Methodological quality of dignity‐related patient reported outcome measures used in acute hospital settings: A systematic review using the COSMIN methodology

Fuseini, Abdul‐Ganiyu; Redley, Bernice; Rawson, Helen; Ley, Lenore; Kerr, Debra

doi:10.1111/jocn.16598

Cited by 4 publications

(14 citation statements)

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“…The resulting 15-item PROM with a 5-factor structure covers the major factors that affect hospitalized older adults' dignity as discussed in the literature, including shared decision-making, HCP-patient communication, patient autonomy, patient privacy and respectful care (Kerr et al, 2020;Nouri et al, 2017;Šaňáková & Čáp, 2019;. Previous systematic reviews of dignity-related PROMs have identified the Inpatient Dignity Scale (IPDS) (Ota et al, 2019) and the Patient Dignity Inventory (PDI) (Chochinov et al, 2008) as the most valid and reliable measures for measuring patients' dignity during acute hospitalization (Fuseini, Redley et al, 2023;Lam et al, 2022).…”

Section: Discussionmentioning

confidence: 99%

“…that have not been captured by previous dignity-related measures (Karimi et al, 2019; TA B L E 3 Results of exploratory factor analysis. (Fuseini, Redley et al, 2023;Lam et al, 2022). Another unique contribution of the HOADS to the advancement of knowledge on dignity for older adults is the identification of PROM items that are unique to the Ghanaian and African contexts.…”

Section: Discussionmentioning

confidence: 99%

“…Standard PROM development and validation guidelines require PROM developers to confirm that there are no existing tools that adequately measure the construct for which the new PROM has been developed, or where similar measures exist, to justify the need for the development of a new measure (Boateng et al, 2018; McCoach et al, 2013). Therefore, an earlier systematic review was conducted by the researchers that synthesized evidence on existing dignity‐related PROMs and assessed their methodological quality using the Consensus‐based Standards for the selection of health Measurement Instruments (COSMIN) approach (Fuseini, Redley et al, 2023). The methodological quality assessment involved evaluating measurement properties of each PROM included in the review, for risk of bias, overall quality of evidence and grading of the quality of evidence.…”

Section: Introductionmentioning

confidence: 99%

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Development and psychometric validation of the hospitalized older adults' dignity scale for measuring dignity during acute hospitalization

Fuseini

Mohebbi

Redley

et al. 2023

Journal of Advanced Nursing

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AimTo develop and validate a culturally appropriate patient‐reported outcome measure for measuring dignity for older adults during acute hospitalization.DesignA three‐phased exploratory sequential mixed‐method design was used.MethodsDomains were identified and items were generated from findings of a recent qualitative study, two systematic reviews and grey literature. Content validity evaluation and pre‐testing were undertaken using standard instrument development techniques. Two‐hundred and seventy hospitalized older adults were surveyed to test construct and convergent validity, internal consistency reliability and test–retest reliability of the measure. Analysis was performed using Statistical Package for the Social Sciences, version 25. The STROBE checklist was used to document reporting of the study.ResultsWe established the 15‐item Hospitalized Older Adults' Dignity Scale (HOADS) that has a 5‐factor structure: shared decision‐making (3 items); healthcare professional‐patient communication (3 items); patient autonomy (4 items); patient privacy (2 items); respectful care (3 items). Excellent content validity, adequate construct and convergent validity, acceptable internal consistency reliability and good test–retest reliability were demonstrated.ConclusionWe established the HOADS is a valid and reliable scale to measure dignity for older adults during acute hospitalization. Future studies using confirmatory factor analysis are needed to corroborate the dimensionality of the factor structure and external validity of the scale. Routine use of the scale may inform the development of strategies to improve dignity‐related care in the future.ImpactThe development and validation of the HOADS will provide nurses and other healthcare professionals with a feasible and reliable scale for measuring older adults' dignity during acute hospitalization. The HOADS advances the conceptual understanding of dignity in hospitalized older adults by including additional constructs that have not been captured in previous dignity‐related measures for older adults (i.e. shared decision‐making and respectful care). The factor structure of the HOADS, therefore, includes five domains of dignity and offers a new opportunity for nurses and other healthcare professionals to better understand the nuances of dignity for older adults during acute hospitalization. For example, the HOADS enables nurses to identify differences in levels of dignity based on contextual factors and to use this information to guide the implementation of strategies that promote dignified care.Patient or Public ContributionPatients were involved in the generation of items for the scale. Their perspectives and the perspectives of experts were sought in determining the relevance of each item of the scale to patients' dignity.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Development and psychometric validation of the hospitalized older adults' dignity scale for measuring dignity during acute hospitalization

Fuseini

Mohebbi

Redley

et al. 2023

Journal of Advanced Nursing

Self Cite

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“…Furthermore, human dignity is unique to each person and is shaped by their relationships with others. Additionally, there is a sense that human dignity is a comprehensive concept that extends beyond the sum of its components 11–13 …”

