Interventions for supporting informal caregivers of patients in the terminal phase of a disease

Existential behavioural therapy for informal caregivers of palliative patients: a randomised controlled trial

“…Moreover, the 12-month effects are clinically relevant, as the distress values improved from abnormal to within the normal range. In contrast to previous interventions with relatives [13], long-term effects were evidenced not only on psychological distress but also on QOL. There were no adverse events reported in the study arm that would indicate side effects of EBT.…”

“…Participants were selected from different institutions, improving the generalisability of the results. Although many studies are limited to pre‐/post‐comparisons or short follow‐up periods , we observed the treatment effects over a longer period. Study participants were informal caregivers of patients receiving inpatient palliative care; a next step would be to extend and evaluate such support to informal caregivers of outpatients.…”

Existential behavioural therapy for informal caregivers of palliative patients: a randomised controlled trial

“…Moreover, the 12-month effects are clinically relevant, as the distress values improved from abnormal to within the normal range. In contrast to previous interventions with relatives [13], long-term effects were evidenced not only on psychological distress but also on QOL. There were no adverse events reported in the study arm that would indicate side effects of EBT.…”

“…Participants were selected from different institutions, improving the generalisability of the results. Although many studies are limited to pre‐/post‐comparisons or short follow‐up periods , we observed the treatment effects over a longer period. Study participants were informal caregivers of patients receiving inpatient palliative care; a next step would be to extend and evaluate such support to informal caregivers of outpatients.…”

Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient's death

“…These findings are in line with previous studies which demonstrated that higher pre-loss emotional distress and the level of depressive symptoms during home care was a predictor of negative bereavement outcomes and complicated grief (Allen et al, 2013;Miyajima et al, 2014;Stajduhar et al, 2010). Previous research pointed out, that psychological interventions for family caregivers of palliative cancer patients can reduce psychological distress (Allen, Hilgeman, Ege, Shuster, & Burgio, 2008;Candy, Jones, Drake, Leurent, & King, 2011;Kissane et al, 2006). Bereaved family caregivers who received bereavement care were significantly more likely to have a sense of mastery over their lives, appreciation for others and meaning in life (Kang et al, 2013).…”

Cancer caregiver quality of life: need for targeted intervention

“…Although overall QOL was not impacted significantly, caregiver comments indicated the intervention was perceived as beneficial. The results support previous research indicating that indirect interventions for the caregivers (i.e., interventions provided to the patient) do not necessarily have a profound impact on the caregiver [13,25,26]. Previous findings also indicate that focused and tailored caregiver interventions are much more effective at alleviating the burden placed on caregivers than combined patient-caregiver interventions, but long-term impact is not known [27][28][29].…”

Existential behavioural therapy for informal caregivers of palliative patients: a randomised controlled trial

“…Moreover, the 12-month effects are clinically relevant, as the distress values improved from abnormal to within the normal range. In contrast to previous interventions with relatives [13], long-term effects were evidenced not only on psychological distress but also on QOL. There were no adverse events reported in the study arm that would indicate side effects of EBT.…”

“…Participants were selected from different institutions, improving the generalisability of the results. Although many studies are limited to pre‐/post‐comparisons or short follow‐up periods , we observed the treatment effects over a longer period. Study participants were informal caregivers of patients receiving inpatient palliative care; a next step would be to extend and evaluate such support to informal caregivers of outpatients.…”

Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient's death

“…These findings are in line with previous studies which demonstrated that higher pre-loss emotional distress and the level of depressive symptoms during home care was a predictor of negative bereavement outcomes and complicated grief (Allen et al, 2013;Miyajima et al, 2014;Stajduhar et al, 2010). Previous research pointed out, that psychological interventions for family caregivers of palliative cancer patients can reduce psychological distress (Allen, Hilgeman, Ege, Shuster, & Burgio, 2008;Candy, Jones, Drake, Leurent, & King, 2011;Kissane et al, 2006). Bereaved family caregivers who received bereavement care were significantly more likely to have a sense of mastery over their lives, appreciation for others and meaning in life (Kang et al, 2013).…”

Cancer caregiver quality of life: need for targeted intervention

“…Although overall QOL was not impacted significantly, caregiver comments indicated the intervention was perceived as beneficial. The results support previous research indicating that indirect interventions for the caregivers (i.e., interventions provided to the patient) do not necessarily have a profound impact on the caregiver [13,25,26]. Previous findings also indicate that focused and tailored caregiver interventions are much more effective at alleviating the burden placed on caregivers than combined patient-caregiver interventions, but long-term impact is not known [27][28][29].…”

Existential behavioural therapy for informal caregivers of palliative patients: a randomised controlled trial

“…Moreover, the 12-month effects are clinically relevant, as the distress values improved from abnormal to within the normal range. In contrast to previous interventions with relatives [13], long-term effects were evidenced not only on psychological distress but also on QOL. There were no adverse events reported in the study arm that would indicate side effects of EBT.…”

“…Participants were selected from different institutions, improving the generalisability of the results. Although many studies are limited to pre‐/post‐comparisons or short follow‐up periods , we observed the treatment effects over a longer period. Study participants were informal caregivers of patients receiving inpatient palliative care; a next step would be to extend and evaluate such support to informal caregivers of outpatients.…”

Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient's death

“…These findings are in line with previous studies which demonstrated that higher pre-loss emotional distress and the level of depressive symptoms during home care was a predictor of negative bereavement outcomes and complicated grief (Allen et al, 2013;Miyajima et al, 2014;Stajduhar et al, 2010). Previous research pointed out, that psychological interventions for family caregivers of palliative cancer patients can reduce psychological distress (Allen, Hilgeman, Ege, Shuster, & Burgio, 2008;Candy, Jones, Drake, Leurent, & King, 2011;Kissane et al, 2006). Bereaved family caregivers who received bereavement care were significantly more likely to have a sense of mastery over their lives, appreciation for others and meaning in life (Kang et al, 2013).…”

Cancer caregiver quality of life: need for targeted intervention

“…Although overall QOL was not impacted significantly, caregiver comments indicated the intervention was perceived as beneficial. The results support previous research indicating that indirect interventions for the caregivers (i.e., interventions provided to the patient) do not necessarily have a profound impact on the caregiver [13,25,26]. Previous findings also indicate that focused and tailored caregiver interventions are much more effective at alleviating the burden placed on caregivers than combined patient-caregiver interventions, but long-term impact is not known [27][28][29].…”