Quality of life of parents of mentally-ill children: a systematic review and meta-analysis

Dey, Michelle; Castro, Raquel Paz; Haug, Severin; Schaub, Michael P

doi:10.1017/s2045796018000409

Cited by 53 publications

(42 citation statements)

References 54 publications

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“…Lower scores of QOL of parents having a child diagnosed with ADHD were noticed in many studies. 12 In this study, significant improvement was noticed in different QOL domains, especially in the social domain after the intervention (table 1). The lower scores in social domain may be explained by the bullying and the stigma that usually follow psychological disorders from the community.…”

Section: Discussionsupporting

confidence: 50%

Effectiveness of Health Education on Improving Stress and Quality of Life among Parents Having Attention Deficit Hyperactivity Disorder Child.

2021

The Egypt. J. of Community Medicine

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Background: Attention Deficit Hyperactivity Disorder is a significant medical and public health concern because it has enormous social implications, such as financial costs, pressure on communities, negative effects on self-esteem and impacts on educational and vocational activities. Objective: The aims of this research were to assess the effectiveness of health education intervention on improving stress and Quality of Life of parents of children diagnosed with ADHD. Method: pretest posttest study was done at the Child Psychiatry Clinic in Zagazig University Hospital; it was consisted of three steps (pretest, education program and post test).70 parents having child with ADHD were self completed the Quality of Life-Brief questionnaires and The Parental Stress Scale. Results: Education program improved all domains of Quality Of Life and all parental stress scales with statistical significance. Rural area and the marriage status were the factors that affect the psychological domains with significant difference, while the low social class affect the overall heath domain with significant difference. Male gender of the parents was the factor that affects rewarding scale with statistical difference. Rural area was the factor that affects the loss of control scale of the parents of child with ADHD with statistical difference while low social class was the factor that affects the stress scale. Conclusion Parents having ADHD child have high scores of stress and lower Quality of Life scores. Increasing their levels of knowledge via health education can empower them in fighting the disease that may improve their Quality of Life and violate their stress.

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Section: Discussionsupporting

confidence: 50%

Effectiveness of Health Education on Improving Stress and Quality of Life among Parents Having Attention Deficit Hyperactivity Disorder Child.

2021

The Egypt. J. of Community Medicine

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“…ADHD in children may also affect the well-being of their parents. Several studies have shown that parents of children with ADHD experience more parenting stress than parents of typically developing children (Herrerias et al, 2001;Brandt-Dominicus, 2005;Poulton et al, 2013;Dey et al, 2018) perhaps resulting from the increased demands of caretaking, economical costs of medical care, role dissatisfaction, increased levels of parental frustration, marital discord, or divorce (Laugesen et al, 2016). The parenting stress level that parents experience is directly related to the number of ADHD symptoms in their children, according to a range of studies (Deault, 2010;Graziano et al, 2011;Haack et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

Effects of Discontinuing Methylphenidate on Strengths and Difficulties, Quality of Life and Parenting Stress

Matthijssen

Dietrich

Bierens

et al. 2020

Journal of Child and Adolescent Psychopharmacology

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Objectives: To study the effects of discontinuation of long-term methylphenidate use on secondary outcome measures of strengths and difficulties, quality of life (QoL), and parenting stress. Methods: Ninety-four children and adolescents aged 8 to 18 years who had used methylphenidate for over 2 years were randomly assigned to double-blind continuation of treatment for 7 weeks (36 or 54 mg extended release methylphenidate) or to gradual withdrawal over 3 to 4 weeks placebo. We used mixed models for repeated measures to investigate effects on parent, teacher, and child ratings of hyperactivity/inattention and comorbid symptoms with the Strengths and Difficulties Questionnaire (SDQ), investigator-and teacher-rated oppositional symptoms (Conners Teacher Rating Scale-Revised: short form [CTRS-R:S]), and parent-rated aggression with the Retrospective Modified Overt Aggression Scale. QoL was assessed with the Revised Questionnaire for Children and Adolescents to record health-related quality of life and parenting stress with the Nijmegen Parental Stress Index. Results: Hyperactivity/inattention scores from the parent-and teacher-rated SDQ (difference in mean change over time of respectively:-1.1 [95% confidence interval, CI,-2.0 to-0.3]; p = 0.01;-2.9 [95% CI-2.9 to-0.7; p = 0.01]) and oppositional scores of the teacher-rated CTRS-R:S (difference in mean change-1.9 95% CI [-3.1 to-0.6; p < 0.01]) deteriorated to a significantly larger extent in the discontinuation group than in the continuation group. We did not find effects on other symptom domains, aggression, QoL, and parenting stress after discontinuation of methylphenidate. Conclusion: Our study suggests beneficial effects of long-term methylphenidate use beyond 2 years for oppositional behaviors in the school environment. Similarly, beneficial effects were found on hyperactivity-inattention symptoms as rated by parent and teacher scales, confirming our primary study on investigator ratings of attention-deficit/hyperactivity disorder. However, discontinuation of methylphenidate did not appear to have impact on other comorbid problems or aspects of the child's or parental functioning.

