Meeting the needs of parents after a stillbirth or neonatal death

Flenady, Vicki; Boyle, Frances M.; Koopmans, Laura; Wilson, Trish; Stones, William; Cacciatore, Joanne

doi:10.1111/1471-0528.13009

Cited by 117 publications

(129 citation statements)

References 15 publications

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Section: Discussionmentioning

confidence: 99%

“…Therefore, it was observed that the social need of live-birth parents, supported by professional support in relation to the improvement in the communication of the couple and the quality of the marital relationship (23) , is the same as that shown by parents of stillborns (24) . There is a need for recognition of fetal death by society, as the participation of parents in the death process with support from family, friends, and health professionals is critical to coping and overcoming the loss (24) . After the occurrence of stillbirth, women control their emotions by themselves; they feel isolated with their problems and concerns, and do not find room to express their affliction, blocking the elaboration of their grief and causing a negative impact on their mental health (4,25) .…”

Section: Discussionmentioning

confidence: 99%

“…Health professionals are able to offer the possibility of memories (physical and visual contact, hair, fingerprints, toes, etc.) of the stillborn to the parents, but they need training to secure and understand the support necessary to this situation (24,26) . Coping with grief by parents achieves better results when they have the opportunity to meet their babies (27) .…”

Section: Discussionmentioning

confidence: 99%

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Factors associated with the grief after stillbirth: a comparative study between Brazilian and Canadian women

Paris

Montigny

Pelloso

2016

Rev. esc. enferm. USP

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Factors associated with the grief after stillbirth: a comparative study between Brazilian and Canadian women * Extracted from the thesis "Luto por óbito fetal: estudo comparativo entre mulheres brasileiras e canadenses", Programa ABSTRACT Objective:To verify the association between complicated grief and sociodemographic, reproductive, mental, marital satisfaction, and professional support characteristics in women after stillbirth. Method: Cross-sectional study with 26 women who had stillbirth in 2013, living in the city of Maringá, Brazil, and eight women who attended the Centre d'Études et de Recherche en Intervention Familiale at the University of Quebec en Outaouais, in Canada. The instrument was administered as an interview to a small number of mothers of infants up to three months (n=50), who did not participate in the validation study. Results: By applying the short version of the Perinatal Grief Scale, the prevalence of complicated grief in Brazilian women was found to be higher (35%) in relation to Canadian women (12%). Characteristics of the Brazilian women associated with the grief period included the presence of previous pregnancy with live birth, absence of previous perinatal loss, postpartum depression, and lack of marital satisfaction. For the Canadians it was observed that 80% of the women presenting no grief made use of the professional support group. In both populations the occurrence of complicated grief presented a higher prevalence in women with duration of pregnancy higher than 28 weeks. Conclusion: The women that must be further investigated during the grief period are those living in Brazil, making no use of a professional support group, presenting little to no marital satisfaction, having no religion, and of a low educational level.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Factors associated with the grief after stillbirth: a comparative study between Brazilian and Canadian women

Paris

Montigny

Pelloso

2016

Rev. esc. enferm. USP

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“…A formação de memória da criança que morreu aparece em alguns estudos como atividade fundamental para trazer conforto no processo de luto (33)(34)(35), assim como a possibilidade dos pais terem contato com a criança morta antes do funeral (33).…”

