Quality of Life After Thyroid Cancer: An Assessment of Patient Needs and Preferences for Information and Support

Roberts, Katherine J.; Lepore, Stephen J.; Urken, Mark L.

doi:10.1080/08858190802247762

Cited by 56 publications

(43 citation statements)

References 19 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…A smaller, earlier survey examined quality of life, needs, and preferences for information and support in 62 TC patients (12). Although many patients reported good quality of life and felt they received adequate information throughout the course of treatment, most respondents delineated a desire for ongoing information resources, with particular regard to lifestyle habits that might affect recurrence, and symptoms of recurrence, which corresponds with some of the practical and medical questions in the present study that were largely unmet and that patient's expressed were important.…”

Section: Discussionmentioning

confidence: 99%

Support Needs and Survivorship Concerns of Thyroid Cancer Patients

Morley

Goldfarb

2015

Thyroid

View full text Add to dashboard Cite

show abstract

Section: Discussionmentioning

confidence: 99%

Support Needs and Survivorship Concerns of Thyroid Cancer Patients

Morley

Goldfarb

2015

Thyroid

View full text Add to dashboard Cite

show abstract

“…The EORTC QLQ-C30 is one of the most commonly used questionnaires to evaluate HRQOL in various types of cancer. However, to the best of our knowledge, there has been only one report regarding HRQOL using EORTC QLQ-C30 in patients with DTC [27], in which the number of participants was small (n = 62), and the disease status and treatment modalities used for the patients were not specified. In this study we used a group of patients who were all disease-free and included a much larger total number of patients (n = 316).…”

Section: Discussionmentioning

confidence: 99%

Preferences for health outcomes associated with Group A Streptococcal disease and vaccination

Lee

Salomon

Hammitt

2010

Health and Quality of Life Outcomes

View full text Add to dashboard Cite

BackgroundA 26-valent Group A Streptococcus (GAS) vaccine candidate has been developed that may provide protection against pharyngitis, invasive disease and rheumatic fever. However, recommendations for the use of a new vaccine must be informed by a range of considerations, including parents' preferences for different relevant health outcomes. Our objectives were to: (1) describe parent preferences for GAS disease and vaccination using willingness-to-pay (WTP) and time trade-off (TTO) methods; and (2) understand how parents' implied WTP for a quality-adjusted life year (QALY) gained might vary depending on the particular health outcome considered (e.g. averted GAS disease vs. vaccine adverse events).MethodsTelephone interviews were conducted with parents of children diagnosed with GAS pharyngitis at 2 pediatric practice sites in the Boston metropolitan area. WTP and TTO (trading parental longevity for child's health) questions for 2 vaccine and 4 disease-associated health states were asked using a randomly selected opening bid, followed by a 2nd bid and a final open-ended question about the amount willing to pay or trade. Descriptive analyses included medians and interquartile ranges for WTP and TTO estimates. The Wilcoxon signed-rank test was used to assess differences in WTP/QALY values for vaccine adverse events vs. disease states.ResultsOf 119 respondents, 100 (84%) and 96 (81%) provided a complete set of responses for WTP and TTO questions, respectively. The median WTP and discounted (at 3% per year) TTO values to avoid each health state were as follows: local reaction, $30, 0.12 days; systemic reaction, $50, 0.22 days; impetigo, $75, 1.25 days; strep throat, $75, 2.5 days; septic arthritis, $1,000, 6.6 days; and toxic shock syndrome, $3,000, 31.0 days. The median WTP/QALY was significantly higher for vaccine adverse events (~$60,000/QALY) compared to disease states ($18,000 to $36,000/QALY).ConclusionsParents strongly prefer to prevent GAS disease in children compared to vaccine adverse events. However, implied WTP/QALY ratios were higher for the prevention of vaccine adverse events. Regret for errors of commission vs. omission may differ and should be considered by vaccine policymakers.

show abstract

“…Thyroid cancer, its diagnosis, and its treatment introduce physiological and psychological stressors that may negatively impact a patient’s quality of life (35). In a survey of 62 previously treated thyroid cancer patients, Roberts et al found that overall quality of life was high; however, 38.8% of patients reported concerns about recurrence (36). Patients also reported unmet information needs after treatment.…”

Section: Challenges To Implementation Of Active Surveillance Protocolsmentioning

confidence: 99%

Active Surveillance for Papillary Thyroid Microcarcinoma: New Challenges and Opportunities for The Health Care System

Haser

Tuttle

et al. 2016

Endocrine Practice

View full text Add to dashboard Cite

Objective The dramatic increase in papillary thyroid carcinoma (PTC) is primarily a result of early diagnosis of small cancers. Active surveillance is a promising management strategy for papillary thyroid microcarcinomas (PTMCs). However, as this management strategy gains traction in the U.S., it is imperative that patients and clinicians be properly educated, patients be followed for life, and appropriate tools be identified to implement the strategy. Methods We review previous active surveillance studies and the parameters used to identify patients who are good candidates for active surveillance. We also review some of the challenges to implementing active surveillance protocols in the U.S. and discuss how these might be addressed. Results Trials of active surveillance support nonsurgical management as a viable and safe management strategy. However, numerous challenges exist, including the need for adherence to protocols, education of patients and physicians, and awareness of the impact of this strategy on patient psychology and quality of life. The Thyroid Cancer Care Collaborative (TCCC) is a portable record keeping system that can manage a mobile patient population undergoing active surveillance. Conclusion With proper patient selection, organization, and patient support, active surveillance has the potential to be a long-term management strategy for select patients with PTMC. In order to address the challenges and opportunities for this approach to be successfully implemented in the U.S., it will be necessary to consider psychological and quality of life, cultural differences, and the patient’s clinical status.

show abstract

Quality of Life After Thyroid Cancer: An Assessment of Patient Needs and Preferences for Information and Support

Cited by 56 publications

References 19 publications

Support Needs and Survivorship Concerns of Thyroid Cancer Patients

Support Needs and Survivorship Concerns of Thyroid Cancer Patients

Preferences for health outcomes associated with Group A Streptococcal disease and vaccination

Active Surveillance for Papillary Thyroid Microcarcinoma: New Challenges and Opportunities for The Health Care System

Contact Info

Product

Resources

About