Quality of Life Indexes for National Policy: Review and Agenda for Research

Hagerty, Michael R.; Cummins, Robert A.; Ferriss, Abbott L.; Land, Kenneth C.; Michalos, Alex C.; Peterson, Mark F.; Sharpe, Andrew; Sirgy, Joseph; Vogel, Joachim

doi:10.1177/075910630107100104

Cited by 266 publications

(314 citation statements)

References 32 publications

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“…52,53 Future research should control more completely for confounding, assess the impact of selection bias, and disentangle possible causes of trends in HRQOL and SRH. Enhancing the BRFSS by adding questions about more chronic diseases and conditions and a longitudinal follow-up of a sample of previous responders may help accomplish these research goals.…”

Section: Discussionmentioning

confidence: 99%

Worsening Trends in Adult Health-Related Quality of Life and Self-Rated Health—United States, 1993–2001

et al. 2004

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SYNOPSISObjectives. Health-related quality of life and self-rated health complement mortality and morbidity as measures used in tracking changes and disparities in population health. The objectives of this study were to determine whether and how health-related quality of life and self-rated health changed overall in U.S. adults and in specific sociodemographic and geographic groups from 1993 through 2001.Methods. The authors analyzed data from annual cross-sectional Behavioral Risk Factor Surveillance System surveys of 1.2 million adults from randomly selected households with telephones in the 50 states and the District of Columbia.

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Section: Discussionmentioning

confidence: 99%

Worsening Trends in Adult Health-Related Quality of Life and Self-Rated Health—United States, 1993–2001

et al. 2004

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“…Domains that assess ill-being should not be included in QOL instruments because the optimal functioning of these domains can have Review 315 50,92 only a neutral effect on QOL, not a positive effect. 42 For example, if a child has no pain or symptoms, this should have a neutral effect on QOL, not a positive effect. In contrast, it is appropriate and necessary for measures of health status to assess well-being and ill-being (e.g.…”

Section: Definitions Of Qol and Hrqolmentioning

confidence: 99%

Paediatric quality of life instruments: a review of the impact of the conceptual framework on outcomes

Davis

Waters

Mackinnon

et al. 2006

Developmental Medicine &Amp; Child Neurology

228

208

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With an increasing number of paediatric quality of life (QOL) instruments being developed, it is becoming difficult for researchers and clinicians to select the most appropriate instrument. Reviews of QOL instruments tend to report only basic properties of the instruments such as domains and psychometric properties. This paper seeks to appraise critically the conceptual underpinnings of paediatric QOL instruments. A systematic review was conducted to identify QOL instruments for children aged 0 to 12 years, and to examine and compare their conceptual frameworks, definitions employed, and structure. Both generic and condition-specific measures were reviewed. Fourteen generic and 25 condition-specific QOL instruments were identified. Eleven types of definition of QOL and health-related QOL and three theories of QOL were identified. QOL was measured by a variety of domains including emotional, social and physical health, and well-being. Items commonly assessed difficulties, or intensity/frequency of feelings/symptoms, in contrast to positive aspects of life and happiness. The findings highlight the diversity that is apparent in the conceptualization of paediatric QOL and draw attention to the lack of empirical evidence for many of the fundamental assumptions. The impact of the conceptual underpinnings of the instruments on the resulting QOL scores is discussed.

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“…The use of an overall health status measure, particularly self-rated health (SRH), in population and clinical health surveys has become common (1)(2)(3)(4). Historically, much of the work on SRH has focused on its predictive ability for a range of health outcomes, including social-psychological wellbeing (5-7), morbidity (8 -10), health care utilization (10 -12), and mortality (10,13,14).…”

Section: Introductionmentioning

confidence: 99%

Arthritis onset and worsening self-rated health: A longitudinal evaluation of the role of pain and activity limitations

2005

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Objective. To longitudinally explore the hypothesized role of worsening pain and development of activity limitations as mediators in the relationship between arthritis onset and worsening self-rated health (SRH). Methods. Data was obtained from the 1998/1999 and 2000/2001 cycles of the population-based Canadian longitudinal National Population Health Survey (n ‫؍‬ 10,859; ages >18; response rate: time 1 ‫؍‬ 81.6%, time 2 ‫؍‬ 89.2%). Respondents were asked about chronic conditions, pain, activity limitations, and self-perceived health; change over time was assessed. Change in effect of arthritis onset on worsening SRH upon considering potential mediators was assessed through multivariate logistic regression, controlling for sociodemographic characteristics and onset of other conditions. Results. Worsening pain fully explained the effect of arthritis onset on worsening SRH; a portion of the effect of worsening pain was mediated by the development of activity limitation. Residual direct effect of arthritis onset was statistically insignificant. Worsening pain and development of activity limitations also mediated a portion of the effects of onset of other chronic conditions but to a lesser extent than arthritis onset. Conclusion. This is the first study to examine these relationships longitudinally. Identifying the role of mediators is necessary if target areas of prevention and/or management are sought, either at the individual or population level. Our results indicate that the development of arthritis has a significant impact on worsening SRH. Pain and development of activity limitations fully account for the relationship between arthritis onset and worsening SRH. High priority should be placed on prevention and management strategies for pain among people with arthritis.

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Quality of Life Indexes for National Policy: Review and Agenda for Research

Cited by 266 publications

References 32 publications

Worsening Trends in Adult Health-Related Quality of Life and Self-Rated Health—United States, 1993–2001

Worsening Trends in Adult Health-Related Quality of Life and Self-Rated Health—United States, 1993–2001

Paediatric quality of life instruments: a review of the impact of the conceptual framework on outcomes

Arthritis onset and worsening self-rated health: A longitudinal evaluation of the role of pain and activity limitations

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