Pain Management Programmes for Non‐English‐Speaking Black and Minority Ethnic Groups With Long‐Term or Chronic Pain

Burton, Amy; Shaw, Rachel

doi:10.1002/msc.1099

Cited by 14 publications

(19 citation statements)

References 24 publications

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“…Finally, given that cultural and sociodemographic factors influence pain perception, research must be broadened to countries that differ in these aspects, since most studies have been conducted in European or English‐speaking countries and do not reflect a universal phenomenon. Most of the studies do not report ethnic or race data .…”

Section: Discussionmentioning

confidence: 99%

“…Only 16.7% of these studies report ethnicity other than Caucasian (of these, 2 studies report 98% Caucasian participants). This is relevant, given that 1 sociocultural factor studied extensively is ethnicity . For instance, African Americans demonstrated lower pain tolerance in experimental scenarios .…”

Section: Discussionmentioning

confidence: 99%

“…For example, individuals who are in the process of adapting to a new culture (ie, acculturation) tend to have heightened pain responses . In addition, research consistently suggests that the severity and impact of pain are greatest among minorities who experience chronic pain . Furthermore, members of minority groups have a lower socioeconomic status, which has been associated with an increase in the prevalence of pain and more intense pain .…”

Section: Discussionmentioning

confidence: 99%

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Pain and Distraction According to Sensory Modalities: Current Findings and Future Directions

et al. 2019

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Background: This review discusses the findings in the literature on pain and distraction tasks according to their sensory modality. Distraction tasks have been shown to reduce (experimentally induced) acute pain and chronic pain. This can be influenced by nature and by the sensory modalities used in the distraction tasks. Yet the effect on reducing pain according to the sensory modality of the distraction task has received little attention. Methods: A bibliographic search was performed in different databases. The studies will be systematized according to the sensory modality in which the distraction task was applied.Results: The analyzed studies with auditory distractors showed a reduction of acute pain in adults. However, these are not effective at healthy children and in adults with chronic pain. Visual distractors showed promising results in acute pain in adults and children. Similarly, tactile and mixed distractors decreased acute pain in adults. Conclusion: Distraction tasks by diverse sensory modalities have a positive effect on decreasing the perception of acute pain in adults. Future studies are necessary given the paucity of research on this topic, particularly with tactile distractors (there is only one study). Finally, the most rigorous methodology and the use of ecological contexts are encouraged in future research. &

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Pain and Distraction According to Sensory Modalities: Current Findings and Future Directions

et al. 2019

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“…Once positioned, the healthcare provider was able to explore meanings underpinning disk placement. Herein lies the clinical utility of the PRISM+ as a non-confrontational means for enquiring about cultural and religious values [6, 64].…”

Section: Discussionmentioning

confidence: 99%

Recognising ethnocultural diversity in chronic pain assessment: validation of the Pictorial Representation of Illness and Self Measure (PRISM) for use with culturally diverse communities

Brady

Veljanova

Andary

et al. 2019

Health Qual Life Outcomes

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Background A comprehensive and accurate assessment of pain is critical for successful pain management. However, there is a lack of reliable and valid assessment tools for exploring multidimensional aspects of the chronic pain experience in culturally and linguistically diverse communities. This study investigates the reliability and validity of the Pictorial Representation of Illness and Self Measure + (PRISM+) for evaluating pain-related suffering and the sociocultural context of chronic pain within culturally and linguistically diverse patient cohorts. Method Three prospective validation studies are reported for three culturally and linguistically diverse communities. Two hundred and fifty-one patients with chronic pain who self-identified as Assyrian ( n = 85), Arabic ( n = 83) or Vietnamese ( n = 83) completed a PRISM+ assessment, alongside a battery of standardised pain assessments. To evaluate construct validity, the position of the ‘pain’ disk placement was correlated with the Brief Pain Inventory (BPI), Depression Anxiety and Stress Scale (DASS), and the Short-Form 36 Health Survey (SF-36). For content validity, thematic analysis of patient narratives accompanying each disk placement was conducted. Test-retest reliability of repeated ‘pain’ and five additional disks (PRISM+) values was analysed using intra-class correlation coefficients. Results The PRISM pain assessment demonstrated moderate to good test-retest reliability for Arabic (ICC 0.76; 95% CI 0.65–0.84), Assyrian (ICC 0.65; 95% CI 0.50–0.76) and Vietnamese (ICC 0.82; 95% CI 0.73–0.88) patients. Moderate correlations between the PRISM ‘pain’ disk and sub-scores for the BPI, DASS and SF-36 were found ( p < 0.001). Patient interpretations of the ‘pain’ disk aligned with accepted definitions of suffering, supporting content validity for PRISM. For the additional disks (PRISM+), moderate to good test-retest reliability (ICC 0.67–0.88) was observed and qualitative analysis highlighted each disk reflected social and cultural values. Conclusion The PRISM demonstrates acceptable psychometric properties for measuring pain-related suffering for participants with chronic pain across three culturally and linguistically diverse communities. The use of additional disks (PRISM+) presents a reliable and valid option for exploring social and cultural dimensions of chronic pain in clinical encounters. Electronic supplementary material The online version of this article (10.1186/s12955-019-1126-9) contains supplementary material, which is available to authorized users.

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“…In line with this, the British Pain Society recommends these programmes for the management of chronic pain (British Pain Society, ). However, PMPs are traditionally developed based on the experiences of, and outcomes for, white, Western, English‐speaking patients, and little is known about their suitability and effectiveness for other ethnic and cultural groups (Burton & Shaw, ).…”

Section: Introductionmentioning

confidence: 99%

Exploring thoughts about pain and pain management: Interviews with South Asian community members in the UK

Burton

Hissey

Milgate

2019

Musculoskeletal Care

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Objective This research sought to explore the pain management beliefs of members of the South Asian community living in the UK. In particular, their understanding of the key components of cognitive behavioural therapy (CBT) informed pain management programmes (PMPs) was explored. Methods Snowball sampling was used to recruit 10 participants from a South Asian background for interview. Interviews were guided by a semi‐structured interview schedule and explored pain history, specific pain experiences, community member expressions of, and reactions to, pain, treatment expectations and perceptions of self‐management. Interviews were transcribed verbatim and subjected to descriptive thematic analysis. Results Four themes were developed: impacts of chronic pain, within‐group variations in responses to chronic pain, personal responsibility vs. paternalistic care, and the acceptability of pain management concepts (relaxation and meditation, exercise and physical activity, and thoughts and beliefs: the dangers of pain healers). Conclusions This work highlights how discourses around the impacts of chronic pain; beliefs about, and preferences for, approaches to care; and the acceptability of pain management concepts fit with existing PMP content. Recommendations are made regarding opportunities for social prescribing; consideration of the incorporation of acceptable forms of physical activity, including yoga and walking, within PMPs; and the potential benefit of highlighting role models and creating social opportunities for these activities. Some beliefs and practices in this area are under‐researched, and further work that explores gender and generational differences in pain perceptions, and the potential dangers of the use of pain healers is needed.

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Pain Management Programmes for Non‐English‐Speaking Black and Minority Ethnic Groups With Long‐Term or Chronic Pain

Cited by 14 publications

References 24 publications

Pain and Distraction According to Sensory Modalities: Current Findings and Future Directions

Pain and Distraction According to Sensory Modalities: Current Findings and Future Directions

Recognising ethnocultural diversity in chronic pain assessment: validation of the Pictorial Representation of Illness and Self Measure (PRISM) for use with culturally diverse communities

Exploring thoughts about pain and pain management: Interviews with South Asian community members in the UK

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