Reasons of refusal and drop out in a follow up study involving primigravidae in Pakistan

Rohra, Dileep Kumar; Khan, Neelofur Babar; Azam, Syed Iqbal; Sikandar, Rozina; Zuberi, Hina Saeed; Zeb, Amna; Qureishi, Rahat Najam; Hasan, R M M

doi:10.1080/00016340802657561

Cited by 5 publications

(9 citation statements)

References 14 publications

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“…Inconvenience was mentioned in 25 articles as a reason for non‐participation , ranked as the top three reasons fourteen times , and ranked first in four articles . Examples of inconveniences included not having enough time to participate in research, transport issues or a long distance to the research site .…”

Section: Resultsmentioning

confidence: 99%

“…Additional reasons given for non-participation were costs [44,58,69,103,111], cultural insensitivity [37,101], fear of false-positive test results after participation in HIV research [36,44,45,50,59,86,93,94], fear of knowledge of health status [19,28,30,54,68], insufficient compensation [21,43], invasive procedures, [1,20,30,39,54,78,87,106] lack of interest [30,34,37,61,86,95,102,104,105,109], lack of clarity [1,30,37,51,52,91,111], not willing to comply to terms of research [55,68,…”

Section: Other Reasons For Non-participationmentioning

confidence: 99%

See 1 more Smart Citation

The willingness to participate in biomedical research involving human beings in low‐ and middle‐income countries: a systematic review

Browne

Rees

Delden

et al. 2019

Tropical Med Int Health

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ObjectivesTo systematically review reasons for the willingness to participate in biomedical human subjects research in low‐ and middle‐income countries (LMICs).MethodsFive databases were systematically searched for articles published between 2000 and 2017 containing the domain of ‘human subjects research’ in ‘LMICs’ and determinant ‘reasons for (non)participation’. Reasons mentioned were extracted, ranked and results narratively described.ResultsNinety‐four articles were included, 44 qualitative and 50 mixed‐methods studies. Altruism, personal health benefits, access to health care, monetary benefit, knowledge, social support and trust were the most important reasons for participation. Primary reasons for non‐participation were safety concerns, inconvenience, stigmatisation, lack of social support, confidentiality concerns, physical pain, efficacy concerns and distrust. Stigmatisation was a major concern in relation to HIV research. Reasons were similar across different regions, gender, non‐patient or patient participants and real or hypothetical study designs.ConclusionsAddressing factors that affect (non‐)participation in the planning process and during the conduct of research may enhance voluntary consent to participation and reduce barriers for potential participants.

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Section: Resultsmentioning

confidence: 99%

Section: Other Reasons For Non-participationmentioning

confidence: 99%

The willingness to participate in biomedical research involving human beings in low‐ and middle‐income countries: a systematic review

Browne

Rees

Delden

et al. 2019

Tropical Med Int Health

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“…As it was not possible in this current study to investigate the reasons for not participating, we can only speculate on potential drivers for a low participation rate. For example, there could be psychological factors with individuals who fear needles or medical exams [ 28 ], or who refuse to know from which disease they may suffer [ 29 ]. Other reasons include the lack of timely feedback on study findings to participants due to the reluctance of researchers to reveal relevant information before an international publication.…”

Section: Discussionmentioning

confidence: 99%

Study design and characteristics of the Luxembourg European Health Examination Survey (EHES-LUX)

