North‐eastern Brazilian recommendations for the nurse professional role on the pharmacokinetic‐assisted prophylaxis individualization for haemophilia A

Costa, Neuza Cavalcanti de Morais; Costa, Iris Maciel; Guimarães, Tânia Maria Rocha; Souza, Hioga Pimentel de; Casaretto, E; Medeiros, Tenille Capuxú de; Barbosa, Stella Maia; Matos, Antônia Irineuma Esteves Lopes; Oliveira, Evoneide Gomes; Camelo, Ricardo Mesquita

doi:10.1111/hae.13934

Cited by 1 publication

(1 citation statement)

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“…10,11,49,52 Nurse practitioners and those in specialist nurse roles may assess bleeds, conduct consultation, prescribe and make referrals. 10,11,49,52 Their role can be an essential part of providing individualised prophylactic regimens based on pharmacokinetics 53 and facilitating patient outcomes. 23 For women and girls presenting with menorrhagia or other gynaecological issues, HN may have the knowledge to take a gynaecological history, assess the main symptoms and treat.…”

Section: Treatermentioning

confidence: 99%

The role of the specialist nurse in comprehensive care for bleeding disorders in Europe: An integrative review

Mulders,

Uitslager,

Kavanagh

et al. 2024

Haemophilia

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IntroductionManaging bleeding disorders (BDs) is complex, requiring a comprehensive approach coordinated by a multidisciplinary team (MDT). Haemophilia nurses (HNs) play a central role in the MDT, frequently coordinating care. As novel treatments bring change to the treatment landscape, ongoing education and development is key. However, understanding of the roles and tasks of HNs is lacking.AimThe EAHAD Nurses Committee sought to identify and describe the roles and tasks of the European HN.MethodsA five‐step integrative review was undertaken, including problem identification, literature search, data evaluation, data synthesis and presentation. Relevant literature published from 2000 to 2022 was identified through database, hand and ancestry searching. Data were captured using extraction forms and thematically analysed.ResultsSeven hundred and seventy‐seven articles were identified; 43 were included. Five main roles were identified, with varied and overlapping associated tasks: Educator, Coordinator, Supporter, Treater and Researcher. Tasks related to education, coordination and support were most frequently described. Patient education was often ‘nurse‐led’, though education and coordination roles concerned both patients and health care practitioners (HCPs), within and beyond the MDT. The HN coordinates care and facilitates communication. Long‐term patient care relationships place HNs in a unique position to provide support. Guidelines for HN core competencies have been developed in some countries, but autonomy and practice vary.ConclusionAs the treatment landscape changes, all five main HN roles will be impacted. Despite national variations, this review provides a baseline to anticipate educational needs to enable HNs to continue to fulfil their role.

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