O1‐07‐03: Some highlights of the Australian Dementia Outcomes Measurement Suite (DOMS) project: Social isolation

Sansoni, Janet; Marosszeky, Nick; Hawthorne, Graeme; Sansoni, Emily

doi:10.1016/j.jalz.2009.05.234

Cited by 10 publications

(13 citation statements)

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“…The limited examination of the general concept of social isolation as a multidimensional construct might be a result of the lack of an appropriate scale. Sansoni et al [ 61 ] found the following 4 instruments of social isolation to be the leading ones in the literature: the Lubben Social Network Scale [ 62 - 64 ], the de Jong-Gierveld Loneliness Scale [ 55 - 56 ], the Medical Outcomes Study Social Support Survey [ 65 ], and the Multidimensional Scale of Perceived Social Support [ 66 ]. These instruments are clearly designed for measuring particular aspects rather than the overall concept of social isolation.…”

Section: Discussionmentioning

confidence: 99%

The Effect of Information Communication Technology Interventions on Reducing Social Isolation in the Elderly: A Systematic Review

Chen¹,

Schulz²

2016

J Med Internet Res

621

533

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BackgroundThe aging of the population is an inexorable change that challenges governments and societies in every developed country. Based on clinical and empirical data, social isolation is found to be prevalent among elderly people, and it has negative consequences on the elderly’s psychological and physical health. Targeting social isolation has become a focus area for policy and practice. Evidence indicates that contemporary information and communication technologies (ICT) have the potential to prevent or reduce the social isolation of elderly people via various mechanisms.ObjectiveThis systematic review explored the effects of ICT interventions on reducing social isolation of the elderly.MethodsRelevant electronic databases (PsycINFO, PubMed, MEDLINE, EBSCO, SSCI, Communication Studies: a SAGE Full-Text Collection, Communication & Mass Media Complete, Association for Computing Machinery (ACM) Digital Library, and IEEE Xplore) were systematically searched using a unified strategy to identify quantitative and qualitative studies on the effectiveness of ICT-mediated social isolation interventions for elderly people published in English between 2002 and 2015. Narrative synthesis was performed to interpret the results of the identified studies, and their quality was also appraised.ResultsTwenty-five publications were included in the review. Four of them were evaluated as rigorous research. Most studies measured the effectiveness of ICT by measuring specific dimensions rather than social isolation in general. ICT use was consistently found to affect social support, social connectedness, and social isolation in general positively. The results for loneliness were inconclusive. Even though most were positive, some studies found a nonsignificant or negative impact. More importantly, the positive effect of ICT use on social connectedness and social support seemed to be short-term and did not last for more than six months after the intervention. The results for self-esteem and control over one’s life were consistent but generally nonsignificant. ICT was found to alleviate the elderly’s social isolation through four mechanisms: connecting to the outside world, gaining social support, engaging in activities of interests, and boosting self-confidence.ConclusionsMore well-designed studies that contain a minimum risk of research bias are needed to draw conclusions on the effectiveness of ICT interventions for elderly people in reducing their perceived social isolation as a multidimensional concept. The results of this review suggest that ICT could be an effective tool to tackle social isolation among the elderly. However, it is not suitable for every senior alike. Future research should identify who among elderly people can most benefit from ICT use in reducing social isolation. Research on other types of ICT (eg, mobile phone–based instant messaging apps) should be conducted to promote understanding and practice of ICT-based social-isolation interventions for elderly people.

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Section: Discussionmentioning

confidence: 99%

The Effect of Information Communication Technology Interventions on Reducing Social Isolation in the Elderly: A Systematic Review

Chen¹,

Schulz²

2016

J Med Internet Res

621

533

View full text Add to dashboard Cite

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“…Three four‐item subscales correspond to different sources of PSS: family , friends , and significant other . The MSPSS shows high internal consistency, reliability, and overall high test‐retest reliability [Sansoni, Marosszeky, Sansoni, & Fleming, ].…”

Section: Methodsmentioning

confidence: 99%

Perceived social support in adults with autism spectrum disorder and attention‐deficit/hyperactivity disorder

