Movement disorders in COVID-19 times: impact on care in movement disorders and Parkinson disease

Poonja, Sabrina

doi:10.1097/wco.0000000000001075

Cited by 6 publications

(3 citation statements)

References 84 publications

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“…Vaccine hesitancy is a growing concern worldwide, especially in the current pandemic. The World Health Organization (WHO) has listed vaccine hesitancy as one of the top ten threats to global health [ 37 ]. Although vaccines have been proven effective in preventing infectious diseases, vaccine hesitancy has caused a decrease in vaccination rates, leading to the resurgence of some previously controlled diseases [ 38 ].…”

Section: Introductionmentioning

confidence: 99%

Scale Development for COVID-19 Vaccine Hesitancy by Integration of Socio-Demographic and Psychological Factors

et al. 2023

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Vaccination is the most cost-effective way to maintain population health. However, it can only be effective if widespread acceptance is held. The efficacy of COVID-19 vaccines depends on their favor. When countries start to vaccinate their citizens, there is a certain level of skepticism about the effectiveness of the vaccines. The hesitancy study on vaccines has gained momentum following the pandemic. However, few studies have examined the link between the psychological and sociodemographic factors influencing the fit. This paper proposes integrating the concepts of the information systems success and stimulus–organism–response into a cognitive fit theory framework to explore the integration of psychological and sociodemographic factors in the receivers’ reactions (n = 1510). This study analyses the factors that influence the hesitancy of vaccines and the public’s refusal in Asia and Europe. Receivers’ reactions were assessed to various stimuli and we explored the link between psychological and sociodemographic elements and the concept of fit. Two surveys were conducted following the scale development of Mackenzie. The first was to develop the fit scale, while the second was to validate the fit scale. The results of the second survey were analyzed using structural equation modelling. The results indicate that the scale’s fit development is valid and reliable. The quality of the vaccine information, the psychological characteristics of the vaccine system, and vaccine receivers’ satisfaction are also beneficial factors for emotional and cognitive fit. Maintaining the vaccines’ quality and efficiency can help improve the fit between sociodemographic and psychological characteristics. It can also enhance receivers’ satisfaction and encourage continued vaccine administration. This study is regarded as one of the first to examine and develop an emotional and cognitive fit scale for practitioners and researchers.

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Section: Introductionmentioning

confidence: 99%

Scale Development for COVID-19 Vaccine Hesitancy by Integration of Socio-Demographic and Psychological Factors

et al. 2023

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“… 1 Since the onset of the coronavirus disease 2019 (COVID‐19) pandemic, the caregiving routine for many care partners of PwPD has changed substantially. 2 The pandemic has directly disrupted healthcare provision. Because of pandemic restrictions, medical appointments are less frequent or canceled, switched to online or telephone format, all to reduce possible COVID‐19 exposure.…”

mentioning

confidence: 99%

“…Care partners are of immense importance for people with Parkinson's disease (PwPD) 1 . Since the onset of the coronavirus disease 2019 (COVID‐19) pandemic, the caregiving routine for many care partners of PwPD has changed substantially 2 . The pandemic has directly disrupted healthcare provision.…”

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confidence: 99%

The Impact of the COVID‐19 Pandemic on Care Partners of People with Parkinson's Disease

Speelberg

Hulshoff

Book

et al. 2023

Movement Disord Clin Pract

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Background Since the onset of the coronavirus disease 2019 pandemic, the caregiving routine for care partners of people with Parkinson's disease (PwPD) changed substantially. Objectives To understand the nature and severity of burden in care partners of PwPD during the ongoing pandemic. We also sought to describe care partners' perceived change in burden and factors associated with increased burden. Methods Cross‐sectional online questionnaire‐based study among care partners of PwPD, registered in the Fox Insight study. The questionnaire consisted of the Modified Caregiver Strain Index, whether an aspect of strain had changed over the course of the pandemic and additional pandemic‐specific infection and lifestyle‐related items. Results Two hundred seventy‐three non‐paid primary care partners responded to the questionnaire, 73% female with a median age at enrollment of 64 years, 56% reporting a household income greater than 75,000 USD per year, and 61% retired. An increase in burden compared to before the pandemic was prevalent, ranging from 33% to 63% for individual items. Emotional strain increased most frequently (63%). Decreases in burden were uncommon; work adjustments (7%) and time demands (6%) decreased most frequently. PD‐related factors and care partner roles in personal care of the PwPD were the factors that were associated with strain in multivariable analysis, whereas social and pandemic‐related factors were not. Conclusion In this affluent and mostly retired cohort, increases in emotional strain during the pandemic were prevalent. Despite this, caregiving roles in personal care and severity of symptoms in the PwPD were more strongly associated with strain than social and pandemic‐related factors.

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Epidemiology of Huntington's Disease in Latin America: A Systematic Review and Meta‐Analysis

Medina Escobar,

Pringsheim,

Gautreau

et al. 2024

Movement Disorders

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BackgroundLatin America has played a crucial role in advancing our understanding of Huntington's disease (HD). However, previous global reviews include limited data from Latin America. It is possible that English‐based medical search engines may not capture all the relevant studies.MethodsWe searched databases in Spanish, Portuguese, and English. The names of every country in Latin America in English‐based search engines were used to ensure we found any study that had molecular ascertainment and provided general epidemiological information or subpopulation data. Additionally, we contacted experts across the region.ResultsThe search strategy yielded 791 citations; 24 studies met inclusion criteria, representing 12 of 36 countries. The overall pooled prevalence was 0.64 per 100,000 (prediction interval, 0.06–7.22); for cluster regions, it was 54 per 100,000 (95% CI, 34.79–84.92); for juvenile HD, it was 8.7% (prediction interval, 5.12–14.35), and 5.9% (prediction interval, 2.72–13.42) for late‐onset HD. The prevalence was higher for Mexico, Peru, and Brazil. However, there were no significant differences between Central America and the Caribbean versus South America.ConclusionThe prevalence of HD appears to be similar across Latin America. However, we infer that our findings are underestimates, in part because of limited research and underdiagnosis of HD because of limited access to molecular testing and the availability of neurologists and movement disorders specialists. Future research should focus on identifying pathways to improve access to molecular testing and education and understanding differences among different ancestral groups in Latin America. © 2024 International Parkinson and Movement Disorder Society.

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Movement disorders in COVID-19 times: impact on care in movement disorders and Parkinson disease

Cited by 6 publications

References 84 publications

Scale Development for COVID-19 Vaccine Hesitancy by Integration of Socio-Demographic and Psychological Factors

Scale Development for COVID-19 Vaccine Hesitancy by Integration of Socio-Demographic and Psychological Factors

The Impact of the COVID‐19 Pandemic on Care Partners of People with Parkinson's Disease

Epidemiology of Huntington's Disease in Latin America: A Systematic Review and Meta‐Analysis

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