Parents’ satisfaction with repair of paediatric cleft lip/cleft palate in Honduras

Rivera, Maria E; Hexem, Kari R.; Womer, James; Vinelli, Elizabeth; Feudtner, Chris

doi:10.1179/2046905513y.0000000056

Cited by 11 publications

(11 citation statements)

References 14 publications

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“…Also, the history-taking questions, the physical examination, the administration of diagnostic tests, the prescription of medications, the referral to physician specialists, the delivery of answers to the patient’s symptoms, and the way this information is communicated are all areas where patients experience unmet expectations (Bell, Kravitz, Thom, Krupat, & Azari, 2002; Peck et al, 2004). Finally, once the patient has undergone a medical procedure or taken a prescription and they still do not feel better, or fully healed from their situation, unmet expectations are sometimes reported (Rivera, Hexem, Womer, Vinelli, & Feudtner, 2013). In the health care setting, unmet expectations can create a sense of diminished control for the patient (DeLuca & Lobel, 2014).…”

Section: Theoretical Backgroundmentioning

confidence: 99%

Unmet Expectations in Health Care Settings: Experiences of Transgender and Gender Diverse Adults in the Central Great Plains

et al. 2019

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Transgender and gender diverse (TGD) individuals face a long-term, multifaceted process if they choose to begin a gender affirmation journey. Decisions to go on hormone therapy and/or have a surgical procedure necessitate the TGD individual to set up an appointment with a health care provider. However, when TGD patients interact with health care practitioners, problems can arise. This article documents and categorizes the types of unmet expectations that are common in the TGD patient–health care provider social dynamic in the Central Great Plains of the United States. Utilizing a community-based participatory research model, qualitative in-depth interviews were conducted with 27 TGD individuals about their health care experiences. From this, the researchers identified four main themes of unmet expectations: probing, gatekeeping, stigmatizing stance, and misgendering/deadnaming. Steps that can be taken by both the health care provider and the TGD individual to have a more successful encounter are discussed.

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Section: Theoretical Backgroundmentioning

confidence: 99%

Unmet Expectations in Health Care Settings: Experiences of Transgender and Gender Diverse Adults in the Central Great Plains

et al. 2019

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“…Several studies in this review consistently report on follow-up, showing that substantial efforts are being made to improve the data output of missions 16 34 35 49–51 61 63. Ten studies reported significant follow-up lengths of more than 6 months and high numbers of patients returning for follow-up were shown 16 34 35 47 49 58 60–62 66. The majority of these missions were engaged in long-term partnerships.…”

Section: Discussionmentioning

confidence: 83%

“…Organisations were active in Africa, South-East Asia, Eastern Europe, and South and Central America. A typical mission team consisted of two or three plastic and/or maxillofacial surgeons, one or two anaesthetists, a mission coordinator, theatre nurse and one or two resident doctors, totalling 8 to 10 individuals for one single mission 32 33 37 46 47 50 51 54 58. Some teams were considerably larger, up to 40 individuals 36…”

Section: Resultsmentioning

confidence: 99%

Impact of short-term reconstructive surgical missions: a systematic review

et al. 2019

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IntroductionShort-term missions providing patients in low-income countries with reconstructive surgery are often criticised because evidence of their value is lacking. This study aims to assess the effectiveness of short-term reconstructive surgical missions in low-income and middle-income countries.MethodsA systematic review was conducted according to PRISMA guidelines. We searched five medical databases from inception up to 2 July 2018. Original studies of short-term reconstructive surgical missions were included, which reported data on patient safety measurements, health gains of individual patients and sustainability. Data were combined to generate overall outcomes, including overall complication rates.ResultsOf 1662 identified studies, 41 met full inclusion criteria, which included 48 546 patients. The overall study quality according to Oxford CEBM and GRADE was low. Ten studies reported a minimum of 6 months’ follow-up, showing a follow-up rate of 56.0% and a complication rate of 22.3%. Twelve studies that did not report on duration or follow-up rate reported a complication rate of 1.2%. Fifteen out of 20 studies (75%) that reported on follow-up also reported on sustainable characteristics.ConclusionsEvidence on the patient outcomes of reconstructive surgical missions is scarce and of limited quality. Higher complication rates were reported in studies which explicitly mentioned the duration and rate of follow-up. Studies with a low follow-up quality might be under-reporting complication rates and overestimating the positive impact of missions. This review indicates that missions should develop towards sustainable partnerships. These partnerships should provide quality aftercare, perform outcome research and build the surgical capacity of local healthcare systems.PROSPERO registration numberCRD42018099285.

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“…15 Four years in, that number is now over 11 000. As this model carefully ties high clinical volume with academic interests, research done through Operation Smile local centers has resulted in over 25 publications, [16][17][18][19][20][21][22][23][24][25][26] with almost 20 coming from GC4 alone. 10,[13][14][15][27][28][29][30][31][32][33][34][35][36][37][38][39][40][41] Operation Smile India spent 2 preliminary years studying the government, culture, and infrastructure of Assam to develop the successful model for sustainable care that is GC4.…”

Section: Research In a High-volume Cleft Centermentioning

confidence: 99%

The Expanding Role of Education and Research in International Healthcare

Jones

Campbell

Magee

et al. 2016

Annals of Plastic Surgery

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A recent report of the Lancet Commission on Global Surgery has continued to emphasize the importance of surgery in global health. Plastic surgeons have been involved in humanitarian care of children in developing countries for many years. The ability to repair children with cleft lip and palate in resource-poor settings has made this desirable for many plastic surgeons. A number of philanthropic plastic surgery organizations arose to deal with the problem in a more structured way. Dr. Donald Laub at Stanford established Interplast (now ReSurg) in 1969. Dr. Bill and Kathy Magee established Operation Smile in 1982, and many others have followed. The unifying theme of these organizations has been the desire to provide safe and effective surgical care to children who would otherwise be forced to live out their lives with deformity. Most care has been for children with clefts, but efforts have expanded to include hand surgery and burn reconstruction. The initial effort was provided through surgical missions. A paradigm shift has occurred as sustainability and local capacity have become paramount. Education and training of local colleagues and assistance in surgical safety infrastructure are expanding the reach of plastic surgical care around the globe. The inauguration of in-country permanent surgical centers allows high-volume outcomes research, as well as unique educational collaboration between plastic surgeons of both the developed and developing world.

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Parents’ satisfaction with repair of paediatric cleft lip/cleft palate in Honduras

Abstract: Despite unmet expectations, parents of children who received medical mission surgery for cleft lip or cleft palate express satisfaction with outcomes. Other factors are likely to influence expressions of satisfaction in this setting.

Cited by 11 publications

References 14 publications

Unmet Expectations in Health Care Settings: Experiences of Transgender and Gender Diverse Adults in the Central Great Plains

Unmet Expectations in Health Care Settings: Experiences of Transgender and Gender Diverse Adults in the Central Great Plains

Impact of short-term reconstructive surgical missions: a systematic review

The Expanding Role of Education and Research in International Healthcare

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