Patient and citizen participation in health care decisions in Italy

Goss, Claudia; Renzi, Cristina

doi:10.1016/j.zgesun.2007.02.041

Cited by 7 publications

(8 citation statements)

References 17 publications

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“…The micro level refers to decision-making for the individual patient or in situations with a HCP, whereas the meso level describes decision-making concerning clinical characteristics and structures, e.g., healthcare institutions or integration of multidisciplinary team meetings [ 2 , 44 ].…”

Section: Resultsmentioning

confidence: 99%

Shared Decision-Making in Oncology – A Qualitative Analysis of Healthcare Providers’ Views on Current Practice

et al. 2016

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BackgroundDespite an increased awareness of shared decision-making (SDM) and its prominent position on the health policy agenda, its implementation in routine care remains a challenge in Germany. In order to overcome this challenge, it is important to understand healthcare providers’ views regarding SDM and to take their perspectives and opinions into account in the development of an implementation program. The present study aimed at exploring a) the attitudes of different healthcare providers regarding SDM in oncology and b) their experiences with treatment decisions in daily practice.Material and MethodsA qualitative study was conducted using focus groups and individual interviews with different healthcare providers at the University Cancer Center Hamburg, Germany. Focus groups and interviews were audio-recorded, transcribed and analyzed using conventional content analysis and descriptive statistics.ResultsN = 4 focus groups with a total of N = 25 participants and N = 17 individual interviews were conducted. Attitudes regarding SDM varied greatly between the different participants, especially concerning the definition of SDM, the attitude towards the degree of patient involvement in decision-making and assumptions about when SDM should take place. Experiences on how treatment decisions are currently made varied. Negative experiences included time and structural constraints, and a lack of (multidisciplinary) communication. Positive experiences comprised informed patients, involvement of relatives and a good physician-patient relationship.ConclusionThe results show that German healthcare providers in oncology have a range of attitudes that currently function as barriers towards the implementation of SDM. Also, their experiences on how decision-making is currently done reveal difficulties in actively involving patients in decision-making processes. It will be crucial to take these attitudes and experiences seriously and to subsequently disentangle existing misconceptions in future implementation programs.

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Section: Resultsmentioning

confidence: 99%

Shared Decision-Making in Oncology – A Qualitative Analysis of Healthcare Providers’ Views on Current Practice

et al. 2016

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“…CE can indeed have many implications, both scientific and societal. It reflects the growing importance of the socalled "citizen science" [25] (also termed as "crowd science" [26], "crowd-sourced science" [27], "civic science" [28], "networked science" [29], "small artisan science" [30] or "shared science" [31]) in which the barrier between scholars and lay people becomes blurred and citizen empowerment enables amateur or nonprofessional scientists to carry out scientific research, in whole or at least in part, being actively engaged in scientific activities (data collections, use of technologies, etc.). Crowd-sourcing, crowd-funding and public education play a major role.…”

Section: Introductionmentioning

confidence: 99%

Googling Insects as a New Trend in Cultural Entomology: An Italian Perspective

Luigi¹

2014

TOENTOJ

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Cultural entomology (CE) explores the interactions between the world of insects and mankind. Since the internet plays a major role in nowadays life, it would be of great interest to investigate the insects-related internet usage and activities. However, there are very few studies about this. For this reason, inspired by the seminal work carried out by the Japanese Takada, we decided to replicate his findings. We analyzed with Google Trends and with the wavelet power spectrum analysis (WPSA) the hit-search volumes of the most common insects. We found that the five most commonly searched insects are bees, butterflies, mosquitoes, ants and spiders which are arachnids, but are commonly believed to be insects. We found a seasonality for some insects, as confirmed by the WPSA, and with peaks related to the seasonal period in which the insects are most visible, while we could not detect any regularity or trend for other insects, which are not clearly related to any particular season. In addition, we proved that, at least in some cases, hit-search volumes were influenced by the media and that the degree of seasonal regularity as measured by the WPSA was variable. Thus, we have proven the robustness of previous finding, extending their validity also in another culture and another context. Therefore, rather than being confined to a specific culture, googling insects could be a universal behavior and attitude, even though with some cross-cultural differences. Further systematic research is needed to shed light on this topic.

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“…Nevertheless, Governments of most European countries want more consumer involvement [12], [13], [14], [15] and [16] and also many doctors are authentic in their wish to involve patients in the way health care should be organised and delivered. This is also reflected in the growing interest in how patients or lay people can be used as teachers [17].…”

Section: Introductionmentioning

confidence: 99%