et al. 2017

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Perceived social support (PSS) has been related to physical and mental well-being in typically developing individuals, but systematic characterizations of PSS in autism spectrum disorder (ASD) are limited. We compared self-report ratings of the multidimensional scale of PSS (MSPSS) among age- and IQ-matched groups of adults (18-58 years) with cognitively high-functioning ASD (N = 41), or attention-deficit/hyperactivity disorder (ADHD; N = 69), and neurotypical controls (NC; N = 69). Accompanying group comparisons, we used machine learning random forest (RF) analyses to explore predictors among a range of psychopathological and socio-emotional variables. Relative to both ADHD and NC, adults with ASD showed lower MSPSS ratings, specifically for the friends subscale (MSPSS-f). Across ASD and ADHD, interindividual differences in autism severity, affective empathy, symptoms of anxiety related to social interactions, hyperactivity/impulsivity, and somatization best predicted MSPSS-f. These relationships did not differ between clinical groups. While group comparisons demonstrated greater impairment in individuals with ASD, analyzing individuals' characteristics revealed cross-diagnoses similarities in regard to their MSPSS-f relationships. This is consistent with the Research Domain Criteria framework, supporting a trans-diagnostic approach as on the path toward "precision medicine." Autism Res 2017, 10: 866-877. © 2017 International Society for Autism Research, Wiley Periodicals, Inc.

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“…452 It has also been translated into Italian, Greek, Japanese, Korean, Mexican, Polish, Spanish and Dutch. 176,237 The measures included that only assess the severity of symptoms are:…”

Section: Measure Of Individual Neuropsychiatric Symptomsmentioning

confidence: 99%

“…It measures frequency but not severity, and has been translated into French and Spanish. 176 l Dysfunctional Behaviour Rating Instrument -only measures frequency.…”

Section: Measure Of Individual Neuropsychiatric Symptomsmentioning

confidence: 99%

Development of a core outcome set for disease modification trials in mild to moderate dementia: a systematic review, patient and public consultation and consensus recommendations

Webster

Groskreutz

Grinbergs-Saull

et al. 2017

Health Technol Assess

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Background: There is currently no disease-modifying treatment available to halt or delay the progression of the disease pathology in dementia. An agreed core set of the best-available and most appropriate outcomes for disease modification would facilitate the design of trials and ensure consistency across disease modification trials, as well as making results comparable and meta-analysable in future trials. Objectives: To agree a set of core outcomes for disease modification trials for mild to moderate dementia with the UK dementia research community and patient and public involvement (PPI). Data sources: We included disease modification trials with quantitative outcomes of efficacy from (1) references from related systematic reviews in workstream 1; (2) searches of the Cochrane Dementia and Cognitive Improvement Group study register, Cochrane Central Register of Controlled Trials, Cumulative Index to Nursing and Allied Health Literature, EMBASE, Latin American and Caribbean Health Sciences Literature and PsycINFO on 11 December 2015, and clinical trial registries [International Standard Randomised Controlled Trial Number (ISRCTN) and clinicaltrials.gov] on 22 and 29 January 2016; and (3) hand-searches of reference lists of relevant systematic reviews from database searches. Review methods: The project consisted of four workstreams. (1) We obtained related core outcome sets and work from co-applicants. (2) We systematically reviewed published and ongoing disease modification trials to identify the outcomes used in different domains. We extracted outcomes used in each trial, recording how many used each outcome and with how many participants. We divided outcomes into the domains measured and searched for validation data. (3) We consulted with PPI participants about recommended outcomes. (4) We presented all the synthesised information at a conference attended by the wider body of National Institute for Health Research (NIHR) dementia researchers to reach consensus on a core set of outcomes. Results: We included 149 papers from the 22,918 papers screened, referring to 125 individual trials. Eighty-one outcomes were used across trials, including 72 scales [31 cognitive, 12 activities of daily living (ADLs), 10 global, 16 neuropsychiatric and three quality of life] and nine biological techniques. We consulted with 18 people for PPI. The conference decided that only cognition and biological markers are core measures of disease modification. Cognition should be measured by the Mini Mental State Examination (MMSE) or the Alzheimer’s Disease Assessment Scale – Cognitive subscale (ADAS-Cog), and brain changes through structural magnetic resonance imaging (MRI) in a subset of participants. All other domains are important but not core. We recommend using the Neuropsychiatric Inventory for neuropsychiatric symptoms: the Disability Assessment for Dementia for ADLs, the Dementia Quality of Life Measure for quality of life and the Clinical Dementia Rating scale to measure dementia globally. Limitations: Most of the trials inclu...

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O1‐07‐03: Some highlights of the Australian Dementia Outcomes Measurement Suite (DOMS) project: Social isolation

Cited by 10 publications

References 0 publications

The Effect of Information Communication Technology Interventions on Reducing Social Isolation in the Elderly: A Systematic Review

The Effect of Information Communication Technology Interventions on Reducing Social Isolation in the Elderly: A Systematic Review

Perceived social support in adults with autism spectrum disorder and attention‐deficit/hyperactivity disorder

Development of a core outcome set for disease modification trials in mild to moderate dementia: a systematic review, patient and public consultation and consensus recommendations

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