Quality of life in early age Spanish children treated for cleft lip and/or palate: a case-control study approach

Leopoldo-Rodado, Manuel; Pantoja-Pertegal, Fatima; Belmonte-Caro, Rodolfo; García-Perla, Alberto; Gonzalez-Cardero, Eduardo; Infante-Cossio, Pedro

doi:10.1007/s00784-020-03394-2

Cited by 9 publications

(13 citation statements)

References 35 publications

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“…Since CLP patients usually have malocclusion due to dental anomalies and abnormal craniofacial development, it would be expected that CLP patients presented worse scores of OHRQoL [ 5 ]. Despite that, this study verified no significant difference in OHIP-14 score, which is in line with previous studies [ 25 , 26 ]. Aravena et al reported similar OHRQoL on CLP and control children despite the cleft group had a lower quality-of-life score concerning speech items [ 26 ].…”

Section: Discussionsupporting

confidence: 93%

“…Parents of cleft children had a poorer OHRQoL compared to what was perceived by their children. Several reasons for this finding have been suggested, namely the overestimation of the cleft implications in children social integration at early ages, guilty feelings, and better understanding of the impact of cleft on children’s development, which can lead to a higher burden of concerns [ 25 , 32 ]. Additionally, Imani et al suggested that parents of CLP children under orthodontic treatment are more vulnerable due to their previous adverse experiences throughout the treatment of their children [ 33 ].…”

Section: Discussionmentioning

confidence: 99%

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A Comparative Study of Oral Health-Related Quality of Life among Cleft Lip and Palate Patients and Their Families during Orthodontic Treatment

Francisco

Caramelo

Fernandes

et al. 2021

IJERPH

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(1) Background: It has been recognized that CLP condition may affect oral health-related quality of life (OHRQoL) due to dental anomalies and abnormal craniofacial development. Aim: To assess whether orthodontic treatment affected the levels of OHRQoL in CLP patients and their families. (2) Methods: 226 individuals (111 with cleft and 115 control) and their parents were invited to complete the Oral Health Impact Profile-14 (OHIP-14) and Family Impact Scale (FIS), respectively. The Mann–Whitney test was used for quantitative variables and the Fisher’s exact test for categorical variables. The Spearman Rank Correlation Coefficient was used to correlate the results of the OHIP and FIS questionnaires. (3) Results: No significant difference was found between groups in OHIP-14 but FIS score revealed a significant difference between the two groups evaluated (p < 0.001). Only the social limitation in OHIP score revealed a significant difference (p = 0.001). Regarding FIS score, the most affected dimensions were family activities (p < 0.001), parental emotions (p = 0.001), and family conflict (p = 0.011). (4) Conclusion: Undergoing orthodontic treatment had a similar impact on the overall quality of life in CLP patients and non-cleft patients. Parents of cleft children had a poorer OHRQoL compared to what was perceived by their children and parents of non-cleft children.

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Section: Discussionsupporting

confidence: 93%

Section: Discussionmentioning

confidence: 99%

A Comparative Study of Oral Health-Related Quality of Life among Cleft Lip and Palate Patients and Their Families during Orthodontic Treatment

Francisco

Caramelo

Fernandes

et al. 2021

IJERPH

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“…Recent systematic reviews identified the Child Oral Health Impact Profile (COHIP) as one of the most valid and reliable instruments among those specifically designed for children and teenagers with orofacial anomalies to measure their own OHRQoL [ 21 , 22 ]. Numerous studies have investigated the influence of CLP on OHRQoL using this survey instrument, and they have reported contradictory findings, as some described low levels of QoL, while others did not show any significant impact [ 23 , 24 , 25 , 26 , 27 ]. Differences in age, ethnicity, sample size, treatment protocols, and study designs may partly account for this discrepancy.…”

Section: Introductionmentioning

confidence: 99%

Oral-Health-Related Quality of Life among Non-Syndromic School-Age Children with Orofacial Clefts: Results from a Cross-Sectional Study in Northern Italy

et al. 2022

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The aim of this cross-sectional study was to determine the influence of orofacial clefts on the oral-health-related quality of life (OHRQoL) in a group of Italian children and adolescents and to examine whether gender, age, cleft type, and surgical protocol were associated with patients’ OHRQoL. A total of 71 patients with cleft lip and/or cleft palate (CLP) and 71 age- and gender-matched controls (aged 8 to 18 years) were asked to complete the Child Oral Health Impact Profile (COHIP), a validated and reliable questionnaire to assess self-reported OHRQoL in children and teenagers. Children with orofacial clefts showed statistically significant lower quality of life scores than controls for total OHRQoL and for each of the subscales. Gender, the type of cleft, and the type of surgical protocol had no significant influence on OHRQoL. The negative impact of CLP on the area of self-image was greater in 12–18-year-olds, indicating a higher need for psychosocial counselling. These findings suggest that Italian CLP children and adolescents experience a poorer OHRQoL in comparison to their non-cleft peers.

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“…In Spain, cleft care is provided by regional hospitals with cleft team surgeons paid for by the Spanish National Health System. Dental and orthodontic care for patients with a cleft, however, is usually private, which makes accessing a sample with an adequate number of cases difficult, and therefore, there is little research on psychosocial variables in child patients with a cleft although analyzing quality of life among these individuals is a priority 7 …”

Section: Introductionmentioning

confidence: 99%

Adaptation of the Quality of Life Adolescent Cleft Questionnaire for Spanish children and adolescents with cleft lip and/or palate

Ruiz-Guillén

Suso‐Ribera

Romero-Maroto

et al. 2021

Int J Paed Dentistry

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Background The Quality of Life Adolescent Cleft Questionnaire is a measure of quality of life in cleft lip/palate (CL/P) and includes items on pre‐treatment and post‐treatment status. Items, however, were originally organized in a factor structure that prevents a formal pre‐treatment to post‐treatment comparison. Additionally, the questionnaire was tested in older patients. Aim We aimed to explore a factor structure that allows a comparison of pre‐ to post‐treatment status in children and adolescents with CL/P. Design The sample comprised 60 children and adolescents with CL/P. The scale was divided into two groups of items (24 comparing pre‐treatment and post‐treatment status and 26 measuring current quality of life). Two different exploratory and confirmatory analyses were conducted (one for each group of items). Sources of criterion validity were investigated with measures of self‐esteem and self‐efficacy. Results The results supported a 6‐factor structure for the pre‐treatment and post‐treatment items. In the second group of items, 9 items were removed due to inadequate functioning and a final 4‐factor solution was obtained. The criterion validity of factors was good. Conclusion The proposed factor solution might be more useful to detect the perceived satisfaction in different areas and can be used in younger patients.

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Quality of life in early age Spanish children treated for cleft lip and/or palate: a case-control study approach

Cited by 9 publications

References 35 publications

A Comparative Study of Oral Health-Related Quality of Life among Cleft Lip and Palate Patients and Their Families during Orthodontic Treatment

A Comparative Study of Oral Health-Related Quality of Life among Cleft Lip and Palate Patients and Their Families during Orthodontic Treatment

Oral-Health-Related Quality of Life among Non-Syndromic School-Age Children with Orofacial Clefts: Results from a Cross-Sectional Study in Northern Italy

Adaptation of the Quality of Life Adolescent Cleft Questionnaire for Spanish children and adolescents with cleft lip and/or palate

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