Meaning-making as a coping strategy among transgender women living with HIV in Indonesia

Fauk, Nelsensius Klau; Merry, Maria Silvia; Mwanri, Lillian

doi:10.1080/09540121.2020.1716934

Cited by 13 publications

(20 citation statements)

References 15 publications

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“…This paper explores strategies used by mothers or female caregivers of children with a disability in Belu, Indonesia to cope with a range of childhood disability-related challenges. Consistent with the constructs of coping strategy framework used in this study and the findings of previous studies [ 12 , 15 – 17 , 36 , 44 ], the current study suggests that learning to accept (cognitive or acceptance coping) the condition of their children with a disability was used by these women as a proactive strategy to cope with psychological challenges. In addition to the existing knowledge about acceptance coping, it suggests that being prepared at the time of diagnosis, such as talking with healthcare professionals, helped the participants to accept their child’s condition and cope with negative psychological consequences, such as feeling sad and stressed following the diagnosis.…”

Section: Discussionsupporting

confidence: 88%

Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia

Abanit¹,

Fauk

Ward

et al. 2021

PLoS ONE

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Caring for children with a disability can cause a range of psychological and socioeconomic challenges for parents and caregivers, such as anxiety, depression, inability to find affordable and appropriate childcare, loss of income and expenses related to disability specific treatment. As part of a study exploring the impacts of childhood disability on mothers or female caregivers and families, and the copy strategies they used, this paper describes strategies employed by mothers or female caregivers to cope with challenges associated with childhood disability within their family in Belu district, Indonesia. A qualitative approach using one-on-one in-depth interviews was used to collect data from participants (n = 22) who were recruited using a combination of purposive and snowball sampling techniques. Interviews were recorded, transcribed verbatim and imported to NVivo 12 for analysis. A qualitative framework analysis was used to guide data analysis. The conceptual framework of coping strategies guided the conceptualisation and discussion of the findings. The findings showed that active psychological coping strategies, including cognitive or acceptance strategies, knowledge of both health condition and socio-academic related development of children with a disability, and family relationship and support, were used by the participants to cope with psychological challenges facing them. Self-reliance and religious/spiritual coping strategies were also utilised. Sociocultural strategies, such as social withdrawal or disengagement, professional support and culture-based support, were used by the participants to cope with social impacts, stigma, and discrimination associated with childhood disability. Participants also reported using financial strategies such as selling of family assets to cope with the economic challenges. The findings indicate the need for programs and interventions that address the needs of mothers and female caregivers and their families, to assist with effectively managing the significant challenges they face when caring for a child with a disability. Further studies are needed, with a larger number of participants and the inclusion of fathers or male caregivers, in order to better understand the broader coping experience of childhood disability impacts within families.

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Section: Discussionsupporting

confidence: 88%

Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia

Abanit¹,

Fauk

Ward

et al. 2021

PLoS ONE

Self Cite

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“…This collaborates with studies conducted in northwest Ethiopia and Somalia [ 46 , 47 ]. Moreover, these findings support other studies conducted in Indonesia that participants used strategies, including “meaning-making”- a psychological process of accepting their disease status that helped their attitudes to think positive about life, self-reliance, religious/spiritual, openly talking and sharing their psychological state of mind with families, and awareness of the importance of family supports as a mechanism to cope with the challenging conditions of their disease; cognitive or acceptance strategies, knowledge of health condition, family relationship and support to cope with psychological challenges; social withdrawal to cope with social impacts, stigma, and discrimination [ 48 , 49 ]. A similar study in Mali showed that women with fistulas linked their urinary inconsistence to sexually transmitted infections to cope with a painful social life; particularly to avoid stigma [ 40 ].…”

Section: Discussionmentioning

confidence: 99%

Challenges and coping mechanisms among women living with unrepaired obstetric fistula in Ethiopia: A phenomenological study

