Quality of life among parents seeking treatment for their child’s functional abdominal pain

Calvano, Claudia; Warschburger, Petra

doi:10.1007/s11136-018-1916-2

Cited by 19 publications

(18 citation statements)

References 73 publications

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“…The above results were confirmed by Sawyer et al who reported that time pressure significantly influenced the occurrence of depression among parents of children with CP [25]; likewise, Roxburgh established that time pressure predicted the occurrence of depression [47]. Increased caregiver burden, associated with a necessity to deal with the child’s disability and health problems, additionally determines the time demand and emotional involvement of the caregiver [48]. Given the above, in order to relieve the caregiver burden and improve parents’ mental health it is necessary to create a more effective social support system comprising family, relatives, and neighbours offering emotional and practical assistance in solving everyday problems.…”

Section: Discussionmentioning

confidence: 59%

Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors

Gugała

Penar-Zadarko

Pięciak-Kotlarz

et al. 2019

IJERPH

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Background: Taking care of a child with Cerebral Palsy (CP) may be linked with adverse effects in the parents’ physical and mental health. The causes of anxiety and depression symptoms associated with childcare are still not fully understood. Aim: To assess the intensity of anxiety and depression symptoms in parents of children with CP compared to a control group and to identify selected mental health predictors. Design and Methods: Data were collected from 301 respondents, including 190 parents of children with CP (study group) and 111 parents taking care of children developing normally (control group). Intensity of anxiety and depression was rated using the Hospital Anxiety and Depression Scale (HADS) scale. Gross Motor Function Classification System for Cerebral Palsy (GMFCS), Sense of Coherence Scale (SOC-29), Berlin Support Social Scales (BSSS) scales and a specially designed questionnaire were used to assess the predictors. The investigated variables included the children’s and the parents’ characteristics, as well as environmental factors. The analyses applied Spearman’s rank correlation coefficient, M(SD) as well as multiple regression. Results: The level of anxiety and depression was clearly higher in the parents of children with CP–the mean levels of anxiety and depression in the study group and the controls amounted to 8.1 vs. 4.7 and 6.8 vs. 3.7, respectively. The factors associated with intensity of anxiety and depression in the parents of children with CP included lack of social support, mainly perceived and received support, unsatisfying parental health status, poor economic status of the family, as well as difficult living conditions, sense of coherence, loneliness, the parent’s gender, and the child’s intellectual disability. Conclusions: Identification of significant anxiety and depression predictors, understood as modifiable factors, should be considered in determining and planning comprehensive support for a child with CP and his/her primary parental caregiver.

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Section: Discussionmentioning

confidence: 59%

Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors

Gugała

Penar-Zadarko

Pięciak-Kotlarz

et al. 2019

IJERPH

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“…1,2 But FAP also has a big impact on parents' health and wellbeing. 3 Finally, its high prevalence and impact is also correlated with a high economic impact on society. For example, the economic impact of FAP and irritable bowel syndrome (IBS) in the Netherlands has been estimated to be over 2500 euros a year.…”

Section: Introductionmentioning

confidence: 99%

“…We designed DARWeb, an innovative WBI rooted in the cognitive-behavioral model, to help change maladaptive thoughts and teach effective coping strategies and to help focus on living in accordance with values and objectives. 24,25 Important novel points, with regard to the available literature, include: (1) it is a specific, tailored intervention for children with FAP, (2) it is almost completely self-directed (we only contacted families to send reminders and for technical problems), (3) it involves parents and children to the same degree (seven units for each member of the dyad), and (4) it is oriented toward secondary prevention, addressing important risk factors and focusing on children with non-severe recurrent abdominal pain problems. With our preliminary studies we found that families were quite satisfied with the intervention; they learned several coping strategies (and to give less importance to pain), and pain impact (severity and quality of life) was reduced coping strategies), and helping to focus on living in accordance with values and objectives.…”

Section: Introductionmentioning

confidence: 99%

<p>Effects and Experiences of Families Following a Web-Based Psychosocial Intervention for Children with Functional Abdominal Pain and Their Parents: A Mixed-Methods Pilot Randomized Controlled Trial</p>

