Personal responses of patients to vitiligo: the importance of the patient-physician interaction

Porter, Judith D. R.

doi:10.1001/archderm.114.9.1384

Cited by 35 publications

(33 citation statements)

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“…Despite this, a minority of patients treats their disease, reflected in a low impact on DLQI. Lack of treatment may be due to poor treatment satisfaction as only 40% of those who ever treated their disease were satisfied compared to 60% in previous studies [6, 21]. It can be expected that patients who are more disappointed by medical treatments volunteer to evaluate the use of camouflage.…”

Section: Discussionmentioning

confidence: 97%

“…Studies have demonstrated the quality of life impairment caused by vitiligo, a disfiguring skin disease affecting at least 1% of the total population [2, 3]. Many vitiligo patients are distressed, especially in relation with social encounters, or feel embarrassed when exposing the body [4,5,6]. Moreover, vitiligo patients may suffer from low self-esteem and poor body image, experience discrimination from others and feel stigmatized [2, 7, 8].…”

Section: Introductionmentioning

confidence: 99%

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Quality of Life and Stigmatization Profile in a Cohort of Vitiligo Patients and Effect of the Use of Camouflage

Ongenae¹,

Dierckxsens²,

Brochez³

et al. 2005

Dermatology

158

154

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Background: Few studies have paid attention to the effects of treatment interventions on the psychosocial consequences of vitiligo. Objectives: To quantify and analyse the psychosocial benefit of the use of camouflage in vitiligo patients. Patients and Methods: 78 vitiligo patients completed the Dermatology Life Quality Index (DLQI) and an adapted stigmatization questionnaire, and 62 of them completed the DLQI after at least a 1-month use of camouflage. Results: The initial mean overall DLQI score (n = 78) is 6.9 (SD 5.6). The mean global stigmatization score is 38%. Disease extent and disease severity are strong predictors of the DLQI (p < 0.0001). Vitiligo on the face/head/neck substantially affects the DLQI, independently of degree of involvement. The mean DLQI score before and after use of camouflage (n = 62) is 7.3 (SD 5.6) and 5.9 (SD 5.2; p = 0.006). Mainly the high-scoring items ‘feelings of embarrassment and self consciousness’ and ‘choice of clothing’ improve. Predictors of improvement are higher DLQI scores (p = 0.0005) and higher total severity scores (p = 0.03). Conclusions: Camouflage can be recommended, particularly in patients with higher DLQI scores or self-assessed disease severity. Patients with minor involvement of the face benefit from camouflage.

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Section: Discussionmentioning

confidence: 97%

Section: Introductionmentioning

confidence: 99%

Quality of Life and Stigmatization Profile in a Cohort of Vitiligo Patients and Effect of the Use of Camouflage

Ongenae¹,

Dierckxsens²,

Brochez³

et al. 2005

Dermatology

158

154

View full text Add to dashboard Cite

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“…Even though subjective physical complaints are usually absent, experience of the disease is characterized for many patients by feelings of fear and shame which can lead to a decrease in self-confidence and self-esteem, accompanied by difficulties in socialization and personality development [10,11,12,13]. Numerous studies have confirmed a substantial negative effect on patients’ quality of life and make clear that quality of life decreases with the duration of the disease and number of visits to the doctor [14,15,16].…”

Section: Introductionmentioning

confidence: 99%

Clinical Features and Treatment Outcomes of Vitiligo from the Patients’ Perspective: Results of a National Survey in Germany

et al. 2010

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Background: Vitiligo causes substantial disease burden and patient needs still remain underestimated. Objective: To assess the clinical features, treatment outcomes and satisfaction in patients with vitiligo. Methods: A nationwide, cross-sectional German postal survey was conducted. Clinical features and treatment outcomes of vitiligo (affected body surface, comorbidities, treatments applied, patient benefit index [PBI]) were evaluated using a standardized patient questionnaire. Results: 1,023 patients (71.4% women, mean age 44.4 years) completed the questionnaire. The average onset of disease was at 24.1 years, and the mean disease duration was 20.3 years. The mean number of body sites affected was 6.9, and the mean affected body surface area was 14.9%. On average, 3.7 therapies had been applied previously, with a total PBI of 1.03 ± 1.12. Only 38.7% experienced a PBI >1, which indicates a minimal patient benefit. Conclusions: Most therapeutic options are considered to be of low patient benefit. There is a need for more beneficial treatments and improved care in patients with vitiligo.

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“…The tendency of many doctors to trivialize vitiligo and its consequences was one of the most difficult problems encountered by patients (Porter et al 1978). Being told that vitiligo is 'only a cosmetic disorder' is small comfort to the majority of patients who experience some degree of psychological stress due to the disease.…”

mentioning

confidence: 99%

The Psychological Effects of Vitiligo: Response to Impaired Appearance

Porter¹

2000

Vitiligo

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Personal responses of patients to vitiligo: the importance of the patient-physician interaction

Cited by 35 publications

References 0 publications

Quality of Life and Stigmatization Profile in a Cohort of Vitiligo Patients and Effect of the Use of Camouflage

Quality of Life and Stigmatization Profile in a Cohort of Vitiligo Patients and Effect of the Use of Camouflage

Clinical Features and Treatment Outcomes of Vitiligo from the Patients’ Perspective: Results of a National Survey in Germany

The Psychological Effects of Vitiligo: Response to Impaired Appearance

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