Parent-proxy perception of overweight adolescents' health-related quality of life is different according to adolescent gender and age and parent gender

Bianchini, Josiane Aparecida Alves; Silva, Danilo Fernandes da; Nardo, Claúdia Christina Sanchez; Carolino, Idalina Diair Regla; Hernandes, Florêncio; Nardo, Nélson

doi:10.1007/s00431-013-2050-3

Cited by 15 publications

(14 citation statements)

References 42 publications

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“…The different opinions may have been caused by the higher complexity of HRQOL assessment for children (including the intricacy of proxy methods) [21, 22]. …”

Section: Discussionmentioning

confidence: 99%

Assessing health-related quality of life in urology – a survey of 4500 German urologists

Schmick¹,

Juergensen²,

Rohde³

et al. 2017

BMC Urol

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BackgroundUrological diseases and their treatment may negatively influence continence, potency, and health-related quality of life (HRQOL). Although current guidelines recommend HRQOL assessment in clinical urology, specific guidance on how to assess HRQOL is frequently absent. We evaluated whether and how urologists assess HRQOL and how they determine its practicality.MethodsA random sample of 4500 (from 5200 identified German urologists) was drawn and invited to participate in a postal survey (an initial letter followed by one reminder after six weeks). The questionnaire included questions on whether and how HRQOL is assessed, general attitudes towards the concept of HRQOL, and socio-demographics. Due to the exploratory character of the study we produced mainly descriptive statistics. Chi2-tests and logistic regression were used for subgroup-analysis.Results1557 urologists (85% male, with a mean age of 49 yrs.) participated. Most of them (87%) considered HRQOL assessment as ‘important’ in daily work, while only 7% reported not assessing HRQOL. Patients with prostate carcinoma, incontinence, pain, and benign prostate hyperplasia were the main target groups for HRQOL assessment. The primary aim of HRQOL assessment was to support treatment decisions, monitor patients, and produce a ‘baseline measurement’. Two-thirds of urologists used questionnaires and interviews to evaluate HRQOL and one-quarter assessed HRQOL by asking: ‘How are you?’. The main barriers to HRQOL assessment were anticipated questionnaire costs (77%), extensive questionnaire length (52%), and complex analysis (51%).ConclusionsThe majority of German urologists assess HRQOL as part of their clinical routine. However, knowledge of HRQOL assessment, analysis, and interpretation seems to be limited in this group. Therefore, urologists may benefit from a targeted education program.Trial registrationThe clinical trial was registered with the code VfD_13_003629 at the German Healthcare Research Registry (www.versorgungsforschung-deutschland.de).

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“…The different opinions may have been caused by the higher complexity of HRQOL assessment for children (including the intricacy of proxy methods) [21, 22]. …”

Section: Discussionmentioning

confidence: 99%

Assessing health-related quality of life in urology – a survey of 4500 German urologists

Schmick¹,

Juergensen²,

Rohde³

et al. 2017

BMC Urol

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“…14 It is generally felt that older children will be able to express their feelings more clearly than younger children but typically as children reach adolescence one of the social outcomes is poorer communication with the adults around them. 25,45 We were not able to fully assess the effect of age in our study, as the older adolescents often attend without their caregiver and hence proxy reports were not available for them.…”

Section: F I G U R E 3 Sex-specific Bland-altman Plots Illustrating Vmentioning

confidence: 99%

“…[20][21][22] Studies have examined agreement between parent-proxy and child reporting of HRQOL with the use of the Pediatric Quality of Life (PedsQL) instrument. 13,16,17,[22][23][24][25][26] The PedsQL has emerged as one of the commonly used generic instruments to assess HRQOL in children and has been validated in most chronic diseases. 13,27 A SCD-specific module (PedsQL-SCD module) has also been developed for use in this particular population of adolescents.…”

