Normal aging and dementia disorders — Coping and crisis in the family

How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer’s disease or related diseases? A systematic review of quantitative and qualitative studies

“…Topics: needs and wishes to prevent overburdening, need for care and need for communication of care. 2017/Canada [80]Wawrziczny et al40 spouses of persons with EOD and 38 spouses of persons with late-onset dementia; 23 and 20 female; mean age = 57.4 and 77.0Semi-structured interviews based on the French version of the Carers Outcome Agreement Tool. Four areas: the types of information and support provided, the changes that could improve the quality of life for the PWD and the spouse CG, the quality of the aid received, and the desire for future assistance.3) Dementia 1986/ Sweden [81]Brâne56 informal CGs (28 with patient in early phase and 28 with patient in long stay wards)Interviews and two group meeting.Topics: situation, need of help, feelings about the care on the long stay ward. 2001/ USA [82]Lampley-Dallas et al13 informal CGs (african-american CGs); 11 female; two spouse; mean age = 54 years2 focus group. 3 questions about needs, the health care system (help and interaction) and stress. 2003/ India [83]Shaji et al17 informal CGs; 76% femaleSemi-structured interviews.…”

“…Four areas: the types of information and support provided, the changes that could improve the quality of life for the PWD and the spouse CG, the quality of the aid received, and the desire for future assistance. 3) Dementia 1986/ Sweden [ 81 ] Brâne 56 informal CGs (28 with patient in early phase and 28 with patient in long stay wards) Interviews and two group meeting.Topics: situation, need of help, feelings about the care on the long stay ward. 2001/ USA [ 82 ] Lampley-Dallas et al 13 informal CGs (african-american CGs); 11 female; two spouse; mean age = 54 years 2 focus group.…”

How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer’s disease or related diseases? A systematic review of quantitative and qualitative studies

“…Topics: needs and wishes to prevent overburdening, need for care and need for communication of care. 2017/Canada [80]Wawrziczny et al40 spouses of persons with EOD and 38 spouses of persons with late-onset dementia; 23 and 20 female; mean age = 57.4 and 77.0Semi-structured interviews based on the French version of the Carers Outcome Agreement Tool. Four areas: the types of information and support provided, the changes that could improve the quality of life for the PWD and the spouse CG, the quality of the aid received, and the desire for future assistance.3) Dementia 1986/ Sweden [81]Brâne56 informal CGs (28 with patient in early phase and 28 with patient in long stay wards)Interviews and two group meeting.Topics: situation, need of help, feelings about the care on the long stay ward. 2001/ USA [82]Lampley-Dallas et al13 informal CGs (african-american CGs); 11 female; two spouse; mean age = 54 years2 focus group. 3 questions about needs, the health care system (help and interaction) and stress. 2003/ India [83]Shaji et al17 informal CGs; 76% femaleSemi-structured interviews.…”

“…Four areas: the types of information and support provided, the changes that could improve the quality of life for the PWD and the spouse CG, the quality of the aid received, and the desire for future assistance. 3) Dementia 1986/ Sweden [ 81 ] Brâne 56 informal CGs (28 with patient in early phase and 28 with patient in long stay wards) Interviews and two group meeting.Topics: situation, need of help, feelings about the care on the long stay ward. 2001/ USA [ 82 ] Lampley-Dallas et al 13 informal CGs (african-american CGs); 11 female; two spouse; mean age = 54 years 2 focus group.…”

Reviewing the definition of crisis in dementia care

“…The general practitioner’s assessment of the caregiving situation could help prevent, detect and treat caregiver exhaustion [21,28,31,34]. Additional treatment for caregiver exhaustion include; therapy [13,19,21], hospitalization [31], temporary respite or temporary admission to nursing home [23,24,38-40] and institutionalization [19,21,34].…”

Dementia, disability and contact with formal services: a comparison of dementia sufferers and non-sufferers in rural and urban settings

“…1985, Scott & Wenger 1994) that the admission rate to residential services is high for those suffering from dementia. It has been suggested that adequate formal help and psychological support for primary caregivers delays institutionalization (Brane 1986, Martin et al 1985. It has also been shown that initial effective interventions in the community are beneficid to carers over time despite declining functioning of the dementia sufferer (Pynoos & Ohta 1991).…”

How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer’s disease or related diseases? A systematic review of quantitative and qualitative studies

