Psychological Factors in Chronic Edema: A Case–Control Study

Moffatt, Christine; Aubeeluck, Aimée; Franks, Peter J.; Doherty, Debra; Mortimer, Peter; Quéré, I.

doi:10.1089/lrb.2017.0022

Cited by 13 publications

(17 citation statements)

References 41 publications

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“…As for edema, research in the United Kingdom has shown an association between chronic edema and quality of life, which is particularly reduced in terms of physical and emotional capacity and health in general (30) . It is considered that educational activities that favor self-care can positively impact the reduction of edema and improve HRQoL.…”

Section: Although the Relationship Between Depressionmentioning

confidence: 99%

Quality of life of chronic kidney patients on hemodialysis and related factors

Pretto

Winkelmann

Hildebrandt

et al. 2020

Rev. Latino-Am. Enfermagem

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Objective: to verify the association between the health-related quality of life of chronic renal patients on hemodialysis with sociodemographic, clinical, depression and medication adherence characteristics. Method: a cross-sectional study with 183 chronic renal patients undergoing hemodialysis in the state of Rio Grande do Sul, Brazil. A sociodemographic and clinical questionnaire, Kidney Disease and Quality of Life Short-Form, Beck Depression Inventory and Morisky Medication Adherence Scale - eight items were used. Among the variables, comorbidities, complications of kidney disease and intercurrences during and after hemodialysis were evaluated. The analysis was performed with descriptive and analytical statistics. Results: 55.2% of the patients were 60 years old or older, 35.0% were hypertensive, with regular quality of life, average of 62.61. Scores below average in the dimensions of quality of life were mainly associated with repetitive infections and edema as complications of the disease, pain during hemodialysis and weakness afterwards. Low drug adherence resulted in a worse quality of life, impacting ten of the 20 dimensions evaluated and depression in all, except for patient satisfaction. Conclusion: reduced quality of life in this population is associated with depressive symptoms, complications such as repetitive infections, pain and anemia, weakness after the dialysis session and low medication adherence. Actions aimed at changing these factors can promote well-being.

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Section: Although the Relationship Between Depressionmentioning

confidence: 99%

Quality of life of chronic kidney patients on hemodialysis and related factors

Pretto

Winkelmann

Hildebrandt

et al. 2020

Rev. Latino-Am. Enfermagem

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“…Traditional individual approaches to learning should be challenged, and approaches that draw children, parents, and professionals together may be beneficial and inform the development of new therapeutic approaches. 26,27…”

Section: Discussionmentioning

confidence: 99%

A Study Using Visual Art Methods to Explore the Perceptions and Barriers of Self-Management in Children and Adolescents with Lymphedema

Moffatt

Aubeeluck

Stasi³

et al. 2019

Lymphatic Research and Biology

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Background: The aims of this study were to explore, using visual art methodology, how children and adolescents perceive their lymphedema and conceptualize the barriers and enablers in self-management and to explore the role of an educational camp in promoting self-efficacy. Methods: Participants (speaking English, French, and Italian) were recruited during an educational camp for children with lymphedema. Children and adolescents used different methodologies to depict living and self-managing their condition. Younger children (aged 5–12 years) drew pictures, and all children and adolescents (aged 5–18 years) were given cameras and asked to take photographs that depicted their experience of learning self-management of their condition during the camp. Rose's critical visual methodology framework was used for analysis. Results: Analysis of the data produced five categories: Normal versus altered childhood, living with lymphedema; perceptions of lymphedema and self-care in younger children; adolescents' perception of living and managing lymphedema; learning self-efficacy; and insights into cultural differences in self-care. Conclusions: The study has shown that self-management is complex. Children and adolescents face many daily challenges and frustrations in managing their condition in addition to the normal challenges of development and growth that impact on: home life, time with friends, school activities, and relationships. Children expressed a deep longing for cure and a recognition that their lives were altered by having the condition that led to limitations in sport and wearing fashionable clothes and shoes. The importance of relationships with professionals was critical as was the experience of meeting and learning with other children through the camp experience. Attempts to simplify self-management techniques would appear to be a key priority as would a greater understanding of the self-beliefs young people have of their ability to influence and control their condition and its impact on their life.

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“…Lymphedema management (CDT) is typical of many conditions developed in an era when an acute illness model still predominated, and concepts and structures continue to influence the way in which care is approached. 18,19 Lymphedema may be defined as a chronic disease, however, treatment with CDT is based more on an acute model of care with interventions delivered during acute exacerbations. This may influence the ineffectiveness of health care systems designed to treat acute disease rather than chronic disease.…”

Section: Discussionmentioning

confidence: 99%

A Study to Explore the Professional Conceptualization and Challenges of Self-Management in Children and Adolescents with Lymphedema

Moffatt

Aubeeluck

Stasi³

et al. 2019

Lymphatic Research and Biology

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Background: The aim of this study was to explore the professional experience of caring for children and adolescents with lymphedema and to explore the way in which they understand and implement self-management strategies and the influence of their own self-efficacy beliefs on this process. Methods and Results: Participants were recruited during an educational camp for children with lymphedema. Three individual semistructured focus groups were undertaken in English, French, and Italian with simultaneous translation. Data were analyzed using interpretative phenomenological analysis (IPA). Analysis of the data produced three superordinate themes: professional concepts of self-management, professional practice, and redefining the cornerstone of lymphedema care. An additional seven subthemes were as follows: readiness to self-management, professional perspectives on self-management, defining success and treatment failure, emotional burden, traditional views on complex decongestive therapy, new ways to practice, and sole practitioner versus multidisciplinary teams. Conclusions: The purpose of the study was to explore the challenges professionals face when introducing self-management to children and adolescents with lymphedema and their parents and to explore their own sense of self-efficacy in approaching this. The research allowed in-depth discussion about the ways they conceptualize self-management and faced professional challenges. The research highlighted the need to define what is considered an acceptable outcome within a complex and uncertain condition and the self-management strategies that are needed to support this.

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Psychological Factors in Chronic Edema: A Case–Control Study

Cited by 13 publications

References 41 publications

Quality of life of chronic kidney patients on hemodialysis and related factors

Quality of life of chronic kidney patients on hemodialysis and related factors

A Study Using Visual Art Methods to Explore the Perceptions and Barriers of Self-Management in Children and Adolescents with Lymphedema

A Study to Explore the Professional Conceptualization and Challenges of Self-Management in Children and Adolescents with Lymphedema

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