Need of support in people with chronic obstructive pulmonary disease

Ali, Lilas; Fors, Andreas; Ekman, Inger

doi:10.1111/jocn.14170

Cited by 23 publications

(36 citation statements)

References 43 publications

(53 reference statements)

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“…Findings in the present study indicate that having been involved in care and treatment can contribute to reporting met rehabilitation services needs related to mobility, falls and speaking. Involvement in discussions, planning and decisions on care and treatment are core components in person-centred care [53], patient participation [54] and shared decision-making [55,56]. Shared decision-making aims to support patients' self-determination and autonomy by providing information and supporting deliberation.…”

Section: Discussionmentioning

confidence: 99%

Factors related to met needs for rehabilitation 6 years after stroke

et al. 2020

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Introduction Research on stroke rehabilitation mainly concerns the first year of recovery, and there is a lack of knowledge regarding long-term rehabilitation needs and associated factors. Aim The aim was to explore the perceived needs for rehabilitation services of people six years after stroke and factors associated with having rehabilitation services needs met. Methods The study was a 6-year follow up of a prospective study on the rehabilitation process after stroke. Data on perceived needs for rehabilitation, personal factors, disease specific factors, and patient-reported disability were collected through face-to-face interviews in the participants' homes. Logistic regression models were created to explore associations between having rehabilitation services needs met in 11 problem areas (dependent variable) and the independent variables: involvement in decisions regarding care and treatment, sex, age, sense of coherence, self-defined level of private financing, stroke severity, frequency of social everyday activities, perceived impact of stroke, and life satisfaction. Results The 121 participants had a mean age of 63 years at stroke onset and 58% were men. In all problem areas the majority (53-88%) reported having needs met at six years after stroke, however 47% reported unmet needs regarding fatigue and 45% regarding mobility. A lower perceived impact on participation was found to be associated with having rehabilitation services needs met in seven problem areas: mobility, falls, pain, fatigue, concentration, memory, and sight. The strongest association for having needs met was found for the independent variable, involvement in care and treatment, within the three problem areas mobility, falls, and speaking.

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Section: Discussionmentioning

confidence: 99%

Factors related to met needs for rehabilitation 6 years after stroke

et al. 2020

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“…Because self-management plays a prominent role in the treatment of COPD, there is an obvious need to provide easily accessible support for self-management, including information on when to contact primary care and information on what support might be available. The internet and eHealth solutions seem to be appreciated and valued sources of information and support for people with COPD [ 47 , 49 ], and consequently, it is important that such support, based on the needs and wishes expressed in this and similar studies, is available.…”

Section: Discussionmentioning

confidence: 99%

Usefulness and Relevance of an eHealth Tool in Supporting the Self-Management of Chronic Obstructive Pulmonary Disease: Explorative Qualitative Study of a Cocreative Process

Tistad¹,

Lundell²,

Wiklund³

et al. 2018

JMIR Hum Factors

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BackgroundNew strategies are urgently needed to support self-management for people with chronic obstructive pulmonary disease (COPD) in primary care. The use of electronic health (eHealth) solutions is promising. However, there is a lack of knowledge about how such eHealth tools should be designed in order to be perceived as relevant and useful and meet the needs and expectations of the health professionals as well as people with COPD and their relatives.ObjectiveThe objective of this study was to explore the aspects of an eHealth tool design and content that make it relevant and useful for supporting COPD-related self-management strategies from the perspective of health care professionals, people with COPD and their relatives, and external researchers.MethodsData were collected during the development of an eHealth tool. A cocreation process was carried out with participants from two primary care units in northern Sweden and external researchers. Individual interviews were performed with health care professionals (n=13) as well as people with COPD (n=6) and their relatives (n=2), and focus group discussions (n=9) were held with all groups of participants. Data were analyzed using qualitative content analysis.ResultsThe overarching theme, reinforcing existing support structures, reflects participant views that the eHealth tool needs to be directly applicable and create a sense of commitment in users. Moreover, participants felt that the tool needs to fit with existing routines and contexts and preferably should not challenge existing hierarchies between health care professionals and people with COPD. Important content for health care professionals and people with COPD included knowledge about self-management strategies. Videos were regarded as the most effective method for communicating such knowledge.ConclusionsThe cocreation in the development process enables participant perspectives and priorities to be built into the eHealth tool. This is assumed to contribute to a tool that is useful and relevant and, therefore, adopted into clinical practice and everyday life. Findings from this study can inform the development of eHealth tools for people with COPD in other contexts, as well as the development of eHealth tools for self-management support of other chronic diseases.

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“…The main finding was that patients who used the PRISMS form were significantly more satisfied with the personal attention aspect of quality of care than those who did not use the form. This is an important finding, as personal attention in care is essential for good communication, relationship and patient participation (Ali, Fors, & Ekman, 2018; Luhr, Holmefur, Theander, & Eldh, 2018). But there was no statistical significant difference between the groups in patient participation even if the intervention group had higher scores.…”

Section: Discussionmentioning

confidence: 99%

Improved quality of care by using the PRISMS form to support self‐management in patients with COPD: A Randomised Controlled Trial

Zakrisson

Arne

Lisspers

et al. 2020

Journal of Clinical Nursing

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Aims and objective To investigate the effects on the quality of care of the Patient Report Informing Self‐Management Support (PRISMS) form compared with usual care among patients with chronic obstructive pulmonary disease (COPD) consulting a COPD nurse in primary health care. Background Patients with COPD experience symptoms affecting their everyday lives, and there is a need for interventions in self‐management support. The delivery of chronic care in an organised, structured and planned manner can lead to more productive relationships between professionals and patients. Design A multicentre randomised controlled trial with a post‐test design, according to the CONSORT checklist, in one intervention group (n = 94) and one control group (n = 108). Methods In addition to usual care, the intervention group (n = 94) completed the PRISMS form to indicate areas where they wanted self‐management support before the consultation with the COPD nurse. This form comprises 17 items that patients with COPD commonly experience as problems. The control group received usual care (n = 108). The primary outcome was patients’ satisfaction with quality of care, assessed using the Quality from the Patient's Perspective (QPP) questionnaire. Means and (SD) are presented where applicable. Differences between the intervention and control group were analysed with Student's t test for independent groups for interval data, and the Mann–Whitney U test for ordinal data. Results Participants in the intervention group were more satisfied with the QPP domains “personal attention,” regarding both “perceived reality” (p = .021) and “subjective importance” (p = .012). The PRISMS form revealed “shortness of breath” as the most commonly experienced problem and the issue most desired to discuss. Conclusion The PRISMS form improved patient satisfaction with quality of care regarding personal attention, which is an important factor in patient participation and improving relationships and communication. Relevance to clinical practice The PRISMS form can be a useful tool in improving person‐centred care when delivering self‐management support. Register Id 192691 at http://www.researchweb.org/is/en/sverige/project/192691.

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Need of support in people with chronic obstructive pulmonary disease

Cited by 23 publications

References 43 publications

Factors related to met needs for rehabilitation 6 years after stroke

Factors related to met needs for rehabilitation 6 years after stroke

Usefulness and Relevance of an eHealth Tool in Supporting the Self-Management of Chronic Obstructive Pulmonary Disease: Explorative Qualitative Study of a Cocreative Process

Improved quality of care by using the PRISMS form to support self‐management in patients with COPD: A Randomised Controlled Trial

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