Multidimensional determinants of family caregiver burden in Alzheimer's disease

Park, Myonghwa; Sung, Miai; Kim, Sun Kyung; Kim, Sungjin; Lee, Dong Hoon

doi:10.1017/s1041610215000460

Cited by 78 publications

(69 citation statements)

References 23 publications

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“…The variable 'IADLs' showed significant negative correlations in all models, indicating that caregivers caring for persons with higher abilities (in terms of performing IADLs) experienced less burden than other caregivers. These results are consistent with those reported by Park, Sung, Kim, Kim, and Lee (2015). Furthermore, in 3 of the 4 main categories (practical care tasks, changing behaviors, and conflicts of needs), burden was negatively associated with PwD challenging behaviors.…”

Section: Discussionsupporting

confidence: 91%

Caregiver burden assessed in dementia care networks in Germany: findings from the DemNet-D study baseline

Uribe

Heinrich

Wolf‐Ostermann

et al. 2016

Aging & Mental Health

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Section: Discussionsupporting

confidence: 91%

Caregiver burden assessed in dementia care networks in Germany: findings from the DemNet-D study baseline

Uribe

Heinrich

Wolf‐Ostermann

et al. 2016

Aging & Mental Health

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“…personal, physical, emotional, and social) and more objective (e.g. informal caregiver time and costs) aspects of caring (Park et al, 2015).…”

Section: Introductionmentioning

confidence: 99%

“…the patient's cognitive status, functional impairment, and behavioral symptoms), as well as various caregiver characteristics (e.g. their relationship to the patient and whether living with the patient or not), as being associated with the subjective caregiver burden (Beinart et al, 2012;Bergvall et al, 2011;Brodaty et al, 2014;Conde-Sala et al, 2014;Park et al, 2015). More objective but equally important burden indicators, such as caregiver time and costs, and how they change with the progression of ADD severity, have received less attention (Bergvall et al, 2011;Fisher et al, 2011;Koca et al, 2017;Wolfs et al, 2012).…”

Section: Introductionmentioning

confidence: 99%

Factors associated with long-term impact on informal caregivers during Alzheimer’s disease dementia progression: 36-month results from GERAS

Reed

Belger

Andrews

et al. 2019

Int. Psychogeriatr.

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Objective:To identify, in caregivers of patients with Alzheimer’s disease (AD) dementia, factors associated with subjective (personal, physical, emotional, and social) and objective (informal caregiver time and costs) caregiver burden.Design:Prospective longitudinal European observational study: post-hoc analysis.Setting:Clinic.Participants:Community-dwelling patients in France and Germany aged ≥ 55 years (n = 969) with probable AD and their informal caregivers.Measurements:Mini-Mental State Examination (MMSE), Alzheimer’s Disease Cooperative Study—Activities of Daily Living (ADCS-ADL), 12-item Neuropsychiatric Inventory (NPI-12), Zarit Burden Interview (ZBI), informal caregiver basic and instrumental ADL hours (Resource Utilization in Dementia instrument), and informal caregiver costs. Mixed-effect models of repeated measures (MMRM) were run, including baseline and time-dependent covariates (change from baseline [CFB] to 18 months in MMSE, ADCS-ADL, and NPI-12 scores) associated with CFB in ZBI score/informal caregiver time over 36 months (analyzed using linear regression models) and informal caregiver costs over 36 months (analyzed using generalized linear models).Results:Greater decline in patient function (ADCS-ADL) over 18 months was associated with increased subjective caregiver burden (ZBI), hours, and costs over 36 months. Increased behavioral problems (NPI-12) over 18 months also negatively impacted ZBI. Cognitive decline (MMSE) over 18 months did not affect change in caregiver burden.Conclusions:Long-term informal caregiver burden was driven by worsening functional abilities and behavioral symptoms but not cognitive decline, over 18 months in community-dwelling patients with AD dementia. Identifying the drivers of caregiver burden could highlight areas in which interventions may benefit both caregivers and patients.

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“…Several studies suggested that female caregivers had a higher burden than men (Rinaldi et al, ; Pattanayak et al, ; Kim et al, ; Park et al, ), especially in the spouse group (Conde‐Sala et al, ; Reed et al, ). Other studies have reported more depressive symptoms in female caregivers associated with the burden (Wolfs et al, ; Bastawrous et al, ).…”

Section: Introductionmentioning

confidence: 99%

Kinship and cohabitation in relation to caregiver burden in the context of Alzheimer's disease: a 24‐month longitudinal study

Viñas-Diez

Turró‐Garriga

Portellano-Ortiz

et al. 2017

Int J Geriat Psychiatry

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Kinship and cohabitation in caregiver burden 1 Viñas-Diez V, Turró-Garriga O, Portellano-Ortiz C, Gascón-Bayarri J, Reñé Ramírez R, Garre-Olmo J, Conde-Sala JL. Kinship and cohabitation in relation to caregiver burden in the context of Alzheimer's disease: a 24-month longitudinal study. Key points• The results of the longitudinal analysis established a greater burden (ZBI) on live-in adult-child caregivers, and a smaller burden on non-live-in adult-child caregivers, with stable scores on the follow-up for both groups. Spouses had a low burden in the early stages, with a significant increase during the follow-up.• Variations between spouses and adult-child caregivers are attributable to the different nature of the marital and child-parent relationship, and to the cohabitation factor.• The different types of caregivers have relevant socio-demographic and clinical features which help to characterize them: gender, cohabitation with persons with dementia, education, marital status, sole caregiver or not sole caregiver, and the use of external resources. Generalized estimating equations (GEE) were used for longitudinal data analysis.Results: Spouse caregivers were 45.0% men, sole caregivers (> 80%), used few external resources, and had worse physical health. The number of female adult-child caregivers was higher (>75%). The live-in adult-child group, compared with the non-live-in adult-child group, were less likely to be married, had a lower level of education, were more commonly the sole caregiver, and used fewer external resources. The greatest burden was observed in live-in adult-child caregivers, and the lowest in the non-live-in adult-child group, with no significant variation in the follow-up for both groups. Spouses had an intermediate level of perceived burden, which rose significantly during follow-up (p <0.001).Conclusions: Kinship and cohabitation with the PwD were associated with different scores and evolution of the burden, with an increase in the follow-up of the spouses, and with more or less burden, depending on cohabitation, in the adult-child groups. Interventions to reduce the level of burden on caregivers should consider these differences.

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Multidimensional determinants of family caregiver burden in Alzheimer's disease

Abstract: It is vital to develop a service and support program with a greater emphasis on the behavioral problems and IADL deficiency of patients with AD as well as on improving the competence ability of caregivers to deal with such difficulties.

Cited by 78 publications

References 23 publications

Caregiver burden assessed in dementia care networks in Germany: findings from the DemNet-D study baseline

Caregiver burden assessed in dementia care networks in Germany: findings from the DemNet-D study baseline

Factors associated with long-term impact on informal caregivers during Alzheimer’s disease dementia progression: 36-month results from GERAS

Kinship and cohabitation in relation to caregiver burden in the context of Alzheimer's disease: a 24‐month longitudinal study

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