scale population‐based studies on pediatric patients with IBD have mostly been reported in Western populations . Over the last two to three decades the incidence rates of pediatric IBD in general has shown a rising trend . Benchimol et al .…”

Section: Discussionmentioning

confidence: 99%

“…reported that the incidence per 100 000 population in Ontario, Canada, rose from 9.5 to 11.4 between 1994 and 2005 . A recent study from Canterbury, New Zealand, indicated that there was an even higher rise of 4‐fold in the annual incidence rates from 2.88 per 100 000 to 13.06 per 100 000 over a 20‐year period from 1996 to 2015 . Similarly, in northern France, the mean incidence rate of CD increased by 20%; however, that of UC decreased by 17% over a 12‐year period (1988–1999) …”

Section: Discussionmentioning

confidence: 99%

“…A recent systemic review has reported that the global incidence of pediatric‐onset IBD is rising in both developed and developing countries . The incidence of pediatric IBD has been reported to range from 5 to 13 per 100 000 in those aged under 18 years . Compared with adult‐onset IBD, pediatric IBD (namely, including Crohn's disease [IBD] ulcerative colitis [UC] and IBD unclassified) is more aggressive, showing a more rapid progression to complications and surgery .…”

Section: Introductionmentioning

confidence: 99%

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Rapid rise in the incidence and clinical characteristics of pediatric inflammatory bowel disease in a South–East Asian cohort in Singapore, 1994–2015

Ong

Liwanag

et al. 2018

J of Digest Diseases

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Rapid rise in the incidence and clinical characteristics of pediatric inflammatory bowel disease in a South–East Asian cohort in Singapore, 1994–2015

Ong

Liwanag

et al. 2018

J of Digest Diseases

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show abstract

“…This study was limited by the disproportionate distribution of diagnoses among the group of children with IBD, limiting meaningful comparisons between participants with CD and UC and possibly masking any actual difference that may be present. This disparity of numbers, with CD patients being better represented, was universally found among the studies carried out in the paediatric IBD population, which mirrors local [35,36] and worldwide trends [37]. Further studies will be performed to address this and other limitations, in that parent and child comparisons were not made, and generalisability to the wider population of children with IBD was not established.…”

Section: Limitationsmentioning

confidence: 99%

Validation of a Revised Knowledge Assessment Tool for Children with Inflammatory Bowel Disease (IBD-KID2)

Vernon‐Roberts¹,

Otley²,

Frampton³

et al. 2020

Inflamm Intest Dis

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Introduction: For children with inflammatory bowel disease (IBD), acquired knowledge of their condition and treatment is integral to their adherence and self-management. Assessing their knowledge is vital to identify deficits that may affect disease management. IBD-KID2 is a knowledge assessment tool written for children aged 8 years and over with IBD. Objectives: In order to examine validity and reliability, a study was carried out using IBD-KID2 in a paediatric IBD population and a number of comparator groups with established levels of IBD knowledge. Methods: IBD-KID2 was administered to 4 participant groups in Christchurch Hospital, New Zealand: children with IBD (n = 22), children without IBD (n = 20), medical staff (n = 15), and administration staff (n = 15). Between-group differences were tested using ANOVA and pairwise comparisons made with the IBD group. Repeat assessments by the IBD group determined test-retest reliability (n = 21). Results: The mean age (range) of the paediatric groups were: IBD 13.3 years (8-18), without IBD 11.9 years (8-15). Group mean scores (SD) were: IBD 8.5 (±2.3), without IBD 3.7 (±2.2), medical staff 13.5 (±1.3), administration staff 6.3 (±2.5). Group means were all significantly different to the IBD group. Testretest mean at baseline (8.4, CI ±2.4) and repeat (9.0, CI ±2.4) were not significant. Intraclass correlation coefficient was 0.82. Internal reliability was 0.85, and item-total statistics showed no improvement by specific item removal. Conclusions: IBD-KID2 could distinguish between groups with different knowledge levels. Repeat assessment shows comparable scores on retest and good reproducibility. IBD-KID2 is a valid and reliable tool for use in the paediatric IBD population.

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“…The incidence of inflammatory bowel disease (IBD) in children and adolescents is increasing across the globe [1]. High rates of IBD have been shown in New Zealand, with increasing incidence documented [2, 3]. Many reports illustrate that IBD can impact adversely upon the psycho-social well-being of individuals [4].…”

Section: Introductionmentioning

confidence: 99%

Impact of a Camp upon Disease-Specific Knowledge and Quality of Life in Children and Adolescents with Inflammatory Bowel Disease

Lopez¹,

McCombie²,

Gearry³

et al. 2020

Inflamm Intest Dis

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Children with inflammatory bowel disease (IBD) who attend residential camps derive various psycho-social benefits from their attendance. This study evaluated the impact of camp attendance on participants’ disease-specific knowledge and quality of life (QOL). Prior to attending a dedicated camp for children with IBD, all campers were contacted and asked to participate in an evaluation of outcomes. Campers were asked to complete questionnaires regarding background disease status, demographic information, disease-specific knowledge (Inflammatory Bowel Disease Knowledge Inventory Device [IBD-KID]) and QOL (IMPACT-III). Assessments were completed before the camp and then again 1 month and 6 months after the camp. The camp consisted of adventure-based experiences and did not include specific IBD-related educational activities. Thirty-nine of 44 campers provided baseline information. The responders comprised 21 boys, and the median age was 14 years. Most (n = 35) were diagnosed with Crohn’s disease. Twenty-five of the baseline responders were in clinical remission. Mean IBD-KID scores increased from baseline at both 1 month and 6 months (p = 0.03 and p = 0.04, respectively). Although mean QOL scores did not increase after 1 or 6 months, body image sub-scores were increased at 6 months (p = 0.015). Children and adolescents with IBD attending this residential camp demonstrated enhanced disease-specific knowledge following the camp, which was maintained 6 months following the camp. QOL scores were not increased overall at either time point. These results demonstrate a further benefit of residential camps for children and adolescents with IBD.

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Rising Incidence of Paediatric Inflammatory Bowel Disease in Canterbury, New Zealand, 1996–2015

Abstract: The incidence of paediatric IBD in Canterbury has increased dramatically during the last 2 decades. Some of the observed incidence rates are among the highest documented anywhere in the world. The preponderance of CD over UC in the present study is the highest published.

Cited by 28 publications

References 26 publications

Rapid rise in the incidence and clinical characteristics of pediatric inflammatory bowel disease in a South–East Asian cohort in Singapore, 1994–2015

Rapid rise in the incidence and clinical characteristics of pediatric inflammatory bowel disease in a South–East Asian cohort in Singapore, 1994–2015

Validation of a Revised Knowledge Assessment Tool for Children with Inflammatory Bowel Disease (IBD-KID2)

Impact of a Camp upon Disease-Specific Knowledge and Quality of Life in Children and Adolescents with Inflammatory Bowel Disease

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