Online Groups and Patient Forums

Dosani, Sabina; Harding, Claire; Wilson, Simon

doi:10.1007/s11920-014-0507-3

Cited by 37 publications

(22 citation statements)

References 6 publications

(7 reference statements)

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“…Subsequently, it was estimated that Big White Wall compared with traditional therapy created savings to mental healthcare costs of £36,935 per 100 members [ 40 ]. Dosani et al [ 41 ] published their observations of the use of Big White Wall in Wandsworth, London. They noted that support from others with similar experiences through online support networks and access to online therapy with flexible times improves coping and adaption skills of users, and changes their mental health for the better.…”

Section: Resultsmentioning

confidence: 99%

A review of web-based support systems for students in higher education

Παπαδάτου-Παστού

Goozée

Payne

et al. 2017

Int J Ment Health Syst

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BackgroundRecent evidence suggests that there is an increasing need for accessible and anonymous services to support higher education (HE) students suffering from psychological and/or academic difficulties. Such difficulties can lead to several negative outcomes, including poor academic performance, sub-optimal mental health, reduced study satisfaction, and dropout from study. Currently, universities in the UK lack financial resources and the on-campus mental health services traditionally offered to students are increasingly economically unsustainable. Compounded by the perceived stigma of using such services, mental health providers have been driven to address the escalating needs of students through online services.MethodsIn this paper, we review online support systems identified through a literature search and a manual search of references in the identified papers. Further systems were identified through web searches, and systems still in development were identified by consultation with researchers in the field. We accessed systems online to extract relevant information, regarding the main difficulties addressed by the systems, the psychological techniques used and any relevant research evidence to support their effectiveness.ConclusionA large number of web-based support systems have been developed to support mental health and wellbeing, although few specifically target HE students. Further research is necessary to establish the effectiveness of such interventions in providing a cost-effective alternative to face-to-face therapy, particularly in certain settings such as HE institutions.

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Section: Resultsmentioning

confidence: 99%

A review of web-based support systems for students in higher education

Παπαδάτου-Παστού

Goozée

Payne

et al. 2017

Int J Ment Health Syst

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“…In spite of both the success of the reconceptualization of patients as partners of the health care professionals (Michie & Williams, 2003;Ostrom et al, 2010 andMirzaei et al, 2013) and the importance attached to value co-creation in the health care service system (Ostrom, 2010), it could be assumed that a real patient involvement is yet to come (Wilson, et al, 2017). In fact, patient involvement is prevented by a prevailing bio -medical approach to care, which considers the patient a passive target of medical services and information (Berry and Bendapudi, 2007;Payne et al, 2008;Coulter, 2012).…”

Section: The Evolving Health Care Arenamentioning

confidence: 99%

“…In fact, patients -who populate the micro-level of the service ecosystem -are likely to use digital tools as a medium, that makes them able to share their knowledge and participate to value co -creation (or value co-destruction) processes (van der Eijk, et al, 2013). The sharing of knowledge can also occur in other dedicated social networks, where patients look for new and more specific information, reporting what they find and contributing to improve both personal and common resources (Dosani et al, 2014).…”

Section: The Conceptual Evolution Of S-dlmentioning

confidence: 99%

Value Co-creation in the Health Service Ecosystems: The Enabling Role of Institutional Arrangements

Ciasullo¹,

Cosimato²,

Palumbo³

et al. 2017

IBR

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The health care service system is currently undergoing a profound revolution that has put the patient at the core of health outcome co-creation. Patient-centered care could be associated with Service Dominant Logic that looks at co-creation process as a dynamic resources' integration between actors. From this standpoint, the need for a broader vision of value creation process towards a service ecosystem perspective is emerging. This paper includes an overview of the scientific literature and reports on a narrative case study analysis concerning the "International Consortium for Health Outcomes Measurement" in an attempt to nourish the debate on the different ways that multiple actors can collaboratively shape a health service ecosystem. Findings reveal that co-creation practices, involving multiple actors who belong to different ecosystem levels, led to mutual adjustments and to on-going shared changes. These processes directly influenced health outcome creation, which is reframed in light of patients' needs, expectations, and experiences. Therefore, patients are assuming the role of health outcome "co-creator", interacting with all other ecosystems actors (e.g. physicians, institutions, NGO s , health managers, ICTs providers etc.). This study represents a first and preliminary attempt to investigate a real example of dynamic resources' exchange, based on the contribution of multiple interacting actors and on the role of interdepend and interacting institutions in value practices.