Nieto¹,

Boixadós²,

Ruiz³

et al. 2020

JPR

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Purpose: To evaluate post-treatment efficacy of DARWeb (online psychosocial intervention for children with functional abdominal pain) using a randomized clinical trial design and combining quantitative and qualitative data. Patients and methods: Twenty-five families with children with FAP in the experimental group (EG: accessed to DARWeb) and 36 in the control group (CG: wait-list) were compared. Children and parents completed measures of abdominal pain severity (primary outcome), quality of life, and satisfaction. Moreover, children completed measures of depression, functional disability, catastrophizing and coping strategies; parents completed measures about parental responses to their children's pain. Families also answered open questions and were interviewed. Results: A higher percentage of children in the EG achieved a significant clinical change in abdominal pain severity from the parents' perspective (28% in the EG vs 8.33% in the CG). There was a significantly greater reduction in pain frequency in the EG compared to the CG (both from the children's and parents' perspectives) from mixed repeated-measures analyses of variance (there was not a significant interaction in total scores of pain severity). A higher percentage of children in the EG improved in quality of life and depression compared to the CG (results from mixed methods repeated-measures analyses of variances were not significant). However, there were no differences for disability, pain catastrophizing or the coping strategies assessed from the children's perspective; neither from the parents' assessment of quality of life. There were significant interactions for parents' solicitousness responses and promotion of well behaviors in the expected directions. Families were quite satisfied with the intervention, and the qualitative results confirmed an improvement in pain and having learned important coping strategies. Conclusion: Our results support the efficacy of our intervention, but future studies are needed with different profiles of initial severity of the pain problem, longer follow-ups, and other conditions.

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“… 21 Simultaneously, a study from 2018 showed that the parents were highly strained due to the demands of their role as caregivers to a child with functional abdominal pain. 22 The parents’ behaviour can be seen as operant factors that serve to either increase or decrease adaptive child behaviour. 23 This concern was also raised by the participants in our study, as some parents raised the question of whether their worries about their child’s symptoms might impact the child and maintain their pain.…”

Section: Discussionmentioning

confidence: 99%

Understanding parents’ experiences of disease course and influencing factors: a 3-year follow-up qualitative study among parents of children with functional abdominal pain

Brekke

Brodwall

2020

BMJ Open

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ObjectiveFunctional abdominal pain is a common symptom in children and adolescents. Three years ago, we investigated the experiences among parents whose children had chronic abdominal pain but no somatic diagnosis. The aim of the present follow-up study was to explore those families’ current situations.DesignInterviews with open questions about the families’ current pain situations were carried out by the first author. Interviews were audio-recorded and transcribed, and subsequently analysed using descriptive content analysis.SettingUrban and rural areas in two municipalities in Southern Norway.ParticipantsParents of children with abdominal pain who had been referred to a local hospital by their general practitioner and had been discharged without a somatic diagnosis. Fifteen parents of 14 children aged 8–17 years who had also been interviewed in 2016.ResultsNine of the children had recovered from their abdominal pain. During the pain period, the parents reported frustration with not having a diagnosis nor a specific treatment for their child’s abdominal pain. The siblings in some families received less attention and were afraid that something serious might happen to their sister or brother. The parents wished that their child’s school cared more about the child when they had weeks of absence. All parents maintained that their child’s pain was physical, although they thought that psychological aspects might have influenced the symptoms. The parents stated that they, as well as their children, needed guidance from professionals to understand the complex pain situation.

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Quality of life among parents seeking treatment for their child’s functional abdominal pain

Cited by 19 publications

References 73 publications

Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors

Assessment of Anxiety and Depression in Polish Primary Parental Caregivers of Children with Cerebral Palsy Compared to a Control Group, as well as Identification of Selected Predictors

<p>Effects and Experiences of Families Following a Web-Based Psychosocial Intervention for Children with Functional Abdominal Pain and Their Parents: A Mixed-Methods Pilot Randomized Controlled Trial</p>

Understanding parents’ experiences of disease course and influencing factors: a 3-year follow-up qualitative study among parents of children with functional abdominal pain

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