Section: Eua Psycinfounclassified

Suporte aos pais que vivenciam a perda do filho neonato: revisão de literatura

Rodrigues¹,

Shimo²,

Carmona³

et al. 2018

Aquichan

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Objetivos: investigar y discutir publicaciones acerca del soporte relacionado al duelo de padres que vivencian la pérdida del hijo neonato. Material y método: revisión crítica de literatura con búsqueda en las bases de datos CINAHL, Embase, PubMed, PsycINFO y Scopus, de artículos publicados entre enero del 2010 y julio del 2017, utilizando análisis temática para el tratamiento de los datos recolectados. Resultados: se diseñaron tres categorías temáticas: 1) apoyo y soporte a los padres que vivencian la experiencia de la pérdida del hijo neonato; 2) sentimientos de los padres ante situaciones de muerte y duelo, y 3) participación de los padres en el proceso de tratamiento y pronóstico del hijo. Se destacaron algunas necesidades: mejor preparo de los profesionales, comunicación adecuada; formación de memoria del neonato, vínculo de los padres en el proceso de muerte. Conclusiones: se evidencia la diversidad cultural en la experiencia de duelo, la que se debe considerar en el cuidado al enlutado; la continuidad del vínculo con familiares luego del proceso de muerte/morir del neonato puede ser fuente de prevención de trastornos durante el duelo. Reflexionar sobre directrices, políticas y formación curricular ampliada puede traer diferencial al equipo de salud en la asistencia al duelo y, por ende, a la salud mental.

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“…Lapsen kuoleman jälkeen surusta selviytymisessä voivat vanhempia auttaa esimer kiksi lapseen liittyvien muistojen vaaliminen (10,(41)(42)(43), emotionaalisen tuen saaminen (11,37,44), asiasta keskustelemisen mahdollistaminen (40,42,45) ja kokemuksen jakaminen (11)(12)(13)42). Kontaktin säilyminen hoitolaitokseen lap sen kuoleman jälkeen (12, 40, 42), psykologinen tuki (14,43), tiedollinen tuki (13,40,42,44), käytännönläheinen tuki (13,37), sekä erilaiset virtuaaliset tukimuodot (11,43) saattavat myös edistää vanhempien surusta selviytymistä. Sen sijaan ei ole juurikaan tietoa siitä, minkälaista tukea vanhemmat ovat saaneet parisuhteeseensa tai miten annettu tuki olisi vaikuttanut parisuh teeseen.…”

Section: Tuki Lapsen Kuoleman Jälkeenunclassified

Vanhempien parisuhteeseensa toivoma tuki lapsen kuoleman jälkeen

Manninen¹,

Kaunonen²,

Aho³

2017

SLA

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Lapsen kuoleman tiedetään vaikuttavan vanhempien parisuhteeseen. Kuitenkaan vanhempientoiveita parisuhteen tukemiseen liittyen lapsen kuoleman jälkeen ei ole tutkittu. Tämä tutkimus onosa laajempaa tutkimusta, jossa selvitettiin lapsen kuoleman vaikutuksia esimerkiksi vanhempienparisuhteeseen. Tämän osatutkimuksen tarkoituksena oli kuvata vanhempien parisuhteeseensatoivomaa tukea lapsen kuoleman jälkeisessä elämäntilanteessa. Vastaajina tässä tutkimuksessaolivat vanhemmat (n=236), joilla oli omakohtainen kokemus lapsen kuolemasta. Tutkimusaineistokerättiin surujärjestöjen verkkosivujen kautta sähköisellä lomakkeella ja analysoitiin käyttäeninduktiivista sisällönanalyysia. Lapsen kuoleman kokeneet vanhemmat toivoivat parisuhteeseensatukea pariskuntana elämässä eteenpäin menemiseen. Tuki pariskuntana elämässä eteenpäinmenemiseen muodostui toiveesta saada huomioivaan kanssakäymiseen perustuvaa tukea,kokemuksen jakamiseen perustuvaa tukea, pariskunnan arkea helpottavaa tukea, ammattilaistenantamaa tukea ja parisuhdetta lujittavaa tukea. Tämän tutkimuksen perusteella voidaantodeta, että lapsen kuoleman jälkeen tukea parisuhteeseen saadaan vähemmän, kuin toivotaan.Vanhempien toivoma tuki sisältää aineettoman, mutta myös hyvin konkreettisen tuen saamisensekä läheisiltä, että ammattilaisilta.

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Meeting the needs of parents after a stillbirth or neonatal death

Cited by 117 publications

References 15 publications

Factors associated with the grief after stillbirth: a comparative study between Brazilian and Canadian women

Factors associated with the grief after stillbirth: a comparative study between Brazilian and Canadian women

Suporte aos pais que vivenciam a perda do filho neonato: revisão de literatura

Vanhempien parisuhteeseensa toivoma tuki lapsen kuoleman jälkeen

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