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“…Internet support groups (ISGs) are accessible and popular ( Dosani et al, 2014 , Fox and Duggan, 2013 , Parikh and Huniewicz, 2015 ) and have the potential to provide valued social support to individuals with depression and other common mental disorders ( Barak et al, 2008 , Griffiths et al, 2015 ). While there is uncertainty regarding the effectiveness and safety of ISGs ( Eysenbach et al, 2004 , Griffiths et al, 2009a , Hoybye et al, 2010 , Parikh and Huniewicz, 2015 , Rice et al, 2014 , Takahashi et al, 2009 ), recent high quality evidence suggests that such support groups may improve mental health outcomes (e.g., ( Griffiths et al, 2012 , Ali et al, 2015 )) and increase users' sense of empowerment ( Crisp et al, 2014 ), self-esteem ( Crisp et al, 2014 ) and perceived quality of life ( Crisp et al, 2014 ).…”

Section: Introductionmentioning

confidence: 99%

“…There is some evidence that the predominant users of depression support groups are consumers ( Houston et al, 2002 , Powell et al, 2003 , Salem et al, 1997 , Alexander et al, 2003 , Nimrod, 2012 ) who are primarily in their mid-20s to 40s ( Dosani et al, 2014 , Houston et al, 2002 , Nimrod, 2012 , Powell et al, 2003 ); there is mixed evidence regarding gender of users ( Dosani et al, 2014 , Fekete, 2002 , Houston et al, 2002 , Nimrod, 2012 , Powell et al, 2003 , Salem et al, 1997 , Takahashi et al, 2009 ). However as noted by Griffiths et al (2009b) , a limitation of most previous studies of public depression support groups is that they have been derived from surveys posted on ISGs or by inferring the users' status from posts.…”

Section: Introductionmentioning

confidence: 99%

User characteristics and usage of an open access moderated internet support group for depression and other mental disorders: A prospective study

Griffiths

Carron‐Arthur

Reynolds

et al. 2017

Internet Interventions

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BackgroundInternet support groups (ISGs) for mental ill-health are common but little is known about the characteristics of users, the usage and predictors of ISG usage and if and how these change over time.AimThis study evaluated the attributes of a publically accessible ISG for depression and other mental disorders including: (1) the demographic and other characteristics of its users; (2) their patterns of usage; and (3) the factors which predict posts to and retention on the ISG.MethodUser characteristics (gender, age, user type, country and location of residence) were collected at the time of registration on the ISG BlueBoard (blueboard.anu.edu.au). All board log data were downloaded for the period October 2008 to May 2014. Predictors of post frequency and retention on the board were examined using logistic regressions. Other data were analysed using descriptive statistics.Results2932 users contributed 131,004 posts to the ISG. The majority were female, aged 20 to 34 years, and mental health consumers. Although most users were city dwellers, 19% resided in rural or remote regions. Frequency of posts and retention on the board varied across users, with a moderate association between retention and number of posts. Growth in posts substantially exceeded the growth in new users over the monitoring period. Multivariate analysis demonstrated that consumers posted more often and remained longer than carers or others, and that younger users posted less often; however, the model predicted very little of the variance.ConclusionsA small minority of active users are sufficient to ensure the sustainability and growth of an online mental health ISG. Further research is required to understand why so many support group members limit their contributions to one or a very small number of posts and what factors predict and promote active engagement and long-term retention in virtual mental health communities.

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Online Groups and Patient Forums

Cited by 37 publications

References 6 publications

A review of web-based support systems for students in higher education

A review of web-based support systems for students in higher education

Value Co-creation in the Health Service Ecosystems: The Enabling Role of Institutional Arrangements

User characteristics and usage of an open access moderated internet support group for depression and other mental disorders: A prospective study

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