2010
Parental Hopeful Patterns of Thinking, Emotions, and Pediatric Palliative Care Decision Making
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Cited by 83 publications
(76 citation statements)
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“…The current conceptualization of affect views positive affect (e.g., a general good mood or a specific positive emotion such as joy) and negative affect (e.g., a general negative mood or a specific negative emotion such as anxiety or anger) as separate emotional experiences rather than opposite ends of the same continuum [ 43 - 45 ]. This is consistent with studies finding that even in extreme situations, caregivers experience both positive and negative affect [ 6 , 46 , 47 ]. In addition to feelings of sadness and distress about their child’s condition, parents of seriously ill children report being overwhelmed with feelings of love for the child and of gratitude for the support they have received.…”
Section: Discussionsupporting
confidence: 92%
“…The current conceptualization of affect views positive affect (e.g., a general good mood or a specific positive emotion such as joy) and negative affect (e.g., a general negative mood or a specific negative emotion such as anxiety or anger) as separate emotional experiences rather than opposite ends of the same continuum [ 43 - 45 ]. This is consistent with studies finding that even in extreme situations, caregivers experience both positive and negative affect [ 6 , 46 , 47 ]. In addition to feelings of sadness and distress about their child’s condition, parents of seriously ill children report being overwhelmed with feelings of love for the child and of gratitude for the support they have received.…”
Section: Discussionsupporting
confidence: 92%
“…From the values held, it may be said that the aim sought by parents was maximizing their understanding about prognosis, and the aim of doctors was maximizing medical outcomes. These findings confirm what some clinicians have said about decision-making, that values, feelings, skills, and personal background, make evident why one thinks and acts as one does [ 1 , 48 ]. Therefore, it is strongly recommended that a deeper level of doctor (and wider clinical team) involvement should include asking about feelings and acknowledging and legitimizing emotions, to assist in exploring the thoughts that parents/children have about hopes for their future.…”
Section: Discussionsupporting
confidence: 86%
“…Others 5 13 High level of satisfaction with hospice care, presented in this study is in accordance with other authors' observations, however, there are small number of studies concerning PPC at home. [4,10,15,18] Respondents highly evaluated communication with hospice staff, what is similar to results of the research conducted previously among staff of HHChLR. [24] Many studies showed that family-staff communication issues are the central aspects of palliative care and a measurement of its is an integral part of complex evaluation of palliative care quality.…”
Section: Expectation Of Limiting Child's Suffering 14 38supporting
confidence: 80%
“…Presented study showed main fears connected with decision to be transferred to home hospice care. Results of other studies showed positive effects of hospice intervention and support for children with life-limiting illnesses [4,13,[16][17][18]. In opinion of this study authors home-based model of care should be promoted as most suitable for children and their families, as well as cheaper than the inpatient model of care.…”
Section: Discussionmentioning
confidence: 64%
