Online interaction. Effects of storytelling in an internet breast cancer support group

Høybye, Mette Terp; Johansen, Christoffer; Tjørnhøj‐Thomsen, Tine

doi:10.1002/pon.837

Cited by 261 publications

(137 citation statements)

References 31 publications

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“…Sharing experiences with similar others has been reported to reduce feelings of isolation and uncertainty regarding prognosis and ambiguous painful symptoms 18 , to validate concerns ignored by health professionals 9 , and to enable cancer patients to become better informed about their condition and to formulate questions for their health professionals 19 . In addition, numerous psychosocial benefits are gained from helping others 9,18,19 .…”

Section: 11mentioning

confidence: 99%

Supporting Cancer Patients through the Continuum of Care: A View from the Age of Social Networks and Computer-Mediated Communication

Bender¹,

O’Grady²,

Jadad³

2008

Current Oncology

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Almost since its inception, the Internet has been used by ordinary people to connect with peers and to exchange health-related information and support. With the rapid development of software applications deliberately designed to facilitate social interaction, a new era is dawning in which patients and their loved ones can collaboratively build knowledge related to coping with illness, while meeting their mutual supportive care needs in a timely way, regardless of location. In this article, we provide background information on the use of "one-to-one" (for example, e-mail), "one-to-many" (for example, e-mail lists), and "many-to-many" (for example, message boards and chat rooms, and more recently, applications associated with Web 2.0) computer-mediated communication to nurture health-related social networks and online supportive care. We also discuss research that has investigated the use of social networks by patients, highlight opportunities for health professionals in this area, and describe new advances that are fuelling this new era of collaboration in the management of cancer.

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Section: 11mentioning

confidence: 99%

Supporting Cancer Patients through the Continuum of Care: A View from the Age of Social Networks and Computer-Mediated Communication

Bender¹,

O’Grady²,

Jadad³

2008

Current Oncology

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“…Although there is limited empirical evidence concerning their effects [7], numerous descriptive studies indicate that online communities have empowering benefits. Such groups have been shown to provide breast cancer survivor reassurance, a sense of community and hope for the future, reduce feelings of stress and uncertainty, validate concerns ignored by health-care professionals, enable breast cancer survivors to become better informed and able to manage their condition, and prepare breast cancer survivors for their interactions with the health-care professionals [8][9][10][11][12][13].…”

Section: Introductionmentioning

confidence: 99%

Online communities for breast cancer survivors: a review and analysis of their characteristics and levels of use

Bender

Jimenez-Marroquin

Ferris

et al. 2012

Support Care Cancer

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Purpose Online communities have been heralded as one of the most promising health resources on the Internet. The purpose of this study was to identify the characteristics and levels of use of online communities for breast cancer survivors. Methods Using Google, we identified websites with a string of computer-mediated communication terms and individual queries of three to five words of online community terms. This was complemented by a review of website resource lists and personal libraries. Two reviewers independently extracted information on their general characteristics and number of members and message board posts. A coding scheme guided content analysis. Results We found 111 websites. Most sites (n064, 65.8 %) had a broad focus (e.g., health, cancer, or general). One third (n038, 34.2 %) were exclusive to breast cancer and 11 catered to specific disease characteristics. The majority were American (n079, 75.2 %), nonprofit (55.0 %), and moderated (69.5 %). Most moderators (85.7 %) were staff or community members; eight sites were moderated by health professionals. Greater than one-third of sites (n040, 36 %) were initiated by breast cancer survivors or loved ones. Breast cancer-specific sites contained a total of 4,186,275 posts. One-third (n010) contained 93.4 % of posts, displaying over 100,000 posts each. As of April 3, 2012, eight sites were discontinued. Conclusions There is a wide range of online communities available for breast cancer survivors with extensive archives of personal illness experiences. Future efforts should focus on identifying the factors that determine their success and effectiveness.

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“…These advantages that are apparent to users can be even higher in some groups (Finn, 1999;Fogel, Albert, Schnabel, Ditkoff & Neugut, 2002;Hoybye, Johansen & Tjornhoj-Thomsen, 2005;Wilson, Grizzle, Tuazon, Akyempong & Cheung, 2011), such as young people with disabilities (Pallanti, Bernardi, & Quercioli, 2006;Suriá, 2012), especially those with reduced mobility as a result of a motor disability.…”

mentioning

confidence: 99%

“…Similarly, certain physical conditions such as stigmatizing diseases (Hoybye et al, 2005) or disabilities (Finn, 1999), could influence the excessive Internet use.…”

mentioning

confidence: 99%

La discapacidad en los jóvenes, ¿potencia el riesgo del uso excesivo de internet?

Martínez

2015

HAAJ

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ResumenWhile the Internet has become a channel that promotes access to information and communication, its misuse and overuse can cause various personal and social problems. Analyses indicated that participants with disabilities, mainly the ones with motor disability showed an increased use and dependence on technology.Although this suggests the importance for young people with disabilities of the Internet use, it also indicates that disability, especially motor disability may be a vulnerability factor for an abusive use. Keywords: adolescent, disability, internet, social networks, addiction.Al tiempo que Internet se ha convertido en un canal que fomenta el acceso a la información y comunicación, su uso indebido y excesivo puede provocar distintos problemas personales y sociales.En este trabajo se compara si existe un uso abusivo deInternet entre jóvenes con y sin discapacidad. Asimismo se comprueba si la tipología de la discapacidad puede influir en el uso excesivo de Internet.Participaron 230 jóvenes (102 sin discapacidad y 128 con discapacidad, 77 con discapacidad motora y 51 con discapacidad sensorial). Contestaron el cuestionario "Experiencias Relacionadas con Internet", diseñado para medir la adicción a internet. Éste se difundió a través de la red durante 16 semanas.Los análisis indicaron que los participantes con discapacidad, principalmente con discapacidad motora mostraron un mayor uso y dependencia de esta tecnología.Aunque esto sugiere la importancia que tienen para los jóvenes con discapacidad la utilización de Internet, también indica que la discapacidad, especialmente la discapacidad motora puede ser un factor de vulnerabilidad para utilizarlo de forma abusiva.

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Online interaction. Effects of storytelling in an internet breast cancer support group

Cited by 261 publications

References 31 publications

Supporting Cancer Patients through the Continuum of Care: A View from the Age of Social Networks and Computer-Mediated Communication

Supporting Cancer Patients through the Continuum of Care: A View from the Age of Social Networks and Computer-Mediated Communication

Online communities for breast cancer survivors: a review and analysis of their characteristics and levels of use

La discapacidad en los jóvenes, ¿potencia el riesgo del uso excesivo de internet?

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