Narratives of family caregiving: Four story types

The narrative self in rural dementia: a case study from eastern Nova Scotia

“…The women are likewise painfully aware that their narratives of Alexander's personhood differ from those of some other marketgoers. Here, as elsewhere, following from Ayres’ (2000) and Pals’ (2006) reasoning, the family members’ awareness that their narratives are not certainties, so much as provisional interpretations that may not reach consensus or closure, itself contributes to the emotional labour of ongoingly narrating Alexander's self.…”

The narrative self in rural dementia: a case study from eastern Nova Scotia

“…The women are likewise painfully aware that their narratives of Alexander's personhood differ from those of some other marketgoers. Here, as elsewhere, following from Ayres’ (2000) and Pals’ (2006) reasoning, the family members’ awareness that their narratives are not certainties, so much as provisional interpretations that may not reach consensus or closure, itself contributes to the emotional labour of ongoingly narrating Alexander's self.…”

Within-Case and Across-Case Approaches to Qualitative Data Analysis

“…In a garden path analysis, researchers present an exhaustive list of themes that were found in the data, but the themes are self-contained and unrelated. For example, Ayres' (2000aAyres' ( , 2000b) study of family caregivers produced themes of recipient identity, relationship between caregiver and care receiver, definition of caregiving, care management strategies, mood management strategies, and rewards of caregiving. Each of these themes can be described in detail, and it might even be possible to identify variations across themes, for example, to describe variations among strategies different caregivers use to manage their moods, but the list of themes alone has little practical value.…”

Family caregivers and the ethical relevance of moral identity

“…Only if these people are also given time for themselves, are provided with sufficient institutional and informal support, and can also bring their own moral standards into the caregiving relationship, will they experience the appreciation they deserve. Otherwise, the excessive demands—or loss of identity—currently evident in many studies (Ayres, 2000; Caputo, 2021; García‐Toro et al, 2020; McCauley et al, 2021; Tarberg et al, 2019) will not be reduced and the quite justified formulation of exploitation of family caregivers will continue to correspond to the lived reality. In addition, the moral identity that originally became visible through the care work undertaken can be permanently damaged (violated), which does not appear ethically acceptable when referring to the interests of this group of people.…”

The narrative self in rural dementia: a case study from eastern Nova Scotia

“…The women are likewise painfully aware that their narratives of Alexander's personhood differ from those of some other marketgoers. Here, as elsewhere, following from Ayres’ (2000) and Pals’ (2006) reasoning, the family members’ awareness that their narratives are not certainties, so much as provisional interpretations that may not reach consensus or closure, itself contributes to the emotional labour of ongoingly narrating Alexander's self.…”

Within-Case and Across-Case Approaches to Qualitative Data Analysis

“…In a garden path analysis, researchers present an exhaustive list of themes that were found in the data, but the themes are self-contained and unrelated. For example, Ayres' (2000aAyres' ( , 2000b) study of family caregivers produced themes of recipient identity, relationship between caregiver and care receiver, definition of caregiving, care management strategies, mood management strategies, and rewards of caregiving. Each of these themes can be described in detail, and it might even be possible to identify variations across themes, for example, to describe variations among strategies different caregivers use to manage their moods, but the list of themes alone has little practical value.…”

Family caregivers and the ethical relevance of moral identity

“…Only if these people are also given time for themselves, are provided with sufficient institutional and informal support, and can also bring their own moral standards into the caregiving relationship, will they experience the appreciation they deserve. Otherwise, the excessive demands—or loss of identity—currently evident in many studies (Ayres, 2000; Caputo, 2021; García‐Toro et al, 2020; McCauley et al, 2021; Tarberg et al, 2019) will not be reduced and the quite justified formulation of exploitation of family caregivers will continue to correspond to the lived reality. In addition, the moral identity that originally became visible through the care work undertaken can be permanently damaged (violated), which does not appear ethically acceptable when referring to the interests of this group of people.…”

The narrative self in rural dementia: a case study from eastern Nova Scotia

“…The women are likewise painfully aware that their narratives of Alexander's personhood differ from those of some other marketgoers. Here, as elsewhere, following from Ayres’ (2000) and Pals’ (2006) reasoning, the family members’ awareness that their narratives are not certainties, so much as provisional interpretations that may not reach consensus or closure, itself contributes to the emotional labour of ongoingly narrating Alexander's self.…”

Within-Case and Across-Case Approaches to Qualitative Data Analysis

“…In a garden path analysis, researchers present an exhaustive list of themes that were found in the data, but the themes are self-contained and unrelated. For example, Ayres' (2000aAyres' ( , 2000b) study of family caregivers produced themes of recipient identity, relationship between caregiver and care receiver, definition of caregiving, care management strategies, mood management strategies, and rewards of caregiving. Each of these themes can be described in detail, and it might even be possible to identify variations across themes, for example, to describe variations among strategies different caregivers use to manage their moods, but the list of themes alone has little practical value.…”

Family caregivers and the ethical relevance of moral identity

“…Only if these people are also given time for themselves, are provided with sufficient institutional and informal support, and can also bring their own moral standards into the caregiving relationship, will they experience the appreciation they deserve. Otherwise, the excessive demands—or loss of identity—currently evident in many studies (Ayres, 2000; Caputo, 2021; García‐Toro et al, 2020; McCauley et al, 2021; Tarberg et al, 2019) will not be reduced and the quite justified formulation of exploitation of family caregivers will continue to correspond to the lived reality. In addition, the moral identity that originally became visible through the care work undertaken can be permanently damaged (violated), which does not appear ethically acceptable when referring to the interests of this group of people.…”