Section: Introductionmentioning

confidence: 99%

“…Additionally, there is a sense that human dignity is a comprehensive concept that extends beyond the sum of its components. [11][12][13] Maintaining patient dignity is a fundamental part of providing quality care. 14 Patients recognize dignity as one of the most important aspects of care and make a direct connection between their sense of dignity and respect and the overall quality of their care.…”

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confidence: 99%

The experiences of psychiatric patients, their caregivers and companions in upholding patient dignity during hospitalization: A qualitative study

Yekaninejad

Raziani

Bernstein

et al. 2023

Health Expectations

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IntroductionThe quality of care and patient satisfaction is closely linked with dignity, which is a crucial component of therapy and care. However, there is very little study on dignity in the context of mental health care. Planning for ongoing patient care might benefit from an understanding of the notion of dignity by exploring the experiences of patients, caregivers and companions of patients who have a history of hospitalization in mental health institutions. To retain patients' dignity while they were being treated in mental wards, this study sought to understand the experiences of patients, caregivers and companions of patients.Materials and MethodsThis investigation was qualitative. Semistructured interviews and focus groups were utilized to collect the data. The purposeful sampling method was employed for participant recruitment, which continued until data saturation. Two focus group discussions and 27 interviews were conducted. Participants included 8 patients, 2 patients' family members (companions), 3 psychologists, 4 nurses and 11 psychiatrists. Two focus group discussions were held with seven family members or companions of patients. Thematic analysis was used for data analysis.ResultsThe primary theme that emerged was the infringement of patients' dignity, through negative guardianship, dehumanization and violations of their rights. Subthemes included dehumanization, worthlessness and namelessness, patient rights violations and stripping patients of authority.ConclusionOur results suggest that, regardless of the severity of the illness, the nature of psychiatric illness significantly compromises patients' dignity. Mental health practitioners, due to their sense of guardianship, may unintentionally treat patients with mental health disorders, thus compromising the patient's dignity.Patient or Public ContributionThe research team's experiences as a psychiatrist, doctor and nurse informed the study's objectives. Nurses and psychiatrists who work in the healthcare industry designed and conducted the study. The primary authors, who are healthcare providers, collected and analysed the required data. Furthermore, the entire study team contributed to the writing of the manuscript. Study participants were involved in the data collection and analysis.

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Self‐reported dignity and factors that influence dignity in hospitalised older adults: A cross‐sectional survey

Fuseini,

Rawson,

Redley

et al. 2023

Journal of Clinical Nursing

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ObjectiveThis study examined levels of self‐reported dignity and explored factors expected to influence dignity experienced by older adults during acute hospitalisation in Ghana.BackgroundDignified care has been recognised as inseparable from quality nursing care and maintaining patients' dignity has been highlighted in professional codes of conduct for nurses. However, there is a lack of research on self‐reported dignity and the factors that influence the dignity of older adults during acute hospitalisation in Africa.SettingA large teaching hospital in the northern region of Ghana.ParticipantsHospitalised older adults.MethodsA cross‐sectional survey was used to gather data from a convenience sample of 270 older inpatients, using the Hospitalized Older Adults’ Dignity Scale. Data were analysed using descriptive statistics and stepwise ordinal logistic regression to investigate stratified dignity outcomes. The study was reported following the STROBE checklist.ResultsMore than half of the older adults surveyed reported low to moderate levels of dignity. Demographic characteristics such as age, marital status, religious status, occupation, level of education and type of hospital ward did not show any significant associations with dignity levels. However, there was a significant association found between dignity levels and sex and the number of hospitalisations.ConclusionMost older adults in a Ghanian hospital experienced loss of dignity during their acute hospitalisation. Male older adults reported higher dignity levels during acute hospitalisation than their female counterparts. Further, older adults who were admitted to hospital for the second time reported less dignity compared to those admitted three or more times.Relevance to clinical practiceThe results emphasise the importance of healthcare professionals having the necessary knowledge and skills to provide gender‐sensitive care, which ultimately promotes the dignity of all patients. Additionally, the results underscore the urgency of implementing measures that guarantee patients' dignity during all hospital admissions.Patient or public contributionSurvey questionnaires were completed by hospitalised older adults at the study setting.

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Methodological quality of dignity‐related patient reported outcome measures used in acute hospital settings: A systematic review using the COSMIN methodology

Cited by 4 publications

References 84 publications

Development and psychometric validation of the hospitalized older adults' dignity scale for measuring dignity during acute hospitalization

Development and psychometric validation of the hospitalized older adults' dignity scale for measuring dignity during acute hospitalization

The experiences of psychiatric patients, their caregivers and companions in upholding patient dignity during hospitalization: A qualitative study

Self‐reported dignity and factors that influence dignity in hospitalised older adults: A cross‐sectional survey

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