Reframing pediatric cardiac intensive care outcomes: The importance of the family and the role of pediatric medical traumatic stress

Yagiela, Lauren; Harper, Felicity W. K.; Meert, Kathleen L.

doi:10.1016/j.ppedcard.2018.02.007

Cited by 3 publications

(4 citation statements)

References 82 publications

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“…Nine of the 16 papers focused specifically on the experiences of PMTS within different patient groups. These diagnostic groups included oncology (Pai & Kazak, 2006), cardiac conditions (Jordan et al, 2013;Yagiela et al, 2018), pediatric intensive care unit (Yagiela et al, 2019;Yagiela et al, 2018), chronic pancreatitis , spina bifida (Vermaes et al, 2008), cystic fibrosis , food refusal (Guvenek-Cokol et al, 2016), and burn victims (McGarry et al, 2013). A further two of the articles included children from a pediatric surgery group from various medical conditions (Ari et al, 2019;Ari et al, 2018).…”

Section: Pediatric Health Conditionsmentioning

confidence: 99%

“…These findings highlight the impact that the medical environment has on both child and parent. Recognition of the impact on parents is important for understanding how their level of stress impacts their child's experiences and their ability to support them (Yagiela et al, 2018). Yagiela et al (2018) described the need for parental support to aid in emotional and psychological health and resilience of a child following the admission to a pediatric intensive care unit (PICU).…”

Section: Pediatric Health Conditionsmentioning

confidence: 99%

“…Recognition of the impact on parents is important for understanding how their level of stress impacts their child's experiences and their ability to support them (Yagiela et al, 2018). Yagiela et al (2018) described the need for parental support to aid in emotional and psychological health and resilience of a child following the admission to a pediatric intensive care unit (PICU). The authors found that negative child outcomes correlated with parents with PTSD symptoms (Yagiela et al, 2018).…”

Section: Pediatric Health Conditionsmentioning

confidence: 99%

“…Yagiela et al (2018) described the need for parental support to aid in emotional and psychological health and resilience of a child following the admission to a pediatric intensive care unit (PICU). The authors found that negative child outcomes correlated with parents with PTSD symptoms (Yagiela et al, 2018). There appears to be a link between parental anxiety and child PMTS symptoms, and the consideration of parental PMTS symptoms has been identified in various patient groups (Ari et al, 2019;Ari et al, 2018;Christian-Brandt et al, 2019;Guvenek-Cokol et al, 2016).…”

Section: Pediatric Health Conditionsmentioning

confidence: 99%

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Pediatric Medical Traumatic Stress

Shea

Athanasakos

Cleeve

et al. 2021

The Journal of Child Life: Psychosocial Theory and Practice

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Pediatric medical traumatic stress is a newly emerging term in the literature that is used to describe the impact of negative health care experiences on children and their families. The aim of this scoping review is to explore the health care conditions in which the pediatric traumatic stress framework has been described and what is known about the experiences of children and families who are facing pediatric medical traumatic stress. Best practices for conducting a scoping review were utilized which included the preferred reporting items for systematic reviews and meta-analyses extension checklist for scoping reviews (PRIS-MA-ScR). Following the inclusion and exclusion criteria, 16 articles were included in this review. Results demonstrate a lack in the knowledge around variants within health condi-tion, developmental stage, pre-existing factors, the longevity of symptoms, child reports on trauma, and how trauma can impact future health care.

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Section: Pediatric Health Conditionsmentioning

confidence: 99%

Section: Pediatric Health Conditionsmentioning

confidence: 99%

Section: Pediatric Health Conditionsmentioning

confidence: 99%

Section: Pediatric Health Conditionsmentioning

confidence: 99%

See 2 more Smart Citations

Pediatric Medical Traumatic Stress

Shea

Athanasakos

Cleeve

et al. 2021

The Journal of Child Life: Psychosocial Theory and Practice

View full text Add to dashboard Cite

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Parent communication with care teams and preparation for family meetings in the paediatric cardiac ICU: a qualitative study

et al. 2023

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Objective: The paediatric cardiac ICU presents unique challenges to optimal communication practices, which may impact participation in medical decision-making and long-term psychosocial outcomes for families. This study characterised parent perceptions of (1) team practices that impeded or facilitated communication and (2) preparation for family meetings with interprofessional care teams during extended cardiac ICU admissions. Methods: A purposive sample of parents of children admitted to the cardiac ICU was selected to participate in interviews about their communication experiences. Data were analysed using a grounded theory approach. Results: Twenty-three parents of 18 patients participated with an average length of stay of 55 days at the time of interview. Team practices that impeded communication included inaccurate/incomplete communication, inconsistent within team communication/coordination, and feeling overwhelmed by too many team members/questions. Team practices that facilitated communication included valuing parent preferences, provider continuity, explaining jargon, and eliciting questions. Preparation for family meetings included team practices, parental preferences, and experiences when learning about family meetings (including apprehension about meetings). Family meetings were described as valued opportunities to improve communication. Conclusion: Communication with medical teams represents a modifiable determinant of long-term outcomes for families of children in the cardiac ICU. When parents are included as valued members of their child’s care team, they are more likely to feel a sense of control over their child’s outcomes, even in the face of prognostic uncertainty. Family meetings represent an important opportunity to repair fractures in trust between families and care teams and overcome barriers to communication between parties.

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Parental communication satisfaction with the clinical team in the paediatric cardiac ICU

et al. 2023

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Introduction Understanding parents’ communication preferences and how parental and child characteristics impact satisfaction with communication is vital to mitigate communication challenges in the cardiac ICU. Methods This cross-sectional survey was conducted from January 2019 to March 2020 in a paediatric cardiac ICU with parents of patients admitted for at least two weeks. Family satisfaction with communication with the medical team was measured using the Communication Assessment Tool for Team settings. Clinical characteristics were collected via Epic, Pediatric Cardiac Critical Care Consortium local entry and Society for Thoracic Surgeons Congenital Heart Surgery Databases. Associations between communication score and parental mood, stress, perceptions of clinical care, and demographic characteristics along with patient demographic and clinical characteristics were examined. Multivariable ordinal models were conducted with characteristics significant in bivariate analysis. Results In total, 93 parents of 84 patients (86% of approached) completed surveys. Parents were 63% female and 70% White. Seventy per cent of patients were <6 months old at admission, 25% had an extracardiac abnormality, and 80% had a cardiac surgery this admission. Parents of children with higher pre-surgical risk of mortality scores (OR 2.875; 95%CI 1.076–7.678), presence of surgical complications (72 [63.0, 75.0] vs. 64 [95%CI 54.6, 73] (p = 0.0247)), and greater satisfaction with care in the ICU (r = 0.93922; p < 0.0001) had significantly higher communication scores. Conclusion These findings can prepare providers for scenarios with higher risk for communication challenges and demonstrate the need for further investigation into interventions that reduce parental anxiety and improve communication for patients with unexpected clinical trajectories

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Reframing pediatric cardiac intensive care outcomes: The importance of the family and the role of pediatric medical traumatic stress

Cited by 3 publications

References 82 publications

Pediatric Medical Traumatic Stress

Pediatric Medical Traumatic Stress

Parent communication with care teams and preparation for family meetings in the paediatric cardiac ICU: a qualitative study

Parental communication satisfaction with the clinical team in the paediatric cardiac ICU

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