Palliative Care in Patients With Primary Cutaneous Lymphoma: Symptom Burden and Characteristics of Hospital Palliative Care Team Input

“Knock Me Out”: The Challenges of Managing Pain Due to Cutaneous T Cell Lymphomas: A Case Report

“…For patients with CTCL, pain is a common reason for palliative care consultation, as it is present in 41% of people with the diagnosis, and is more likely to be reported in advanced disease or during dressing changes. [4][5][6] While other case reports have been published on the management of CTCL 7 and mogamulizumab-induced mucocutaneous lichenoid reaction, 8 none has primarily focused on the complicated management of CTCL pain. This case report exemplifies the devastating effects of pain related to CTCL and the myriad challenges in managing such pain.…”

What are the supportive and palliative care needs of patients with cutaneous T-cell lymphoma and their caregivers? A systematic review of the evidence

“…27,37 Our clinical experience is that pain may be linked to dressing changes, may be called 'soreness' rather than pain, and may be more significant later in the disease, which may explain the high prevalence of pain reported by a palliative care service. The most commonly reported physical symptom was pruritus, which was seen as a significant symptom to both patients and clinicians.…”

“…Pain was reported less often, possibly because it is not a significant problem or because it is not always asked about. 27,37 Our clinical experience is that pain may be linked to dressing changes, may be called 'soreness' rather than pain, and may be more significant later in the disease, which may explain the high prevalence of pain reported by a palliative care service. 37 Physical symptoms, in particular pruritus, frequently improved with disease-directed treatment.…”

“…27,37 Our clinical experience is that pain may be linked to dressing changes, may be called 'soreness' rather than pain, and may be more significant later in the disease, which may explain the high prevalence of pain reported by a palliative care service. 37 Physical symptoms, in particular pruritus, frequently improved with disease-directed treatment. Psychosocial needs were reported less commonly; although there is evidence that these domains are of importance to patients, only one paper suggests an intervention that specifically addressed this area.…”

S2k‐Guidelines – Cutaneous lymphomas (ICD10 C82 ‐ C86): Update 2021

“…The correlation of symptom improvement with treatment success cannot be uniformly evaluated. There are some indications of special features in the palliative evaluation of patients with cutaneous lymphoma within the overall cohort of palliative patients [134].…”