et al. 2018

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BackgroundThe European Health Examination Survey in Luxembourg (EHES-LUX) is a population based survey performed from 2013 to 2015 with the aim to establish baseline information on the general health status of the Luxembourg population aged 25 to 64 years. The paper introduces the study design, recruitment method and representativeness of the sample, and summarizes the sociodemographic characteristics of participants and the prevalence of major health outcomes.MethodsEHES-LUX is based on a random sample representative of the population of Luxembourg based on gender, age and district of residence. The sample size of the study was determined to provide accurate prevalence estimates for major chronic conditions. During two visits, data were collected from participants through a questionnaire (personal data, health status and health care), medical examinations (anthropometric measures, electrocardiogram and spirometry) and biological analysis (blood, urine and hair). Means and frequencies were used to describe the general characteristics of the population and a one-way ANOVA to test the representativeness of the sample and the comparability of participants and non-participants.ResultsA total of 1529 individuals participated in this study (participation rate of 24.1%). Differences between participants and non-participants based on gender, age and district of residence were corrected by sampling weights. The mean age (±SD) of participants was 44.9 (±10.1) years, of which 52.8% were women. Based on clinical measurements, nearly 20% of participants were obese and more than one in three participants were overweight. From measurements (respectively from self-report), 22.0% (respectively 12.2%) were hypertensive, 49.3% (respectively 22.5%) had hypercholesterolemia, 3.5% (respectively 3.7%) had diabetes and 7.6% (respectively 6.0%) had depressive symptoms.ConclusionsThis nationwide epidemiological study on the general health status of Luxembourg residents provides updated prevalence estimates on a range of major health conditions. This information can be used by health authorities to evaluate policies and public health initiatives. At European level, prevalence data obtained by this study following the EHES-Reference Committee (EHES-RC) recommendations, will be comparable between European countries participating in this program.Electronic supplementary materialThe online version of this article (10.1186/s12889-018-6087-0) contains supplementary material, which is available to authorized users.

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“…The participation rate in this field research conducted in the rural area of Eskisehir Province was detected as 76.1 percent. The rate of participation in epidemiological studies reportedly ranged between 48, and 78.5 percent [10, 11, 12, 13]. In a study performed in Turkey, the researchers reported that 11% of the individuals closed the door to the interviewers without listening them, and 57% of the individuals agreed to participate in the research after listening the information given to them [14].…”

Section: Discussionmentioning

confidence: 99%

“…In a study performed in the UK, as the most important reasons for not participating in the study were expressed by the participants as their inability to contribute to the researches, their reluctance to entertain strangers at their homes, and their unwillingness to respond to the questions related to their personal life [11]. In an investigation performed in Pakistan, as the most important reasons for non-participation, objections of the family members, and fear from interventional applications of the research outcomes were indicated [13]. In a study realized in Italy, the participants stated their reason for non-participation in cohort studies as unnecessarily long study periods [16].…”

Section: Discussionmentioning

confidence: 99%

Participation of people living in rural areas of Eskisehir province in field researches, and factors affecting their rates of participation

Özay

Ayhan

Önsüz

et al. 2016

North Clin Istanbul

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OBJECTIVE:The aim of the study was to determine participation rates of people living in the rural area of Eskisehir in field researches, and the factors influencing this.METHODS:This descriptive study was performed with 1,482 people aged 18 and above in two districts of Eskisehir. Data were collected with a 16 question questionnaire using the face-to-face interview technique. Data were analysed with descriptive statistics, chi- square test, logistic regression analysis, and factors affecting rates of participation in field researches.RESULTS:The most important reason (46.9%) given by participating for participant in field researches was the intention of “helping the interviewer”. The other reasons were; believing in the usefulness of the researches (35.0%), contribution to public improvement (14.9%) and taking pleasure in talking with various people (3.2%). The most important reason (34.6%) for not participating in field researches was “considering field researches a waste of time”. The other important reasons for non-participation were unnecessarily long questions in the research questionnaire forms (32.7%) and being uninformed of the research results (31.9%). In logistic regression analysis, age was found to be an influential factor in participation rates.CONCLUSION:Lower rates of participation in field researches cause bias. As far as possible high participation in field researches is important. For the achievement of higher participation rates in field researches, training courses must be provided to both research workers and the public.

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Reasons of refusal and drop out in a follow up study involving primigravidae in Pakistan

Cited by 5 publications

References 14 publications

The willingness to participate in biomedical research involving human beings in low‐ and middle‐income countries: a systematic review

The willingness to participate in biomedical research involving human beings in low‐ and middle‐income countries: a systematic review

Study design and characteristics of the Luxembourg European Health Examination Survey (EHES-LUX)

Participation of people living in rural areas of Eskisehir province in field researches, and factors affecting their rates of participation

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