Letters to Medical Devices: A Case Study on the Medical Device User Requirements of Female Adolescents and Young Adults with Type 1 Diabetes

McCarthy, Gillian M.; Ramírez, Edgar R. Rodríguez; Robinson, Brian

doi:10.1007/978-3-319-55134-0_6

Cited by 3 publications

(31 citation statements)

References 24 publications

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“…Included studies were from the United States (n=7) [ 20 , 37 , 39 , 41 , 44 , 50 , 52 ], United Kingdom (n=5) [ 38 , 43 , 47 , 48 , 51 ], Canada (n=2) [ 42 , 49 ], New Zealand (n=1) [ 40 ], France (n=1) [ 46 ], and Australia (n=1) [ 45 ]. Study methodology included in-depth or semistructured face-to-face interviews [ 38 , 40 , 42 , 43 , 48 , 49 ], surveys and questionnaires [ 20 , 44 - 48 , 50 - 52 ], focus groups [ 37 , 49 ], and analysis of online blog posts and comments [ 39 , 41 ]. Experiences with technologies examined included studies on CGM [ 38 , 39 , 44 , 49 - 52 ], FGM [ 46 ], CPGM [ 20 ], insulin pump therapy and bolus advisers [ 43 ], CSII [ 45 ], SAPT [ 42 ], and HCL/CL [ 37 , 48 ].…”

Section: Resultsmentioning

confidence: 99%

“…Experiences with technologies examined included studies on CGM [ 38 , 39 , 44 , 49 - 52 ], FGM [ 46 ], CPGM [ 20 ], insulin pump therapy and bolus advisers [ 43 ], CSII [ 45 ], SAPT [ 42 ], and HCL/CL [ 37 , 48 ]. Some studies included experiences of using insulin pumps and/or CGM [ 40 , 41 , 47 ]. Study sample sizes ranged from 6 to 347, with participants comprised of parents and young people, with ages ranging from 4 to 24 years.…”

Section: Resultsmentioning

confidence: 99%

“…Potential users of SAPT expected increased spontaneity and independence, feelings of normality, improved physical performance, and minimized SMBG, as well as reduced hypoglycemic and hyperglycemic episodes in adolescents [ 42 ]. Parents expected SAPT to simplify diabetes management and to enable a “normal” life for their child, while adolescents expected that CGM and insulin pump data sharing would reduce parental anxiety at night [ 40 ].…”

Section: Resultsmentioning

confidence: 99%

“…Eight studies on CL [ 48 ], HCL [ 37 ], CPGM [ 20 ], CGM [ 38 - 40 , 51 ], and SAPT [ 42 ] discussed the impact that devices had on relationships, and nine studies on CPGM [ 20 ], HCL [ 37 ], CGM [ 39 , 40 , 49 , 51 ], SAPT [ 42 ], FGM [ 46 ], and pump/bolus advisors [ 43 ] examined devices and independence of young people in their disease management.…”

Section: Resultsmentioning

confidence: 99%

See 3 more Smart Citations

Experiences of Young People and Their Caregivers of Using Technology to Manage Type 1 Diabetes Mellitus: Systematic Literature Review and Narrative Synthesis

Brew‐Sam¹,

Chhabra²,

Parkinson³

et al. 2021

JMIR Diabetes

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Background In the last decade, diabetes management has begun to transition to technology-based care, with young people being the focus of many technological advances. Yet, detailed insights into the experiences of young people and their caregivers of using technology to manage type 1 diabetes mellitus are lacking. Objective The objective of our study was to describe the breadth of experiences and perspectives on diabetes technology use among children and adolescents with type 1 diabetes mellitus and their caregivers. Methods This systematic literature review used integrated thematic analysis to guide a narrative synthesis of the included studies. We analyzed the perspectives and experiences of young people with type 1 diabetes mellitus and their caregivers reported in qualitative studies, quantitative descriptive studies, and studies with a mixed methods design. Results Seventeen articles met the inclusion criteria, and they included studies on insulin pump, glucose sensors, and remote monitoring systems. The following eight themes were derived from the analysis: (1) expectations of the technology prior to use, (2) perceived impact on sleep and overnight experiences, (3) experiences with alarms, (4) impact on independence and relationships, (5) perceived usage impact on blood glucose control, (6) device design and features, (7) financial cost, and (8) user satisfaction. While many advantages of using diabetes technology were reported, several challenges for its use were also reported, such as cost, the size and visibility of devices, and the intrusiveness of alarms, which drew attention to the fact that the user had type 1 diabetes mellitus. Continued use of diabetes technology was underpinned by its benefits outweighing its challenges, especially among younger people. Conclusions Diabetes technologies have improved the quality of life of many young people with type 1 diabetes mellitus and their caregivers. Future design needs to consider the impact of these technologies on relationships between young people and their caregivers, and the impact of device features and characteristics such as size, ease of use, and cost.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Experiences of Young People and Their Caregivers of Using Technology to Manage Type 1 Diabetes Mellitus: Systematic Literature Review and Narrative Synthesis

