Public Opinion About Alzheimer Disease Among Blacks, Hispanics, and Whites

Connell, Christian M.; Roberts, J. Scott; McLaughlin, Sara J.

doi:10.1097/wad.0b013e3181461740

Cited by 125 publications

(125 citation statements)

References 45 publications

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“…', which has to be answered on a four-or five-point Likert scale; variations in response typically range from 'very concerned' to 'not at all concerned'. Among three USAmerican surveys (Alzheimer's Association 2003; Alzheimer's Association and American Heart Association 2008; Connell et al 2007), the percentage of respondents categorised as concerned about developing Alzheimer's disease (AD) ranged from 26 to 49 %. In a random sample of Australians (N = 2000), 48 % of participants said that they were at least a little worried about developing dementia (Low and Anstey 2009).…”

Section: Prevalence Of Dw In the General Populationmentioning

confidence: 99%

“…general practitioner), as they perceived there was little that could be done (Corner and Bond 2004). Less than one quarter of respondents reported believing they were 'well prepared' to handle a family member's AD diagnosis (Connell et al 2007). A lack of coping resources may also be indicated by the finding that even though a large majority of Americans think that it is at least somewhat important to plan for AD, 82 % have not made plans for the possibility of getting AD (MetLife Foundation 2011).…”

Section: Lack Of Coping Strategiesmentioning

confidence: 99%

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Dementia worry: a psychological examination of an unexplored phenomenon

et al. 2012

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According to recent surveys, dementia worry (DW) is a widespread phenomenon in mid-life and old age, at least in Western populations. DW has been shown to be only loosely related to sociodemographic factors. Unfortunately, the concept of DW has found only very little conceptual and empirical attention in previous research. In this conceptual review, we take (mostly) a psychological approach to DW. First, we define DW as an emotional response to the perceived threat of developing dementia. We then conceptualise DW as a hybrid, combining elements of ageing anxiety and health anxiety. On the population level, we argue that the high prevalence of DW may be reflective of the increasing awareness of dementia in times of increasing ''dementia encounters', widespread misperceptions of risks and consequences of dementia and a perceived lack of coping resources. Finally, we propose that DW may affect a range of important behaviours, such as how people interpret evidence of their own or others' age-related cognitive changes, how they interact with people with dementia, how they anticipate and plan for their future, how they engage in screening and prevention behaviours and how they exploit healthcare resources. We conclude with suggestions for future research, including a further in-depth investigation of psychological and micro-/ macrosocial factors associated with DW.

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Section: Prevalence Of Dw In the General Populationmentioning

confidence: 99%

Section: Lack Of Coping Strategiesmentioning

confidence: 99%

Dementia worry: a psychological examination of an unexplored phenomenon

et al. 2012

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“…Blacks and Hispanics were more likely to view cognitive decline and AD as a normal experience of aging and also were more optimistic about the prospects of future developments in AD treatments. Another difference was the preparedness for handling a diagnosis: Hispanic participants reported feeling equipped to navigate diagnostic disclosure situations, whereas blacks and whites did not (Connell et al, 2007).…”

Section: Cultural Differencesmentioning

confidence: 99%

“…Connell, Scott Roberts, and McLaughlin (2007) conducted a national study of white, black, and Hispanic public opinions about AD and treatment. Blacks and Hispanics were more likely to view cognitive decline and AD as a normal experience of aging and also were more optimistic about the prospects of future developments in AD treatments.…”

Section: Cultural Differencesmentioning

confidence: 99%

Racial and Ethnic Disparities Among Individuals with Alzheimer’s Disease in the United States: A Literature Review

Lines¹,

Sherif²,

Wiener³

2014

115

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This study reviews the published literature on racial and ethnic disparities among people with Alzheimer’s disease (AD) and related dementias in the United States. To identify relevant studies, we searched electronic sources for peer-reviewed journal articles and unpublished research reports that were published through July 2014; related to the AD population and their caregivers; and provided evidence of racial and ethnic disparities, discussed reasons for disparities, or described interventions to address disparities. The literature shows consistent and adverse disparities among blacks and Hispanics compared with non-Hispanic whites concerning AD, including the disease’s prevalence and incidence, mortality, participation in clinical trials, use of medications and other interventions, use of long-term services and supports, health care expenditures, quality of care, and caregiving. The literature suggests numerous underlying causes, including factors related to measurement of the disease, genetics, socioeconomic factors, cultural differences, lack of culturally competent clinicians, and discrimination. Although these disparities are well known, little is known about the effectiveness of various strategies, such as cultural competence training, to address these differences, and very few studies evaluate possible interventions.

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“…AD Worry is a relatively unexplored phenomenon but widespread within the general population, at least in Western societies. Estimates of its community prevalence have ranged from 26% to 76.6% [11][12][13][14][15][16]. Cultural differences in the presence of AD Worry were reported in a few studies, worries about AD were found to be mostly common in Western cultures [9].…”

Section: Introductionmentioning

confidence: 99%