Psychological health and well‐being in systemic sclerosis: State of the science and consensus research agenda

Thombs, Brett D.; Lankveld, Wim van; Bassel, Marielle; Baron, Murray; Buzza, Robert; Haslam, Shirley; Haythornthwaite, Jennifer A.; Hudson, Marie; Jewett, Lisa R.; Knafo, Ruby; Kwakkenbos, Linda; Malcarne, Vanessa L.; Milette, Katherine; Motivala, Sarosh J.; Newton, Evan G.; Nielson, Warren R.; Pacy, Marion; Razykov, Ilya; Schieir, Orit; Taillefer, Suzanne; Worron-Sauve, Maureen

doi:10.1002/acr.20187

Cited by 80 publications

(72 citation statements)

References 100 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Many studies focus on patients with rheumatoid arthritis and other inflammatory rheumatic diseases. Recently, the literature on psychological problems in patients with systemic sclerosis (scleroderma, SSc) is growing [1]. However, much is still unknown about the psychological problems of patients with SSc and their relationship with the disease.…”

Section: Introductionmentioning

confidence: 98%

Disease-related and psychosocial factors associated with depressive symptoms in patients with systemic sclerosis, including fear of progression and appearance self-esteem

Kwakkenbos

Lankveld

Vonk

et al. 2012

Journal of Psychosomatic Research

Self Cite

View full text Add to dashboard Cite

Depressive symptoms were common in the present sample of patients with SSc and were independently associated with pain, fatigue, social support, emotion-focused coping, helplessness and fear of progression. Results suggest that, in addition to assessment of disease characteristics, attention should be given also to psychosocial factors found to be associated with depressive symptoms. For the development and trialling of psychological interventions, fear of progression could be an important target.

show abstract

Section: Introductionmentioning

confidence: 98%

Disease-related and psychosocial factors associated with depressive symptoms in patients with systemic sclerosis, including fear of progression and appearance self-esteem

Kwakkenbos

Lankveld

Vonk

et al. 2012

Journal of Psychosomatic Research

Self Cite

View full text Add to dashboard Cite

show abstract

“…[1][2][3][4] Because there is no known cure for the disease, SSc treatment focuses on reducing symptoms and disability, and improving health-related quality of life (HRQL). This article summarizes the impact of SSc on common patient-reported problems associated with HRQL and describes potential interventions to support coping with the consequences of the disease.…”

Section: Introductionmentioning

confidence: 99%

Psychosocial Aspects of Scleroderma

Kwakkenbos

Delisle

Fox

et al. 2015

Rheumatic Disease Clinics of North America

Self Cite

View full text Add to dashboard Cite

“…Approximately 80% of SSc patients are women, with the highest onset rates between ages 30 and 60 years (2). Common psychosocial problems include pain, fatigue, pruritus, body image distress, depressive symptoms, and disability (3)(4)(5)(6)(7)(8).…”

Section: Introductionmentioning

confidence: 99%

Rates and correlates of sexual activity and impairment among women with systemic sclerosis

Levis

Hudson

Knafo

et al. 2012

Arthritis Care & Research

Self Cite

View full text Add to dashboard Cite

Objective. To assess 1) the rates of sexual activity and impairment, 2) clinical correlates of sexual activity/impairment, and 3) common sources of pain during and after sex in a large sample of female patients with systemic sclerosis (SSc; scleroderma). Methods. We performed a cross-sectional multicenter study of female SSc patients from the Canadian Scleroderma Research Group Registry. Patients underwent medical examinations and clinical histories and were asked whether they had engaged in sexual activities with their partner in the past 4 weeks. Sexually active patients completed a 9-item version of the Female Sexual Function Index (FSFI) and items related to problems that may be linked to sexual dysfunction in SSc. Multivariate logistic regressions assessed independent predictors of activity/inactivity and sexual dysfunction. Results. A total of 226 (41%) of 547 patients, including 215 (54%) of the 401 patients currently in relationships, reported having engaged in sexual activities with a partner in the past 4 weeks. Among 165 sexually active patients with complete data for all variables, 102 (62%) had FSFI total scores <22.5, indicating impaired function. Seventeen percent of the patients were sexually active and not impaired. Independent predictors (P < 0.05) of sexual activity were younger age, fewer gastrointestinal symptoms, and less severe Raynaud's phenomenon symptoms. Sexual impairment was independently associated with older age, higher skin scores, and more severe breathing problems. Vaginal pain was 8 times more likely among women with impairment. Conclusion.Research is needed to compare the extent of activity and impairment in SSc compared to women without SSc and to develop interventions to address impaired sexual function in women with SSc.

show abstract

Psychological health and well‐being in systemic sclerosis: State of the science and consensus research agenda

Cited by 80 publications

References 100 publications

Disease-related and psychosocial factors associated with depressive symptoms in patients with systemic sclerosis, including fear of progression and appearance self-esteem

Disease-related and psychosocial factors associated with depressive symptoms in patients with systemic sclerosis, including fear of progression and appearance self-esteem

Psychosocial Aspects of Scleroderma

Rates and correlates of sexual activity and impairment among women with systemic sclerosis

Contact Info

Product

Resources

About