Brew‐Sam¹,

Chhabra²,

Parkinson³

et al. 2021

JMIR Diabetes

View full text Add to dashboard Cite

show abstract

“…Involving young patients with T1D and their caregivers in the development process was part of the development and research process. Young people and adolescents in particular have different requirements for medical devices than adults [ 48 ]. They also have different preferences for types of games and gamification methods [ 49 ].…”

Section: Introductionmentioning

confidence: 99%

Design and Evaluation of a Pervasive Coaching and Gamification Platform for Young Diabetes Patients

Klaassen

Bul

Akker

et al. 2018

Sensors

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Self monitoring, personal goal-setting and coaching, education and social support are strategies to help patients with chronic conditions in their daily care. Various tools have been developed, e.g., mobile digital coaching systems connected with wearable sensors, serious games and patient web portals to personal health records, that aim to support patients with chronic conditions and their caregivers in realizing the ideal of self-management. We describe a platform that integrates these tools to support young patients in diabetes self-management through educational game playing, monitoring and motivational feedback. We describe the design of the platform referring to principles from healthcare, persuasive system design and serious game design. The virtual coach is a game guide that can also provide personalized feedback about the user’s daily care related activities which have value for making progress in the game world. User evaluations with patients under pediatric supervision revealed that the use of mobile technology in combination with web-based elements is feasible but some assumptions made about how users would connect to the platform were not satisfied in reality, resulting in less than optimal user experiences. We discuss challenges with suggestions for further development of integrated pervasive coaching and gamification platforms in medical practice.

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Experiences of Young People and Their Caregivers of Using Technology to Manage Type 1 Diabetes Mellitus: Systematic Literature Review and Narrative Synthesis (Preprint)

Brew‐Sam¹,

Chhabra²,

Parkinson³

et al. 2020

Preprint

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BACKGROUND In the last decade, diabetes management has begun to transition to technology-based care, with young people being the focus of many technological advances. Yet, detailed insights into the experiences of young people and their caregivers of using technology to manage type 1 diabetes mellitus are lacking. OBJECTIVE The objective of our study was to describe the breadth of experiences and perspectives on diabetes technology use among children and adolescents with type 1 diabetes mellitus and their caregivers. METHODS This systematic literature review used integrated thematic analysis to guide a narrative synthesis of the included studies. We analyzed the perspectives and experiences of young people with type 1 diabetes mellitus and their caregivers reported in qualitative studies, quantitative descriptive studies, and studies with a mixed methods design. RESULTS Seventeen articles met the inclusion criteria, and they included studies on insulin pump, glucose sensors, and remote monitoring systems. The following eight themes were derived from the analysis: (1) expectations of the technology prior to use, (2) perceived impact on sleep and overnight experiences, (3) experiences with alarms, (4) impact on independence and relationships, (5) perceived usage impact on blood glucose control, (6) device design and features, (7) financial cost, and (8) user satisfaction. While many advantages of using diabetes technology were reported, several challenges for its use were also reported, such as cost, the size and visibility of devices, and the intrusiveness of alarms, which drew attention to the fact that the user had type 1 diabetes mellitus. Continued use of diabetes technology was underpinned by its benefits outweighing its challenges, especially among younger people. CONCLUSIONS Diabetes technologies have improved the quality of life of many young people with type 1 diabetes mellitus and their caregivers. Future design needs to consider the impact of these technologies on relationships between young people and their caregivers, and the impact of device features and characteristics such as size, ease of use, and cost.

show abstract

Letters to Medical Devices: A Case Study on the Medical Device User Requirements of Female Adolescents and Young Adults with Type 1 Diabetes

Cited by 3 publications

References 24 publications

Experiences of Young People and Their Caregivers of Using Technology to Manage Type 1 Diabetes Mellitus: Systematic Literature Review and Narrative Synthesis

Experiences of Young People and Their Caregivers of Using Technology to Manage Type 1 Diabetes Mellitus: Systematic Literature Review and Narrative Synthesis

Design and Evaluation of a Pervasive Coaching and Gamification Platform for Young Diabetes Patients

Experiences of Young People and Their Caregivers of Using Technology to Manage Type 1 Diabetes Mellitus: Systematic Literature Review and Narrative Synthesis (Preprint)

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