“…Topics: needs and wishes to prevent overburdening, need for care and need for communication of care. 2017/Canada [80]Wawrziczny et al40 spouses of persons with EOD and 38 spouses of persons with late-onset dementia; 23 and 20 female; mean age = 57.4 and 77.0Semi-structured interviews based on the French version of the Carers Outcome Agreement Tool. Four areas: the types of information and support provided, the changes that could improve the quality of life for the PWD and the spouse CG, the quality of the aid received, and the desire for future assistance.3) Dementia 1986/ Sweden [81]Brâne56 informal CGs (28 with patient in early phase and 28 with patient in long stay wards)Interviews and two group meeting.Topics: situation, need of help, feelings about the care on the long stay ward. 2001/ USA [82]Lampley-Dallas et al13 informal CGs (african-american CGs); 11 female; two spouse; mean age = 54 years2 focus group. 3 questions about needs, the health care system (help and interaction) and stress. 2003/ India [83]Shaji et al17 informal CGs; 76% femaleSemi-structured interviews.…”

“…Four areas: the types of information and support provided, the changes that could improve the quality of life for the PWD and the spouse CG, the quality of the aid received, and the desire for future assistance. 3) Dementia 1986/ Sweden [ 81 ] Brâne 56 informal CGs (28 with patient in early phase and 28 with patient in long stay wards) Interviews and two group meeting.Topics: situation, need of help, feelings about the care on the long stay ward. 2001/ USA [ 82 ] Lampley-Dallas et al 13 informal CGs (african-american CGs); 11 female; two spouse; mean age = 54 years 2 focus group.…”

Reviewing the definition of crisis in dementia care

“…The general practitioner’s assessment of the caregiving situation could help prevent, detect and treat caregiver exhaustion [21,28,31,34]. Additional treatment for caregiver exhaustion include; therapy [13,19,21], hospitalization [31], temporary respite or temporary admission to nursing home [23,24,38-40] and institutionalization [19,21,34].…”

Dementia, disability and contact with formal services: a comparison of dementia sufferers and non-sufferers in rural and urban settings

“…1985, Scott & Wenger 1994) that the admission rate to residential services is high for those suffering from dementia. It has been suggested that adequate formal help and psychological support for primary caregivers delays institutionalization (Brane 1986, Martin et al 1985. It has also been shown that initial effective interventions in the community are beneficid to carers over time despite declining functioning of the dementia sufferer (Pynoos & Ohta 1991).…”

How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer’s disease or related diseases? A systematic review of quantitative and qualitative studies

“…Topics: needs and wishes to prevent overburdening, need for care and need for communication of care. 2017/Canada [80]Wawrziczny et al40 spouses of persons with EOD and 38 spouses of persons with late-onset dementia; 23 and 20 female; mean age = 57.4 and 77.0Semi-structured interviews based on the French version of the Carers Outcome Agreement Tool. Four areas: the types of information and support provided, the changes that could improve the quality of life for the PWD and the spouse CG, the quality of the aid received, and the desire for future assistance.3) Dementia 1986/ Sweden [81]Brâne56 informal CGs (28 with patient in early phase and 28 with patient in long stay wards)Interviews and two group meeting.Topics: situation, need of help, feelings about the care on the long stay ward. 2001/ USA [82]Lampley-Dallas et al13 informal CGs (african-american CGs); 11 female; two spouse; mean age = 54 years2 focus group. 3 questions about needs, the health care system (help and interaction) and stress. 2003/ India [83]Shaji et al17 informal CGs; 76% femaleSemi-structured interviews.…”

“…Four areas: the types of information and support provided, the changes that could improve the quality of life for the PWD and the spouse CG, the quality of the aid received, and the desire for future assistance. 3) Dementia 1986/ Sweden [ 81 ] Brâne 56 informal CGs (28 with patient in early phase and 28 with patient in long stay wards) Interviews and two group meeting.Topics: situation, need of help, feelings about the care on the long stay ward. 2001/ USA [ 82 ] Lampley-Dallas et al 13 informal CGs (african-american CGs); 11 female; two spouse; mean age = 54 years 2 focus group.…”

Reviewing the definition of crisis in dementia care

“…The general practitioner’s assessment of the caregiving situation could help prevent, detect and treat caregiver exhaustion [21,28,31,34]. Additional treatment for caregiver exhaustion include; therapy [13,19,21], hospitalization [31], temporary respite or temporary admission to nursing home [23,24,38-40] and institutionalization [19,21,34].…”

Dementia, disability and contact with formal services: a comparison of dementia sufferers and non-sufferers in rural and urban settings

“…1985, Scott & Wenger 1994) that the admission rate to residential services is high for those suffering from dementia. It has been suggested that adequate formal help and psychological support for primary caregivers delays institutionalization (Brane 1986, Martin et al 1985. It has also been shown that initial effective interventions in the community are beneficid to carers over time despite declining functioning of the dementia sufferer (Pynoos & Ohta 1991).…”