Non-pharmacological Management (Hydration, Diet and Compression)

Eftekhari, Helen; Bruce, Diane

doi:10.1007/978-3-030-54165-1_25

Cited by 1 publication

(1 citation statement)

References 36 publications

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“…Dietary changes such as increasing sodium intake, 33 reducing refined carbohydrates and foods high in fat and fibre are often recommended in this population who are more likely to struggle with delayed gastric emptying. 34 Although there is further research needed into dietary recommendations, and which strategies worked best differed amongst participants, likewise with exercise for those who were able to tolerate it: ‘I have tried like a low carbohydrate diet, which tends to work for me best, low carb to zero carb. I’ve tried high fat…I’ve tried like a meat and vegetables type diet, like a ketogenic diet.…”

Section: Resultsmentioning

confidence: 99%

Experiences of living with postural tachycardia syndrome

et al. 2021

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Objective Postural tachycardia syndrome (PoTS) is a disorder of the autonomic nervous system which involves a range of symptoms, worsened when adopting an orthostatic (upright) position. Symptoms can include tachycardia, dizziness, fainting, nausea as well as many others which, as is typical of a syndrome, vary from person to person. Although research is increasing into this condition, the unifying experiences of managing it on a daily basis have not been extensively investigated. This study aimed to capture participants’ experiences of living with PoTS. Method A longitudinal digital ethnographic approach was employed. Eight participants recorded daily video diaries discussing their experiences of PoTS and its impact for 17 days. Interpretative phenomenological analysis was utilised to analyse the data and identify connections across participants’ accounts. Results Four superordinate themes emerged: ‘loss of control and lack of agency over body’, ‘identity changes’, ‘lack of understanding from others’ and ‘adapting to cope with PoTS’. Discussion The findings demonstrated the complex and widespread impact these participants experience from their PoTS symptoms, including the consequent emotional difficulties that result from managing this condition. An overall lack of understanding about PoTS by others was emphasised, suggesting the requirement for better education and support services for this condition.

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Section: Resultsmentioning

confidence: 99%