Measuring caregiver activation for health care: Validation of PBH-LCI:D

Sadak, Tatiana; Korpak, Anna; Borson, Soo

doi:10.1016/j.gerinurse.2015.03.003

Cited by 25 publications

(34 citation statements)

References 26 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…CG + patients + professionals 2013/ Netherlands [70]Zwaanswijk et al1494 informal CGs (caregiving <1 year =89, 1-4 years =744 and >4 years =661); 71.7% female; 58.2% spouse.Self-administeredProfessional support needs35 problems and 59 needs for additional support (currently received and needs).yesNo, questionnaire developed for the studyCG 2015/ USA [23]Jennings et al307 informal CGs; 64% female; 41% spouseSelf-administeredCare needs and self-efficacyNine-item scale with three domains: perception of the primary care provider, advice on dementia-related topics and self-efficacy for caring and for accessing help. Five-point rating scale.yesNo, scale developed for the studyCG + professionals 2015/ USA [30]Sadak et alBaseline: 130 CGs; 80% female; 63% spouse; mean age = 66 years. Re-test: 79 CGsSelf-administeredKnowledge and skills35 items (23 “knowledge” and 12 “skills” items).…”

Section: Resultsmentioning

confidence: 99%

“…Re-test: 79 CGsSelf-administeredKnowledge and skills35 items (23 “knowledge” and 12 “skills” items). 5-level Likert type response scale.yesYes - Partnering for Better Health - Living with Chronic Illness: Dementia (PBH-LCI:D)Psychometric properties tested in CGs of PWD (Cronbach’s alpha 0.95) [30]. CG

AD Alzheimer’s Disease, ADRD Alzheimer’s Disease and Related Disorders, CG caregiver, EOD Early-Onset Dementia, FTD FrontoTemporal Dementia, MCI Mild Cognitive Impairment, PWD People With Dementia, QOL Quality Of Life

…”

Section: Resultsmentioning

confidence: 99%

“…For each problem area, several possible interventions are proposed: individual psychoeducation, psychoeducational group, self-help group for family members, printed information material, and other intervention. A second instrument called Partnering for Better Health - Living with Chronic Illness: Dementia (PBH-LCI:D) was used to evaluate the acquired knowledge and skills allowing to indirectly assess the dementia caregiver’s needs [30]. This instrument with 35 items was not specifically developed to needs assessment.…”

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer’s disease or related diseases? A systematic review of quantitative and qualitative studies

et al. 2017

View full text Add to dashboard Cite

BackgroundThis study aims to review the methodologies used to identify the needs, the existing needs assessment instruments and the main topics of needs explored among caregivers of patients with mild cognitive impairment to dementia.MethodsMEDLINE, PsycINFO, The Cochrane Library and Web of science were searched from January 1980 to January 2017. Research studies in English or French were eligible for inclusion if they fulfilled the following criteria: quantitative, qualitative and mixed method studies that used instrument, focus group or semi-structured interviews to assess the informal caregiver’s needs in terms of information, coping skills, support and service.ResultsSeventy studies (n = 39 quantitative studies, n = 25 qualitative studies and n = 6 mixed method studies) met the inclusion criteria and were included. Thirty-six quantitative instruments were identified but only one has been validated for the needs assessment of dementia caregivers: the Carer’s Needs Assessment for Dementia (CNA-D). The main areas of needs explored in these instruments were: information, psychosocial, social, psychoeducational and other needs.ConclusionsNo instrument has been developed and validated to assess the needs of informal caregivers of patients with cognitive impairment, whatever the stage and the etiology of the disease. As the perceived needs of caregivers may evolve with the progression of the disease and the dementia transition, their needs should be regularly assessed.Electronic supplementary materialThe online version of this article (doi:10.1186/s12877-017-0481-9) contains supplementary material, which is available to authorized users.

show abstract

Section: Resultsmentioning

confidence: 99%

…”

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer’s disease or related diseases? A systematic review of quantitative and qualitative studies

et al. 2017

View full text Add to dashboard Cite

show abstract

“…There also can be different versions of a measure that address either a general population or a specific population, which challenges instrument consistency across studies. For example, the initial studies used the original 13-item Patient Activation Measure (PAM; Hibbard, Stockard, Mahoney, & Tusler, 2004) but in the second round of studies that focused on caregiver self-management, the 10-item Caregiver PAM (Sadak, Korpak, & Boorson, 2015) was more desirable.…”

Section: Methods and Resultsmentioning

confidence: 99%

Feasibility of Combining Common Data Elements Across Studies to Test a Hypothesis

