Reliability and Validity of The Cerebral Palsy Quality of Life Questionnaire in The Turkish Population

Abstract

This study examined the psychometric properties of the Turkish version of the Cerebral Palsy Quality of Life Questionnaire (CP QOL). A total of 149 primary caregivers completed the final version of the CP QOL-Primary Caregivers and the Children Health Questionnaire (CHQ) for children 4-12 years old (M age = 7.6 yr., SD = 2.5); 58 children with CP ages 9 to 12 years completed the CP QOL-Child and Health-Related Quality of Life Questionnaire for Children (Kid-KINDL) questionnaire. The Gross Motor Function Classification System was also used for the classification of the children with CP. Internal consistency (Cronbach's α) ranged between .63 and .93 for primary caregivers and .61 to .92 for the children's self-reports. Intra-class correlation coefficients ranged between .88 and .97 for primary caregivers and .91 to .98 for children. It was concluded that the Turkish version of CP QOL questionnaire is a reliable and valid tool for assessing QOL in children with CP.

Health‐related quality of life of children and adolescents with cerebral palsy in low‐ and middle‐income countries: a systematic review

“…The 16 included studies (Table ) reported on HRQoL of children and/or adolescents with CP and totaled 1579 participants (i.e. children and adolescents with CP; not inclusive of controls).…”

“…Studies were conducted in eight countries: Turkey ( n =7), India ( n =2), Thailand ( n =2), Brazil ( n =1), China ( n =1), Indonesia ( n =1), Iran ( n =1), and Malaysia ( n =1) . Of the studies, there were two cross‐sectional, two case‐control, one prospective descriptive study, and four validation studies . The remaining studies did not specify, however they met criteria for cross‐sectional ( n =5) and case‐control ( n =2) .…”

“…Fourteen studies used inclusion/exclusion criteria in addition to age and CP diagnosis. The most common calls for exclusion was presence of other neurological conditions or intellectual disability ( n =5); presence of another disability, chronic illness or condition not typically associated with CP ( n =5); and previous surgical intervention or botulinum neurotoxin A injections ( n =5) .…”

“…Fourteen studies used inclusion/exclusion criteria in addition to age and CP diagnosis. The most common calls for exclusion was presence of other neurological conditions or intellectual disability ( n =5); presence of another disability, chronic illness or condition not typically associated with CP ( n =5); and previous surgical intervention or botulinum neurotoxin A injections ( n =5) . Other exclusions included seizures, communication, hearing or vision impairments ( n =3); inability to read or write ( n =2); sibling with a disability ( n =2); and parent with cognitive impairment ( n =1) …”

“…Four instruments were used across the included studies to measure HRQoL including Child Health Questionnaire (CHQ) Parent Form 50 ( n =5); Paediatric Quality of Life Inventory (PedsQL) 3.0 and 4.0 ( n =4); Cerebral Palsy Quality of Life Questionnaire for Children (CP QoL‐Child; n =4); and LAQ‐CP ( n =3) . Instrument details are provided in Table .…”