Nirvana: A Qualitative Study of Posttraumatic Growth in Adolescents and Young Adults with Inflammatory Bowel Disease

Wu, Qiwei; Zhu, Pingting; Liu, Xinyi; Ji, Qiaoying; Qian, Meiyan

doi:10.3390/children9060879

Cited by 3 publications

(1 citation statement)

References 56 publications

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“…These ndings provide knowledge on the process of posttraumatic growth in patients with Crohn's disease within the wider sociocultural context. However, few published studies [19,24,25] have focused on the process of posttraumatic growth in these patients. Therefore, the objective of this…”

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confidence: 99%

Reconstructing self from the illness: a constructivist grounded theory study of posttraumatic growth in patients with Crohn’s disease

Wang

Zhang

Zhou

2023

Preprint

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Background Some patients with Crohn’s disease report posttraumatic growth, which can promote reductions in anxiety and depression, and improve the patients’ quality of life. However, the process of posttraumatic growth remains unclear. The objectives of this study were to explore the social-psychological process of posttraumatic growth in patients with Crohn’s disease in the context of Chinese culture and construct an interpretive understanding based on the perspectives of patients.Methods This research adopted Charmaz's constructivist grounded theory. Nineteen participants with Crohn’s disease were selected by purposive and theoretical sampling from three hospitals in Hangzhou, Zhejiang Province, as well as from the China Crohn’s & Colitis Foundation. In-depth interviews were conducted. Data analysis was based on initial, focused and theoretical coding strategies, and methods such as constant comparison and memo writing were adopted. COREQ reporting guidelines were utilised.Results An interpretive understanding of posttraumatic growth in patients with Crohn’s disease was constructed. The core category was "reconstructing self from the illness", which included the following four categories: "suffering from the illness", "accepting the illness", "dancing with the illness" and "enriching life beyond the illness". However, not every patient reached the last phase. Before patients enter the next stage, they might begin a new cycle by experiencing new suffering or discovering new unacceptable facts about the illness.Conclusions This interpretive understanding reveals a growth process centred on "reconstructing self from the illness". These findings provide knowledge on the process of posttraumatic growth in patients with Crohn’s disease within the wider sociocultural context.

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confidence: 99%

Reconstructing self from the illness: a constructivist grounded theory study of posttraumatic growth in patients with Crohn’s disease

Wang

Zhang

Zhou

2023

Preprint

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Reconstructing self from the illness: a constructivist grounded theory study of posttraumatic growth in patients with Crohn’s disease

Wang,

Zhang,

Zhou

2023

BMC Gastroenterol

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Background Some patients with Crohn’s disease report posttraumatic growth, which can promote reductions in anxiety and depression, and improve the patient’s quality of life. However, the process of posttraumatic growth remains unclear. The objectives of this study were to explore the social-psychological process of posttraumatic growth in patients with Crohn’s disease in the context of Chinese culture and construct an interpretive understanding based on the perspectives of patients. Methods This research adopted Charmaz’s constructivist grounded theory. Nineteen participants with Crohn’s disease were selected by purposive and theoretical sampling from three hospitals in Hangzhou, Zhejiang Province, as well as from the China Crohn’s & Colitis Foundation. In-depth interviews were conducted. Data analysis was based on initial, focused and theoretical coding strategies, and methods such as constant comparison and memo writing were adopted. The Consolidated Criteria for Reporting Qualitative Research, a 32-item checklist for interviews and focus groups, was utilised. Results An interpretive understanding of posttraumatic growth in patients with Crohn’s disease was constructed. The core category was “reconstructing self from the illness”, which included the following four categories: “suffering from the illness”, “accepting the illness”, “dancing with the illness” and “enriching life beyond the illness”. However, not every patient reached the last phase. Before patients enter the next stage, they might begin a new cycle by experiencing new suffering or discovering new unacceptable facts about the illness. Conclusions This interpretive understanding reveals a growth process centred on “reconstructing self from the illness”. These findings provide knowledge on the process of posttraumatic growth in patients with Crohn’s disease within the wider sociocultural context.

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«Digesting Crohn’s Disease»: The Journey of Young Adults since Diagnosis

Touma,

Zanni,

Blanc

et al. 2023

JCM

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Crohn’s disease affects 2.5 million people in Europe (more than 100,000 people in France) and often occurs between the ages of 15 and 30, a period marked by self-construction. However, few studies have focused on the experience of the diagnosis during this sensitive developmental stage. This study aimed to qualitatively explore the experience of Crohn’s disease in young adults since their diagnosis. Fifteen young adults (18–35 years) diagnosed with Crohn’s disease participated in a semi-directive interview. Narrative data were subjected to a thematic analysis, and thirty percent of the interviews were double-coded. The results revealed an evolution of four main themes since diagnosis: (1) course of care, (2) illness perceptions, (3) disease management and (4) self-perception. For most participants, the onset of the disease was difficult, marked by severe symptoms requiring hospitalization, numerous medical examinations and sometimes several consultations before diagnosis. This journey was more difficult when it was associated with negative relations with the medical staff, who were sometimes perceived as unsupportive. Thus, some people described this diagnostic period as an “ordeal”, while others experienced it as a “relief” from their suffering. The announcement of the diagnosis was often a “shock”, an “upheaval” or a “downfall”, followed by phases of denial associated with a desire to maintain a “normal life” and not to be defined by the disease. Despite a difficult start, most participants grew from their experience with CD, with a sense of a personal development that was made possible by self-regulation processes that enabled them to draw on their own experience and resources to adjust to their illness. By highlighting positive possibilities for evolution, this study suggests the importance of supporting the psychological resources of young adults by proposing, at an early stage, psychological support or therapies focused on acceptance and engagement.

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Nirvana: A Qualitative Study of Posttraumatic Growth in Adolescents and Young Adults with Inflammatory Bowel Disease

Cited by 3 publications

References 56 publications

Reconstructing self from the illness: a constructivist grounded theory study of posttraumatic growth in patients with Crohn’s disease

Reconstructing self from the illness: a constructivist grounded theory study of posttraumatic growth in patients with Crohn’s disease

Reconstructing self from the illness: a constructivist grounded theory study of posttraumatic growth in patients with Crohn’s disease

«Digesting Crohn’s Disease»: The Journey of Young Adults since Diagnosis

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