Corwin

Moore

Plotsky

et al. 2017

J of Nursing Scholarship

View full text Add to dashboard Cite

Purpose The purpose of this article is to describe the outcomes of a collaborative initiative to share data across five schools of nursing in order to evaluate the feasibility of collecting common data elements (CDEs) and developing a common data repository to test hypotheses of interest to nursing scientists. This initiative extended work already completed by the National Institute of Nursing Research CDE Working Group that successfully identified CDEs related to symptoms and self-management, with the goal of supporting more complex, reproducible, and patient-focused research. Design Two exemplars describing the group’s efforts are presented. The first highlights a pilot study wherein data sets from various studies by the represented schools were collected retrospectively, and merging of the CDEs was attempted. The second exemplar describes the methods and results of an initiative at one school that utilized a prospective design for the collection and merging of CDEs. Methods Methods for identifying a common symptom to be studied across schools and for collecting the data dictionaries for the related data elements are presented for the first exemplar. The processes for defining and comparing the concepts and acceptable values, and for evaluating the potential to combine and compare the data elements are also described. Presented next are the steps undertaken in the second exemplar to prospectively identify CDEs and establish the data dictionaries. Methods for common measurement and analysis strategies are included. Findings Findings from the first exemplar indicated that without plans in place a priori to ensure the ability to combine and compare data from disparate sources, doing so retrospectively may not be possible, and as a result hypothesis testing across studies may be prohibited. Findings from the second exemplar, however, indicated that a plan developed prospectively to combine and compare data sets is feasible and conducive to merged hypothesis testing. Conclusions Although challenges exist in combining CDEs across studies into a common data repository, a prospective, well-designed protocol for identifying, coding, and comparing CDEs is feasible and supports the development of a common data repository and the testing of important hypotheses to advance nursing science. Clinical Relevance Incorporating CDEs across studies will increase sample size and improve data validity, reliability, transparency, and reproducibility, all of which will increase the scientific rigor of the study and the likelihood of impacting clinical practice and patient care.

show abstract

“…The instruments that have been developed so far for learning about the experience of caregivers have explored, fundamentally, the emotional burden that caring for a family member entails [ 25 ]. They have identified affective disorders and insomnia as the most frequent consequences that result from continually caring for a family member over time [ 25 ], or they have focused on aspects related to activation of the patient but not for the caregiving person [ 26 , 27 ]. The Caregivers Experience Instrument, unlike other instruments, explores elements of integrated health and social care for both the patient and caregiver alike, which can facilitate the caregiving experience and therefore manage their burdens and improve their quality of life.…”

Section: Discussionmentioning

confidence: 99%

The Measure of the Family Caregivers’ Experience

Guilabert

Amil

González-Mestre

et al. 2018

IJERPH

View full text Add to dashboard Cite

Objective: Design and validate a measure of the experience of family caregivers with the integrated care that receive the persons they care for. Methods: The new instrument for measuring the experience of caregivers is based on the Instrument to Evaluate the EXperience of PAtients with Chronic Diseases (acronym in Spanish: IEXPAC) scale instrument. With the qualitative technique of the discussion group, nine professionals and eight caregivers assessed the face validity of the instrument and they advised on issues to explore and the measuring scale to use. The instrument’s items were analyzed individually, as well as its consistency, reliability, and construct and empirical validity. Results: 235 caregivers responded, of which 186 (79%) were women. The average age of the persons under their care was 83.9 years (SD 9.7). The scale’s score when eliminating its items one by one ranged between 38.6 and 41.1. The factorial saturations of the items ranged between 0.53 and 0.82. Cronbach’s alpha (12 elements) was 0.88 and the Kuder-Richardson coefficient was 0.91. The factorial solution explained 64.3% of the total variance and allowed isolating two factors (with 11 items with saturations greater than 0.65): care for the patient, and care for the caregiver. The internal consistency of both factors was greater than 0.80. The scale’s score was 41.1 (SD 9.7). Conclusions: The Caregivers Experience Instrument combines acceptability, ease of comprehension, and perceived usefulness for the caregivers. It has adequate internal consistency, reliability, and construct and empirical validity.

show abstract

Measuring caregiver activation for health care: Validation of PBH-LCI:D

Cited by 25 publications

References 26 publications

How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer’s disease or related diseases? A systematic review of quantitative and qualitative studies

How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer’s disease or related diseases? A systematic review of quantitative and qualitative studies

Feasibility of Combining Common Data Elements Across Studies to Test a Hypothesis

The Measure of the Family Caregivers’ Experience

Contact Info

Product

Resources

About