Neurodevelopmental outcome of solid organ transplantation in children

Baum, Marti; Freier, M. Catherin; Chinnock, Richard

doi:10.1016/s0031-3955(03)00152-4

Cited by 23 publications

(21 citation statements)

References 30 publications

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“…Special attention must be given to growth and developmental issues to ensure an optimal neurodevelopmental outcome. [22][23][24] Some considerations for the medical team caring for the pediatric organ recipient include support (emotional and spiritual) for the recipient, other siblings (eg, social aspects relating to their care), and parents or guardians (eg, maintaining employment status) and the availability of pediatric subspecialty support (critical care, dialysis, anesthesia, interventional radiology, etc). 25,26 Children are much harder to relocate to a transplant center for care, because their families must accompany them and siblings must be cared for at the same time.…”

Section: Transplantationmentioning

confidence: 99%

Pediatric Organ Donation and Transplantation

Surgery¹

2010

Pediatrics

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Pediatric organ donation and organ transplantation can have a significant life-extending benefit to the young recipients of these organs and a high emotional impact on donor and recipient families. Pediatricians, pediatric medical specialists, and pediatric transplant surgeons need to be better acquainted with evolving national strategies that involve organ procurement and organ transplantation to help acquaint families with the benefits and risks of organ donation and transplantation. Efforts of pediatric professionals are needed to shape public policies to provide a system in which procurement, distribution, and cost are fair and equitable to children and adults. Major issues of concern are availability of and access to donor organs; oversight and control of the process; pediatric medical and surgical consultation and continued care throughout the organ-donation and transplantation process; ethical, social, financial, and follow-up issues; insurance-coverage issues; and public awareness of the need for organ donors of all ages.

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Section: Transplantationmentioning

confidence: 99%

Pediatric Organ Donation and Transplantation

Surgery¹

2010

Pediatrics

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“…However, each of these groups has unique reasons for cognitive risk at the time of pretransplant evaluation due to disease processes. Common risk factors may include malnutrition, infections, and altered environmental interactions that reduce age‐normative stimulation . In addition, each organ group has unique risk factors that potentially impact development.…”

Section: Discussionmentioning

confidence: 99%

“…Prior research has shown lower intellectual functioning across pediatric solid organ transplant recipients relative to matched siblings or normed comparisons . Consequences of end‐stage organ failure including infections, increased circulating chemical levels in the bloodstream (e.g., ammonia), malnutrition, growth retardation, circulatory deterioration, and frequent and intensive medical care can all potentially impact cognitive and academic functioning in patients prior to transplantation . Findings of lower intellectual functioning are particularly important given the body of research demonstrating that cognitive functioning in childhood is predictive of later academic and occupational achievement as well as health behaviors .…”

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confidence: 99%

Intellectual and academic performance in children undergoing solid organ pretransplant evaluation

Reed-Knight

Lee

Cousins

et al. 2014

Pediatric Transplantation

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Although prior research has shown lower intellectual functioning across pediatric solid organ transplant recipients relative to matched siblings or norm comparisons, few studies have assessed intellectual and academic performance prior to transplant across organ groups. The current data examine intellectual and academic functioning in children being evaluated for kidney, liver, or heart transplant. This investigation included intellectual and academic testing data from 195 children and adolescents between the ages of six and 19 yr evaluated for solid organ transplantation. Across organ groups, patients' intellectual functioning as estimated by the WASI/WASI-II at the time of pretransplant evaluation was within the average range, but lower compared to test norms. Patients demonstrated lower estimates of word reading, math computation, and spelling skills compared to the normal population, with the exception of heart patients' word reading and spelling skills and liver patients' spelling scores. Cognitive and academic impairments exist in children prior to transplantation. Findings emphasize the support that patients may require to manage the complicated medical regimen and succeed academically. Routine cognitive and academic assessment can inform healthcare providers regarding transplant patients' capacity to take on increasing medical responsibility and successfully reintegrate into the school environment.

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“…Being hospitalized in a regular acute care ward can be a chaotic and intrusive experience with multiple caregivers and inconsistent daily routines (Baum et al, 2003;Goldberger, 1988a;Wells et al, 1994). The BP aims to address the developmental needs of these children.…”

Section: Discussionmentioning

confidence: 99%

Parental experiences of a developmentally focused care program for infants and children during prolonged hospitalization

Rogers

Patterson

et al. 2013

J Child Health Care

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This study investigates parental experiences and perceptions of the care received during their child's prolonged hospitalization. It relates this care to the Beanstalk Program (BP), a develop-mentally focused care program provided to these families within an acute care hospital setting. A total of 20 parents (of children hospitalized between 1-15 months) completed the Measures of Processes of Care (MPOC-20) with additional questions regarding the BP. Scores rate the extent of the health-care provider's behaviour as perceived by the family, ranging from 'to a great extent' (7) to 'never' (1). Parents rated Respectful and Supportive Care (6.33) as highest, while Providing General Information (5.65) was rated lowest. Eleven parents participated in a follow-up, qualitative, semi-structured interview. Interview data generated key themes: (a) parents strive for positive and normal experiences for their child within the hospital environment; (b) parents value the focus on child development in the midst of their child's complex medical care; and (c) appropriate developmentally focused education helps parents shift from feeling overwhelmed with a medically ill child to instilling feelings of confidence and empowerment to care for their child and transition home. These results emphasize the importance of enhancing child development for hospitalized infants and young children through programs such as the BP.

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Neurodevelopmental outcome of solid organ transplantation in children

Cited by 23 publications

References 30 publications

Pediatric Organ Donation and Transplantation

Pediatric Organ Donation and Transplantation

Intellectual and academic performance in children undergoing solid organ pretransplant evaluation

Parental experiences of a developmentally focused care program for infants and children during prolonged hospitalization

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