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“…Left untreated, such symptoms lead to untoward functional consequences in young people, including worse academic outcomes ( 9 , 10 , 11 ). Both ADHD symptoms and sleep problems can produce profound disruption in daily life and impact negatively quality of life of both the child and the family ( 12 , 13 , 14 ). ADHD symptoms such as hyperactivity can lead to longer sleep onset latency, more night awakening, and lower sleep quality ( 15 ), but disrupted sleep can also impair daytime attention, overlapping with the core symptoms of ADHD ( 16 ).…”

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confidence: 99%

What Is the Link Between Attention-Deficit/Hyperactivity Disorder and Sleep Disturbance? A Multimodal Examination of Longitudinal Relationships and Brain Structure Using Large-Scale Population-Based Cohorts

Shen

Luo

Chamberlain

et al. 2020

Biological Psychiatry

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Background Attention-deficit/hyperactivity disorder (ADHD) comorbid with sleep disturbances can produce profound disruption in daily life and negatively impact quality of life of both the child and the family. However, the temporal relationship between ADHD and sleep impairment is unclear, as are underlying common brain mechanisms. Methods This study used data from the Quebec Longitudinal Study of Child Development ( n = 1601, 52% female) and the Adolescent Brain Cognitive Development Study ( n = 3515, 48% female). Longitudinal relationships between symptoms were examined using cross-lagged panel models. Gray matter volume neural correlates were identified using linear regression. The transcriptomic signature of the identified brain-ADHD-sleep relationship was characterized by gene enrichment analysis. Confounding factors, such as stimulant drugs for ADHD and socioeconomic status, were controlled for. Results ADHD symptoms contributed to sleep disturbances at one or more subsequent time points in both cohorts. Lower gray matter volumes in the middle frontal gyrus and inferior frontal gyrus, amygdala, striatum, and insula were associated with both ADHD symptoms and sleep disturbances. ADHD symptoms significantly mediated the link between these structural brain abnormalities and sleep dysregulation, and genes were differentially expressed in the implicated brain regions, including those involved in neurotransmission and circadian entrainment. Conclusions This study indicates that ADHD symptoms and sleep disturbances have common neural correlates, including structural changes of the ventral attention system and frontostriatal circuitry. Leveraging data from large datasets, these results offer new mechanistic insights into this clinically important relationship between ADHD and sleep impairment, with potential implications for neurobiological models and future therapeutic directions.

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Quality of life of parents of mentally-ill children: a systematic review and meta-analysis

Abstract: The compromised QOL of parents of mentally-ill children needs to be considered and addressed by health professionals who are in contact with them. The paper provides insights into existing research gaps and suggests improvements for subsequent work.

Cited by 53 publications

References 54 publications

Effectiveness of Health Education on Improving Stress and Quality of Life among Parents Having Attention Deficit Hyperactivity Disorder Child.

Effectiveness of Health Education on Improving Stress and Quality of Life among Parents Having Attention Deficit Hyperactivity Disorder Child.

Effects of Discontinuing Methylphenidate on Strengths and Difficulties, Quality of Life and Parenting Stress

What Is the Link Between Attention-Deficit/Hyperactivity Disorder and Sleep Disturbance? A Multimodal Examination of Longitudinal Relationships and Brain Structure Using Large-Scale Population-Based Cohorts

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