One million and counting: the hidden army of young carers in Canada

Stamatopoulos, Vivian

doi:10.1080/13676261.2014.992329

Cited by 59 publications

(77 citation statements)

References 9 publications

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“…We also showed that young carers are present not only in single parent families (12) but also in families with two parents (13). These findings are in line with international research (McDonald, Cumming, & Dew, ; Moore & McArthur, ; Nagl‐Cupal, Daniel, Kainbacher, Koller, & Mayer, ; Smyth, Blaxland, & Cass, ; Stamatopoulos, ) and show the broad circumstances of young carers and young adult carers.…”

Section: Discussionsupporting

confidence: 89%

“…Although there is a general recognition that many relatives provide unpaid care for an ill family member, there is still little awareness, especially in Switzerland, that children and young people also provide such care (Leu & Becker, ; Leu & Frech, ; Leu Jung, & Frech, ). These “young carers”, as they are referred to in international research, continue to represent a “hidden army” of recipients of healthcare and welfare (Banks et al, ; Becker, ; Becker & Leu, ; Hill, Smyth, Thomson, & Cass, ; Stamatopoulos, ). Research from Australia and the UK, for example, provides an opportunity to compare the living situations of children and adolescents who consider themselves to be young carers with those who do not declare a caring role but live with a person in need of assistance.…”

Section: Introductionmentioning

confidence: 99%

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Young carers and young adult carers in Switzerland: Caring roles, ways into care and the meaning of communication

Leu

Frech

Jung

2018

Health Soc Care Community

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Although there is already general recognition of the fact that many relatives provide unpaid care for family members, there is still little awareness that children, adolescents and young adults under 25 also provide such care. Until recently, the situation of young carers and young adult carers, as those young persons are referred to in international research, has not been in the focus of professionals, research and the public in Switzerland. Between September 2015 and October 2016, 30 interviews in seven cantons were conducted with 16 young carers aged 10-17 and 14 young adult carers aged 18-25. The interviews were recorded, transcribed and analysed following a grounded theory approach. This paper now presents the first qualitative data on Swiss young carers and young adult carers. It explores their sociodemographic backgrounds, the nature and intensity of caring tasks they carry out, their pathways into caring as well as the role of communication with family members, extended family, professionals and peers. Our findings provide a first insight in the lives of young carers and young adult carers in Switzerland and illustrate, as well, the challenges they face.

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Section: Discussionsupporting

confidence: 89%

Section: Introductionmentioning

confidence: 99%

Young carers and young adult carers in Switzerland: Caring roles, ways into care and the meaning of communication

Leu

Frech

Jung

2018

Health Soc Care Community

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“…At present, there are few large‐scale surveys which provide information on the actual numbers of young carers (Lloyd, ; Nagl‐Cupal and others, ; Stamatopoulos, ). Those that have been conducted show, that in industrialised states, on average, at least 2–4, sometimes up to 8 or more per cent of all children and adolescents under 18 years have caring roles; and in the age group of 18‐ to 25‐year‐olds the figure is higher.…”

Section: Introductionmentioning

confidence: 99%

Counting Young Carers in Switzerland – A Study of Prevalence

et al. 2018

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An online survey of children in school grades 4–9 (mostly aged 10–15) was conducted in order to determine the prevalence of young carers in Switzerland using a 2‐stage stratified sampling approach. 4082 respondents were drawn from 230 schools. A total of 3991 respondents were included in the analysis and of these 307 (7.7%) were identified as young carers. The population estimate of prevalence was 7.9 per cent. This suggests that there are around 38 400 young carers in school grades 4–9 in Switzerland. Extrapolating to the 9–16 age group gives a figure of almost 51 500.

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“…NAGL-CUPAL ANd HAUPRICH Only a few countries have gathered data on the prevalence of caring among children and adolescents (Australian Bureau of Statistics, 2003;Hunt et al, 2005, Office for National Statistics, 2013Stamatopoulos, 2015a). An Austrian study suggests a rate of 3.5% young carers with an average age of 12.5 years and a majority of female young carers (Nagl-Cupal, Daniel, Koller, & Mayer, 2014).…”

Section: E533mentioning

confidence: 99%

Being we and being me: Exploring the needs of Austrian families with caring children

Nagl‐Cupal

Hauprich

2018

Health Soc Care Community

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Children and adolescents with caring responsibilities are an uncontested reality in our society. Most are hidden from public view, and they perform a broad range of caring activities for chronically ill or disabled family members. The research literature has accumulated a comprehensive body of knowledge about young carers' personal needs. However, knowledge and understanding are limited regarding the needs of young carers' families. This knowledge can contribute to preventing children and adolescents from assuming inappropriate caring roles. A qualitative research approach was used to investigate the needs of young carers' families in terms of managing daily caring demands. Nine family interviews were conducted with 34 individuals including 15 young carers during spring/summer 2015 in eastern Austria. Open and axial coding procedures and constant comparison method were used to analyse the data. The findings revealed that young carers' families need to live in accordance with their inherent family logic. Family logic is generated and maintained via (i) family reciprocity that involves the natural help within the family, (ii) individual developmental space that allows family members to be perceived and act as individuals and (iii) network cooperation that offers formal and informal support and recognition from society in general. The findings contribute to understanding how families with caring children manage the caring demands of their everyday lives. The findings also indicate that formal support for families with young carers should consider the individuality of caring arrangements with respect to the holistic and personal needs and avoid stigmatising families that integrate children into caring.

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One million and counting: the hidden army of young carers in Canada

Cited by 59 publications

References 9 publications

Young carers and young adult carers in Switzerland: Caring roles, ways into care and the meaning of communication

Young carers and young adult carers in Switzerland: Caring roles, ways into care and the meaning of communication

Counting Young Carers in Switzerland – A Study of Prevalence

Being we and being me: Exploring the needs of Austrian families with caring children

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