Neurodevelopmental delay: Case definition &amp; guidelines for data collection, analysis, and presentation of immunization safety data

Villagomez, Adrienne; Muñoz, Flor M.; Peterson, Robin L.; Colbert, Alison M.; Gladstone, Melissa; MacDonald, Beatriz; Wilson, Rebecca L.; Fairlie, Lee; Gerner, Gwendolyn; Patterson, Jacqueline; Boghossian, Nansi S.; Burton, Vera Joanna; Cortés, Margarita; Katikaneni, Lakshmi D.; Larson, Jennifer C. Gidley; Angulo, Abigail S.; Joshi, Jyoti; Nesin, Mirjana; Padula, Michael A.; Kochhar, Sonali; Connery, Amy K.

doi:10.1016/j.vaccine.2019.05.027

Cited by 46 publications

(53 citation statements)

References 142 publications

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“…Specifically, this initiative proposed systematic data collection, specific case definitions of key obstetric and neonatal health outcomes, ontology of key terms and a map of pertinent disease codes. More recently, case definition and guidelines for data collection, analysis and presentation has been proposed for neonatal seizures, neurodevelopmental delay, chorioamnionitis and post-partum endometritis and infection by the GAIA and Brighton collaboration working groups ( 21 – 24 ). Future studies assessing safety of immunization during pregnancy should use the proposed terms and definitions.…”

Section: Safety Of Immunization During Pregnancymentioning

confidence: 99%

Global Perspectives on Immunization During Pregnancy and Priorities for Future Research and Development: An International Consensus Statement

et al. 2020

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Section: Safety Of Immunization During Pregnancymentioning

confidence: 99%

Global Perspectives on Immunization During Pregnancy and Priorities for Future Research and Development: An International Consensus Statement

et al. 2020

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“…La etiología de la epilepsia en el 44% fue de tipo estructural (12,13). Durante décadas la concepción del neurodesarrollo, su abordaje y evaluación se basaban en 4 áreas: motora fina, motora gruesa, social y lenguaje pero en los últimos años se han propuestos nuevos modelos como el socio-ecológico en cual trata de integrar la capacidad adaptativa con pilar fundamental del desarrollo del niño y basado en este concepto se utilizó en nuestro estudio la Escala PEDI-CAT que en la cual se evalúo 4 dominios : actividades diarias, movilidad, social cognitiva y responsabilidad (14)(15)(16).…”

Section: Resultsunclassified

Aplicación De Escala De Evaluación Pediátrica Del Inventario De Discapacidad-Prueba Adaptativa Por Computadora (Pedi-Cat) en Pacientes Con Epilepsia.

Quintana¹,

Pérez²,

Alvarez-Amado³

et al. 2022

Enferm. investig.