Section: Measuring Hrqol: Self-report and Proxy-reportmentioning

confidence: 99%

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Level of agreement between adolescents’ self‐assessment and parent proxy report of health‐related quality of life in adolescents with sickle cell disease

Blake

Guthrie-Dixon²,

Grindley

et al. 2020

Pediatric Blood & Cancer

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Background We aim to assess the levels of agreement between parents, as proxies, and Jamaican adolescents living with sickle cell disease (SCD) in the reporting of the adolescent's quality of life. Procedures This cross‐sectional study assessed 102 patient/proxy pairs on quality of life of adolescents with SCD using the PedsQL‐SCD module. The level of agreement among pairs was assessed starting with broad group‐level approaches (the Wilcoxon signed‐rank test augmented by exploring percentage agreement) tapering to individual‐level approaches (intraclass correlation coefficients [ICCs] supplemented with Bland‐Altman plots). Results Most patients (76.5%) had homozygous SS disease (45.1% females; mean age 15.2 ± 1.5 years). Median total pediatric quality of life (PedsQL) scores were 79.1 (adolescent report) and 80.2 (parental report) (P = .60). There were 11.8% underestimation and 12.7% overestimation of overall health‐related quality of life (HRQOL) by parents. The highest perfect agreement existed on the “pain and hurt” domain for both male and female adolescents (85.7% and 84.4%, respectively). Overestimation was highest on the “social communication” domain for both male and female adolescents (19.6% and 34.8%, respectively). Parents exhibited good agreement on total PedsQL scores in male adolescents (ICC = 0.70), but moderate agreement (ICC = 0.43) in female adolescents. Generally, parents underestimated their male child's functioning and overestimated the female child's functioning on the various domains. Conclusions Parents and adolescents exhibit fair agreement in assessment of the adolescent's overall HRQOL but differ on subjective domains. Agreement varies by sex of the affected teen where girls’ HRQOL is generally overestimated by the parental proxy. Interventions to improve parents’ understanding of their children's psychosocial needs are needed.

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“…However, healthy-weight and overweight youth rated as “too fat” by themselves or their parents had similar HRQOL scores compared to the youth with obesity (Finne, Reinehr, Schaefer, Winkel, & Kolip, 2013). Parents of adolescents with obesity tended to underestimate their child’s HRQOL in most domains compared to the teen’s self-report (Bianchini et al, 2013). Furthermore, while only 53% of parents of preschoolers in a community sample expressed concern about their child’s weight, increased parental concern was associated with poorer physical, psychosocial, and behavioral HRQOL (Wake et al, 2008).…”

Section: Discussionmentioning

confidence: 99%

Health-related quality of life in a community sample of preschool-age children with and without obesity

Simon

Stark

2015

Children's Health Care

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While mothers seeking obesity treatment for preschoolers report poorer child health-related quality of life (HRQOL) than mothers of healthy-weight peers, little is known about this relationship in non-clinical preschoolers. Eighty-six mothers of 3-5-year-olds completed the parent-proxy PedsQL. HRQOL scores for children with obesity and without were compared. No significant differences were found between groups for any PedsQL subscales, nor did differences reach established Minimally Clinically Important Differences. Mothers of preschoolers with obesity from the community did not report poorer HRQOL. If parents do not view their child’s HRQOL as impacted by weight status, they may be unlikely to seek treatments.

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Parent-proxy perception of overweight adolescents' health-related quality of life is different according to adolescent gender and age and parent gender

Abstract: The differences between self-report of overweight adolescent and perceptions of their parents about the HRQoL of their children are influenced by adolescent gender and age and parent gender.

Cited by 15 publications

References 42 publications

Assessing health-related quality of life in urology – a survey of 4500 German urologists

Assessing health-related quality of life in urology – a survey of 4500 German urologists

Level of agreement between adolescents’ self‐assessment and parent proxy report of health‐related quality of life in adolescents with sickle cell disease

Health-related quality of life in a community sample of preschool-age children with and without obesity

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