Measurement of Family-centered care perception and parental stress in a neonatal unit

Balbino, Flávia Simphronio; Balieiro, Maria Magda Ferreira Gomes; Mandetta, Myriam Aparecida

doi:10.1590/1518-8345.0710.2753

Cited by 32 publications

(28 citation statements)

References 19 publications

(28 reference statements)

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“…Before it, the manifest attitude was to avoid them and / or not to favor interactions that effected dialogues. These findings are in line with a study on family-centered care (20) , where nurses reveal knowledge about aspects related to this care, but point out that this practice is not fully incorporated into the routine; emphasize how insufficient collaboration and interprofessional support for it, lack of Permanent Education programs that address the theme and cultural dissonances.…”

Section: Discussionsupporting

confidence: 84%

Developmental Care: assistance of nurses from Neonatal Intensive Care Units

et al. 2018

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Objective: to analyze the Developmental Care in nursing care for Newborns in critical Neonatal Intensive Care Units. Method: a qualitative study with 11 nurses from Neonatal Intensive Care Units of a city in the State of São Paulo countryside, based on the Developmental Care. Data collection was based on non-participant observation, documentary research in medical records and semi-structured interviews. The Symbolic Interactionism was adopted as theoretical framework, and the Bardin Content Analysis, as method of analysis. Results: nurses have knowledge about Developmental Care; however, there are dissonances with doing them. The analysis is presented from two thematic categories: "Nurses' performance in the Developmental Care" and "Nurse, Family and Developmental Care". Final considerations: it is necessary to encourage reflections on the care of nurses regarding Developmental Care, and to foster sensitivity and perception in relation to the executed and registered.

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“…Much has been discussed about paradigm shift, focusing on the patient and his family, aiming at the quality of life and the humanization of health care, rather than focusing on the phenomenon of the disease. One approach that has already been used in some countries is family centered care, which can be characterized as a philosophy designed to bring care to the patient and family (1) .…”

Section: Introductionmentioning

confidence: 99%

“…The health team working in a neonatal intensive care unit shows greater attention to family centered care (1)(2)5) . In view of this, the following question arises: what is the real understanding of the members of the nursing team, who act directly with the patient and his family, on family centered care in a neonatal intensive care unit?…”

Section: Introductionmentioning

confidence: 99%

Family centered care and practice in the neonatal intensive care unit

et al. 2019

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Objective: to understand the nursing team's perception regarding family centered care and its practice in the neonatal intensive care unit. Methods: qualitative research, based on the assumptions of Family Centered Care with 19 nursing professionals. Data were analyzed using a content analysis technique. Results: two categories emerged: effective communication as the foundation of the team and family bond; interferences in the care process in the neonatal intensive care unit. Conclusion: the perception of the professionals about the reception of the family, realization of strategies to facilitate the permanence of the parents in the unit and the creation of a team and family bond, notwithstanding the social contexts of the families, as well as the inexperience, the feelings of fear with the fragile new family member and the difficulty of effective communication between the team and the family are aspects that interfere in the practice of family centered care.

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“…Instruments to measure psychosocial phenomena have been developed in the literature by scholars and are objective tools for nurses to know and support their interventions 14 - 16 .In Brazil, there are no studies addressing the perspective of health professionals on the subject with the use of objective instruments. For this reason, it is necessary to develop and validate instruments that enable evaluating the professionals’ beliefs and perceptions about this issue.…”

Section: Introductionmentioning

confidence: 99%

Validation of instruments about family presence on invasive procedures and cardiopulmonary resuscitation in pediatrics

Ferreira

Balbino

Balieiro

et al. 2018

Rev. Latino-Am. Enfermagem

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Objective:to develop and validate instruments to identify health professionals’ beliefs related to the presence of the child’s family in invasive procedures and in cardiopulmonary resuscitation. Method:study based on Psychometrics to conduct the theoretical, empirical and analytical stages, developed in a neonatal unit of a university hospital. The two instruments were constructed based on the literature and applied to 96 health professionals. Results:the Cronbach’s Alpha of the instrument related to the professionals’ beliefson invasive procedures was 0.863 and the instrument on cardiopulmonary resuscitation was 0.882. In both instruments, the tests performed indicated a correlation between the items. From the factorial analysis, four factors were generated: (1) benefits of the presence of the family; (2) impairment for professional practice; (3) strategies for the inclusion of the family; and (4) limitation of learning and decision making by the professional. Conclusion:the instruments analyzed obtained a good internal consistency and are indicators of the professionals’ beliefs with the potential to evaluate the quality of family care in this context.

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“…It is essential that the multidisciplinary team develop a differentiated care, encompassing the child and his family. To this end, the model of care centered on the patient and the family is an innovative and effective strategy in establishing a partnership between health professionals, family, and child (7) . It is internationally recognized for being a model of care in which the family is an essential source of support and the main focus of attention is not the disease but the individual and his family (8) .…”

Section: Introductionmentioning

confidence: 99%

Family-centered care in a pediatric intensive care unit: professionals’ perceptions

Sampaio¹,

Zonta²,

Ferreira³

et al. 2017

Rev Rene

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Objective: to identify the professionals' perception regarding family-centered care. Methods: this is a crosssectional descriptive study with 60 professionals from a pediatric intensive care unit. The Brazilian Family-Centered Care Perception instrument was applied. Data were analyzed using descriptive and analytical statistics, Student's t-test and Mann-Whitney test were used to compare variables. Results: the mean of the familycentered perception of care was 2.93 (±0.27), the median of 2.90, a maximum score of 3.50 and minimum of 2.30. Most professionals (60.0%) considered that family-centered care is sometimes practiced. The mean scores did not have statistically significant differences between the characterization variables of the team. Conclusion: perception of care distant from the recommendations of an extended care that aggregate the child and his family. Descriptors: Pediatric Nursing; Child; Family; Critical Care. Objetivo: identificar a percepção dos profissionais com relação ao cuidado centrado na família. Métodos: estudo descritivo transversal com 60 profissionais de uma unidade de terapia intensiva pediátrica e aplicou-se o instrumento Percepção do Cuidado Centrado na Família-Equipe versão brasileira. Os dados foram analisados a partir da estatística descritiva e analítica, utilizou-se o teste t-Student e o teste de Mann-Whitney para comparação entre as variáveis. Resultados: a média do escore de percepção do cuidado centrado na família foi 2,93 (±0,27), mediana de 2,90, escore máximo de 3,50 e mínimo de 2,30. A maioria dos profissionais (60,0%) considerou que o cuidado centrado na família às vezes é praticado. Os escores médios não apresentaram diferenças estatisticamente significantes entre as variáveis de caracterização da equipe. Conclusão: percepção de cuidado distante das recomendações de um cuidado ampliado que agrega a criança e sua família.

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Measurement of Family-centered care perception and parental stress in a neonatal unit

Cited by 32 publications

References 19 publications

Developmental Care: assistance of nurses from Neonatal Intensive Care Units

Family centered care and practice in the neonatal intensive care unit

Validation of instruments about family presence on invasive procedures and cardiopulmonary resuscitation in pediatrics

Family-centered care in a pediatric intensive care unit: professionals’ perceptions

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