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Introducción: La epilepsia representa una de las principales causas de morbilidad en neuropediatría. El inicio temprano de las crisis epilépticas, se relaciona con menor desempeño intelectual a largo plazo, y alteraciones en las habilidades adaptativas. Objetivo: Aplicar escala de evaluación pediátrica del inventario de discapacidad-prueba adaptativa por computadora (PEDI-CAT) en pacientes pediátricos con epilepsia. Métodos: Se realizó un estudio de nivel descriptivo, tipo observacional, prospectivo, trasversal y analítico, realizado el Departamento de Neurología Pediátrica del Hospital Infantil de México Federico Gómez, en la Ciudad de México. El reclutamiento de los pacientes fue durante abril y diciembre de 2020. Resultados: los pacientes con epilepsia presentaron un percentil <5 en sus habilidades de movilidad 22 (35,4%), actividades diarias 19(30,6%), social-cognitivas 19(30,6%), lo que significa que están por debajo de rango normal comparado con niños de su edad. Conclusiones: los pacientes con epilepsia presentaron un percentil <5 en el dominio de actividades diarias, movilidad y social-cognitiva, lo que significa que están por debajo de rango normal comparado con niños de su edad. Por tanto, la epilepsia debe ser considerado un trastorno que afecta la capacidad adaptativa de los pacientes y no sólo una patología cuya manifestación son las crisis, su detección temprano con el uso de escalas como PEDI-CAT se traduce en la identificación y planificación de estrategias terapéuticas eficaces para mejorar calidad de vida de los pacientes Palabras Clave: Epilepsia, Conducta Adaptativa, Trastornos del Neurodesarrollo. ABSTRACT Introduction: Epilepsy represents one of the main causes of morbidity in pediatric neurology. The early onset of epileptic seizures is related to lower long-term intellectual performance, and alterations in adaptive skills. Objective: To apply the Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT) report in pediatric patients with epilepsy. Methods: A descriptive, observational, prospective, cross-sectional and analytical study was carried out in the Department of Pediatric Neurology at Hospital Infantil de México Federico Gómez, in Mexico City. Patient recruitment took place between April and December 2020. Results: patients with epilepsy presented a <5 percentile in their mobility skills 22 (35.4%), daily activities19 (30.6%), social-cognitive 19 (30.6%), which means that they are below of normal range compared to children his age. Conclusions: patients with epilepsy presented a <5 percentile in the domain of daily activities, mobility and social-cognitive, which means that they are below the normal range compared to children of their age. Therefore, epilepsy should be considered a disorder that affects the adaptive capacity of patients and not just a pathology whose manifestation is seizures, its early detection with the use of scales such as PEDI-CAT translates into the identification and planning of strategies effective therapeutics to improve the quality of life of patients Keywords: Epilepsy, Adaptation, Psychological, Neurodevelopmental Disorders.

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“…Due to reported application practices for early DS (Alcantud et al, 2015), HLL was applied twice. The first application intent to diminish possible anxiety or fear around working with a health professional in screening settings (Villagomez et al, 2019) and follows the recommended application twice before screening decisions with participants in systems for early detection of developmental disorders (Alcantud et al, 2015). One week later after a first screening with HLL, 61 dyads (85.2%) were positive for follow-up and received a second HLL screening.…”

Section: Participantsmentioning

confidence: 99%

Agreement and Reliability of Parental Reports and Direct Screening of Developmental Outcomes in Toddlers at Risk

Giraldo-Huertas

Schafer

2021

Front. Psychol.

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Developmental screening is a practice that directly benefits vulnerable and low-income families and children when it is regular and frequently applied. A developmental screening tool administered by parents called CARE is tested. CARE contains a compilation of activities to report and enhance development at home. Hundred and fifty-seven families in Bogotá (Colombia) initially responded to a call to participate in developmental screening tools’ validation and reliability study. All children (Average: 42.7 months old; SD: 9.4; Min: 24, Max: 58) were screened directly by trained applicants using a Spanish version of the Denver Developmental Screening test [i.e., the Haizea-Llevant (HLL) screening table]. After a first screening, 61 dyads were positive for follow-up and received a second HLL screening. Fifty-two out of 61 dyads use and returned CARE booklet after 1-month screening at home. The comparative analysis for parent reports using CARE and direct screening observation included (a) the effects of demographic variables on overall and agreement, (b) agreement and congruence between the CARE report classification and direct screening classification (“At risk” or “Not at risk”), (c) receiver operating characteristic analysis, (d) item-Level agreement for specific developmental domains, and (e) acceptability and feasibility analysis. Results and conclusions show the parental report using the CARE booklet as a reliable screening tool that has the potential to activate alerts for an early cognitive delay that reassure clinicians and families to further specialized and controlled developmental evaluations and act as a screen for the presence of such delay in four developmental dimensions.

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Neurodevelopmental delay: Case definition & guidelines for data collection, analysis, and presentation of immunization safety data

Cited by 46 publications

References 142 publications

Global Perspectives on Immunization During Pregnancy and Priorities for Future Research and Development: An International Consensus Statement

Global Perspectives on Immunization During Pregnancy and Priorities for Future Research and Development: An International Consensus Statement

Aplicación De Escala De Evaluación Pediátrica Del Inventario De Discapacidad-Prueba Adaptativa Por Computadora (Pedi-Cat) en Pacientes Con Epilepsia.

Agreement and Reliability of Parental Reports and Direct Screening of Developmental Outcomes in Toddlers at Risk

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