2022

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Introduction Obstetric fistula remains a debilitating complication of childbirth and maternal morbidity in developing countries. Few studies document the challenges and coping mechanisms among women living with obstetric fistula in Ethiopia. Therefore, this study aimed to explore the challenges and coping mechanisms among women with obstetric fistula in Ethiopia. Methods A phenomenological study was employed among purposively selected eleven women with obstetric fistula and three key informants at five fistula treatment centers in Ethiopia. An in-depth interview was conducted, audio-recorded, and transcribed into a Microsoft Word document. The transcripts were imported into Atlas. ti version 8.4 for thematic analyses. Results Painful social life, consequences of fistula, and coping mechanisms with fistula problems were the main themes in this study. Difficult social life, stigma, discrimination, impaired marital status; psychological, physical, sexual, and reproductive health problems were the major challenges for women with obstetric fistulas. Women with fistulas used coping mechanisms such as—going to spiritual sites and drinking alcohol to cope with their fistula disease; separating themselves from community participation and living alone in the forest to cope with a painful social life; restricting the amount of drinking water and wearing many clothes at a time to cope with wetness and odors, and allowing their husband to marry a new wife to cope with the impaired marital responsibilities. Conclusion Women with obstetric fistulas encountered challenges such as a painful social life, impaired marital status, psychological, physical, sexual, and reproductive health problems; and used coping mechanisms with their fistula condition, difficult social life, and impaired marital responsibility that may have an added negative effect on their overall health. Therefore, policymakers need to prioritize the availability and early utilization of obstetric fistula surgery in all settings for all women living with obstetric fistulas to restore their holistic health.

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“…At the interpersonal level, WLHIV cope with HIV-related mental health challenges by seeking emotional, information, spiritual, financial, and material support from parents, siblings, partners, friends and religious leaders [26,27,30,35]. There is also evidence for the benefits of peer group support with other PLHIV, through meetings and other peer group activities [28,31,36,37]. At the organisational level, WLHIV cope through support from healthcare professionals and healthcare services [26], the church [38], and through utilising appropriate support systems for HIV-related financial assistance [30].…”

Section: Introductionmentioning

confidence: 99%

Understanding coping strategies of mothers living with HIV who care for children living with HIV: a qualitative study in Indonesia

et al. 2023

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HIV infection and its sequelae continue to be a significant challenge among women and their families in developing countries despite the progress that has been made in the prevention and treatment of HIV. This paper describes the strategies employed by mothers with HIV to cope with the various challenges experienced following their own and their children’s HIV diagnosis. This paper uses previously unpublished data collected for a study that sought to explore the mental health challenges and coping strategies of mothers living with HIV (MLHIV) (n = 23) who have children living with HIV (CLHIV). Data collection was conducted using in-depth interviews, and participants were recruited using the snowball sampling technique. The concept of meaning-making was used to guide the conceptualisation, analysis, and discussion of the findings. Our analysis showed that meaning-making such as the awareness of how important mothers were to their children/CLHIV and families and religious meaning were used by participants to cope with HIV-related and mental health challenges they faced. The meaning of mother-child relationship which was supported and maintained through the provision of time, attention and fulfillment of CLHIV’s needs were also coping strategies employed by these women. Additional coping strategies used were to link their CLHIV to groups and activities of CLHIV. The connections made through these links enabled their children to know other CLHIV, build relationships, and share experiences. These findings are useful evidence that can inform policies and practices and indicate the need for the development of intervention programs that address the needs of MLHIV and their families to cope with HIV-related challenges of their children. Future large-scale studies involving MLHIV who have CLHIV are recommended to have a comprehensive understanding of strategies they employ to cope with HIV-related challenging circumstances and mental health issues that they continue to face.

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Meaning-making as a coping strategy among transgender women living with HIV in Indonesia

Cited by 13 publications

References 15 publications

Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia

Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia

Challenges and coping mechanisms among women living with unrepaired obstetric fistula in Ethiopia: A phenomenological study

Understanding coping strategies of mothers living with HIV who care for children living with HIV: a qualitative study in Indonesia

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